Health and adolescence

Cancer related projects

Other projects based on a qualitative approach to health research

My teaching covers a range of issues and topics including medical sociology, adolescent health, cancer in teenagers and young adults and research methods with a particular emphasis on the ethical challenges of health related research. I also draw upon my background in the Sociology of Scientific Knowledge to teach knowledge generation as it is applied to the health and medical field.

News

My four books about cancer in young adulthood are all available currently. Further information on each title is available by clicking on the link to view the summary PDF. A fourth book on palliative and end of life care will be published by Blackwell in 2012:

Grinyer, A. (2012) Palliative and end of life care for children and young people: home, hospice, hospital, Blackwell Oxford.

Grinyer, A. (2009) Life After Cancer in Adolescence and Young Adulthood: Late Effects and Long Term Survivorship, Oxford, Routledge.

Grinyer, A. (2007) Young People Living with Cancer: implications for policy and practice, Open University Press.

Grinyer, A. (2002) Cancer in young adults: through parents' eyes, Buckingham, Open University Press.

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My interests

I am a medical sociologist with a background inthe Sociology of Scientific Knowledge. I have over the years researched mainly in medical and health related areas, and have published on topics such as drug licensing, AIDS, risk management and sickness absence. I have become increasingly interested in the ethical dimensions of research particularly the ethical issues relating to health research and have also published on this topic.

Research

Since 1999 my research has been on cancer in adolescence and young adulthood, it is funded by The George Easton Memorial Trust. The first phase was based on the narrative accounts of parents whose sons and daughters had been diagnosed with cancer - the majority of them having died from the illness. The resulting book, based on the narrative material is called Cancer in Young Adults: Through Parents' Eyes it was published by Open University Press in 2002. The second phase of the study on the young adults themselves resulted in the book Young People living with Cancer: Implications for Policy and Practice, and was published by Open University Press in March 2007. The book is based on in-depth interviews with young adults being treated for or in recovery from cancer and seeks to understand the experience from their perspective so that medical care, services and support can be organised and delivered in an age appropriate way. My third book on long term survivorship is entitled Life after cancer in adolescence and young adulthood, and was published by Routledge in 2009. My fourth book on palliative and end of life care for children and young adults will be published by Blackwell in 2012.

Grinyer, A. (2012) A bereavement group for parents whose son or daughter died from cancer: how shared experience can lessen isolation, Mortality, Vol. 17 Issue 4: 338-354.

Publications

Young Adults with Cancer Project Publications

Books

Grinyer, A. (2012) Palliative and end of life care for children and young people: home, hospice, hospital, Blackwell, Oxford.

Grinyer, A. (2012) Palliative and end of life care for children and young people: home, hospice, hospital, Blackwell Oxford.

Grinyer, A. (2009) Life After Cancer in Adolescence and Young Adulthood: Late Effects and Long Term Survivorship, Oxford, Routledge.

Grinyer, A. (2007) Young People Living with Cancer: implications for policy and practice, Open University Press.

Grinyer, A. (2002) Cancer in young adults: through parents' eyes, Buckingham, Open University Press.

Peer Reviewed Articles

Grinyer, A. (2012) A bereavement group for parents whose son or daughter died from cancer: how shared experience can lessen isolation, Mortality, Vol. 17 Issue 4: 338-354.

Grinyer, A. Dying as a teenager or young person, in Death, Dying and Social Differences, (Oliviere, D. Monroe B. and Payne, S. Eds) 2nd Edition, Oxford University Press. Accepted November 2010.

Grinyer, A. and Thomas, C. The Value of Interviewing on Multiple Occasions or Longitudinally,

Handbook of Interview Research, Gubrium, J., Holstein, J. McKinney, K. and Marvasti, A. (eds), Sage. Accepted November 2010Swarbrick, P. Grinyer, A. and Payne, S. (2011) When a hospice is not a haven, Progress in Palliative Care, Vol. 19 No 1:. 122-24

Grinyer, A. Payne, S. and Barbarachild, Z. (2010) Issues of power, control and choice in children's hospice respite care services: a qualitative study, International Journal of Palliative Nursing, Vol 14 No 5: 505-510.

