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Communicating Chronic Pain: Digital Humanities Project

Project: Research

Description

This Digital Humanities project involves developing an online platform to help people create and share creative work, fostering online community across short-form writing and enhancing awareness among healthcare practitioners, carers and the public. The research, development and engagement activities have been designed to build on promising lines of research identified during the AHRC-funded Research Network Translating Chronic Pain (2017-2019), for which Sara Wasson was PI. The engagement is knowledge-generating, the processes and outcomes both seeking to nuance understanding of pain story within critical medical humanities. Throughout, we ask: what digital platform design and invitations only help communicate pain story, but also change our understanding about what pain stories look like, what they do, and how they need to circulate?
We will deliver engagement and produce academic outputs which use short-form writing to expand the representational strategies and imaginative models available for communicating chronic pain. These interventions are necessary to counter the profound invisibility experienced by many people living with pain.

Short title	Translating Pain
Status	Active
Effective start/end date	23/01/18 → …

Wasson, Sara (Principal Investigator)
Tembo, Kwasu (Co-Investigator)

Project relations

Writing for Wellbeing
Project: Research

Activities

Invited speaker, Queen Mary, University of London. Paper title: ‘Medical Gothic: Strange Times and Affective Transgression in Illness, Intervention and Aftermath’.
Activity: Talk or presentation types › Invited talk
‘Representing chronic pain with ‘flash’ short form writing’
Activity: Talk or presentation types › Oral presentation
‘Torn Wings and Exorcism: Gothic Representations of Chronic Pain.’
Activity: Talk or presentation types › Oral presentation
‘Recalcitrant Flesh: Organ Transfer and the Struggle for Narrative Control in Text and Film’, Gothic Technologies/Gothic Techniques, Eleventh Biennial Conference of the International Gothic Association, University of Surrey.
Activity: Talk or presentation types › Oral presentation
'Complex Chaos: Temporality in Representations of Chronic Pain’. Association of Medical Humanities Annual Conference, ‘Critical Stories’, Keele University.
Activity: Talk or presentation types › Oral presentation
‘Clinical Labour in the Grey Zone: the biopolitics of transplant horror in Manjula Padmanabhan’s Harvest’
Activity: Talk or presentation types › Oral presentation
‘Pain as Fragment, Moment, Glimpse: Flash Illness Writing’. Presented at Representing Pain: Narrative & Fragments, AHRC-Funded Symposium at Lancaster University.
Activity: Talk or presentation types › Oral presentation
‘“Flash” future? The Potential of Fragments and Short-Form Writing in the project Translating Chronic Pain’. NNMHR: Northern Network Medical Humanities conference (NNMHR), at the University of Leeds. This is an annual conference with international reach
Activity: Other activity types › Other
‘Waiting, Strange: Temporality in Life Writing by Transplant Recipients.’ British Society for Literature and Science (BSLS) Conference, April 2021.
Activity: Talk or presentation types › Oral presentation
Public reading/talk as part of the book launch for Uncanny Bodies (Luna Press, 2020), to which I contributed a chapter titled ‘Pain’s Uncanny’.
Activity: Talk or presentation types › Public Lecture/ Debate/Seminar
Invited speaker at the University of Salamanca, Spain. Paper title: ‘Making room for stories that don’t sound like stories: nuanced resilience in narratives of pain’.
Activity: Talk or presentation types › Invited talk

Prizes

Sara Wasson's monograph Transplantation Gothic was shortlisted for the British Society of Literature and Science book award.
Prize: Prize (including medals and awards)
Sara Wasson's monograph Transplantation Gothic was honoured to win the International Gothic Association's Allan Lloyd Smith prize for advancing the field of Gothic studies.
Prize: Prize (including medals and awards)

Research outputs

Strange and Tender Fracture: Flash Illness Writing, Chronic Pain, and Alternatives to “Resilience”
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Guest Editor's Introduction: Pain's Plurals and Narrative Disruption: Communicating Pain and Honoring Its Telling
Research output: Contribution to Journal/Magazine › Editorial › peer-review
Waiting, strange: transplant recipient experience, medical time, and queer/crip temporalities
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Pain's Uncanny
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Transplantation Gothic: Tissue Transfer in Literature, Film and Medicine
Research output: Book/Report/Proceedings › Book
Spectrality, Strangeness and Stigmaphilia: Gothic and Critical Disability Studies
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Frankenstein and the Politics of Vulnerability
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Before Narrative: Episodic Reading and Representations of Chronic Pain
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Creative Manifesto: Translating Chronic Pain
Research output: Exhibits, objects and web-based outputs › Web publication/site
Translating Chronic Pain: online anthology and project website
Research output: Exhibits, objects and web-based outputs › Web publication/site