Grinyer, A. (2010) The late effects of mantle field radiotherapy: the information and support needs of women survivors of Hodgkin's disease, accepted December 2009 by European Journal of Oncology Nursing, Vol. 14 (3) 183-189.

Grinyer, A. (2009) Contrasting parental perspectives with those of teenagers and young adults with cancer: comparing the findings from two qualitative studies, European Journal of Oncology Nursing, Vol. 13: 192-198.

Grinyer, A. (2009) The ethics of the secondary analysis and further usage of qualitative data,

Social Research Update, Issue 56, University of Surrey.

Grinyer, A. (2008) The impact of cancer on parents of adolescents and young people, Cancer Care for Adolescents and Young Adults, (Gibson, F. and Kelly, D. Eds.) Oxford: Blackwell:44-58.

Grinyer, A. (2007) The biographical impact of teenage and adolescent cancer, Chronic Illness. Vol.3 No 4:265-277.

Grinyer, A. (2007) The ethics of Internet usage in health and personal narratives research, Social Research Update, Issue 49, University of Surrey.

Grinyer, A. (2006) Telling the Story of Illness and Death, Auto/Biography. Vol.14. 206-222.

Grinyer, A. (2006) Caring for a young adult with cancer: The impact on mothers' health, Health and Social Care in the Community, 14 (4): 311-318.

Grinyer, A. (2005) Personal agendas in emotionally demanding research, Social Research Update, Issue 46, University of Surrey.

Grinyer, A. (2004) Young adults with cancer: parents' interaction with health care professionals, The European Journal of Cancer Care, Vol. 13, 88-95.

Grinyer, A. and Thomas, C. (2004) The importance of place of death in young adults with terminal cancer, Mortality, Vol. 9, No. 2, May 2004: 114-131.

Grinyer, A. (2004) The narrative correspondence method: what a follow up study can tell us about the longer-term effect on participants in emotionally demanding research, Qualitative Health Research, Vol.14 (10): 1326-1341

Grinyer, A. (2002) The Anonymity of Research Participants: Assumptions, Ethics and Practicalities, Social Research Update, Issue 36, University of Surrey.

Grinyer, A. and Thomas, C. (2001) Young Adults with Cancer: The effect on Parents and Families, The International Journal of Palliative Nursing, April 2001. Vol.7 No.4. 162-170.

Conferences and Presentations

Grinyer, A. Invited speaker at the 6th International; Teenage Cancer Trust Conference, "Dealing with the death of a patient", Royal Society of Medicine, London, June 2010.

Grinyer, A. Invited session Chair at the 6th International; Teenage Cancer Trust Conference, Royal Society of Medicine, London, June 2010.

Grinyer, A. Invited speaker Merseyside and Cheshire Cancer Network Conference, Life After Cancer in Young Adulthood: The Experience of Survivorship, Widnes, March 2010.

Grinyer, A. Invited speaker at the Teenage Cancer Trust Annual Education Day, Teenagers with Cancer: Exploring the Journey, London, January 2010.

Grinyer, A. Invited speaker at the annual Research in Child Health Stud Day, Alder Hey Children's NHS Foundation Trust: The psychosocial impact of cancer on teenagers and young adults: how the care setting affects the experience, November 2009.

Grinyer, A. Invited speaker at the Helen and Douglas House Hospices, staff training, title: The psycho-social needs of teenagers and young adults with life limiting illness - what makes the age group different? Oxford, September 2009.

Grinyer, A. Invited speaker at the Royal Marsden Hospital Teenagers and Young Adults with Cancer Conference, Survivorship - what does it mean for teenagers and young adults? July 2009.

Grinyer, A. Invited speaker at the Paediatric Oncology Nurses Forum annual conference, "Late effects and long term survivorship after cancer in young adulthood", York, July, 2009.

Grinyer, A. Invited speaker at The Lancashire and South Cumbria Cancer Network inaugural conference on Ribby Hall Conference Centre, Young Adults with Cancer: why age and life stage make it different, Preston.June 2009

Grinyer, A. Invited speaker at the Children's Hospital of Seattle Grand Rounds, "Teenage and young adult cancer: The impact on family dynamics and the struggle for autonomy", June, 2009.

Grinyer, A. Invited speaker at the Children's Hospital of Seattle Pediatric Cancer Centre Meeting, June 2009.

Grinyer, A. Invited speaker at the Adolescent Medicine department monthly departmental conference Children's Hospital of Seattle, "Teenage and young adult cancer: The psychosocial impact",June 2009.

Grinyer, A. Invited speaker at Pediatric Grand Rounds, Children's Hospital of Seattle, "Teenage and young adult cancer: Death and decision making", June 2009.

Grinyer, A. Invited speaker at the CECo Annual Scientific Meeting, 'Meet the Expert', Manchester, April 2009.

Grinyer, A. Invited speaker at the Dana Farber Cancer Institute Adolescent Quality of Care Unit, Boston, "Young People Living with Cancer: Implications for Policy and Clinical Practice",January 2009.

Grinyer, A. Invited speaker at Boston University Department of Social Work, "Young People Living with Cancer: implications for Policy and Practice",January 2009.

Grinyer, A. Invited speaker at Boston University Department of Sociology, "The Methodological and Ethical Challenges of Researching Young Adults with Cancer", January 2009.

Grinyer, A. Invited speaker at Massachusetts General Hospital, "The Biographical impact of teenage and adolescent cancer: research findings from the UK". January 2009.

Grinyer, A. TYAC annual conference, "Life after cancer in young adulthood: the experience of long term survivorship", Manchester, December 2008.

Grinyer, A. Invited inaugural lecturer for the Sam Shepherd Annual Memorial Lecture, "Cancer in Young Adults: the effect of life stage on parents and young people with cancer",organised bySheffield Royal Hallamshire Hospital, September 2008.

Grinyer, A. Chair of Plenary sessions and workshop at the Teenage Cancer Trust Conference, Westminster, June 2008.

Grinyer, A. Invited speaker at 'Lost in Transition' conference, "Cancer in Young Adults: the effect of life stage on parents", Glasgow, February 2008.

Grinyer, A. Public address at Book launch for Young People Living with Cancer: implications for policy and practice, Guy's Hospital, June 2007.

Grinyer, A. Invited speaker at Foresight Centre Conference on Cancer in Young Families, "Cancer in Young Adults: the effect of life stage on parents and families", Liverpool University, May 2007.

Grinyer, A. Invited speaker at the Bereavement Research Forum Symposium, "The Narrative Correspondence Method as an Approach in Sensitive Research", London, January 2007.

Grinyer, A. Invited speaker at the Peter MacCallum Cancer Centre, Grand Rounds, "Young adults with cancer:

implications for policy and practice (1)", Melbourne, Australia, October 2006.

Grinyer, A. Invited speaker at the Peter MacCallum Cancer Centre, Public Lecture, "Young adults with cancer:

implications for policy and practice (2)", Melbourne, Australia, October 2006.

Grinyer, A. Invited speaker at the CeCo (Cancer Experiences Collaborative) Protocol Development Meeting, "What is Narrative Research?"Lancaster, September 2006.

Grinyer, A. Invited speaker at The Paediatric Oncology Nurses Forum, "Cancer in Young Adults: the effect of life stage on parents and families", Nottingham, July 2006.

Grinyer, A. Invited speaker at the TYAC annual conference, "How the care setting affects young adults with cancer", Guy's Hospital, June 2006.

Grinyer, A. The European Association of Palliative Care, "Young Adults with Cancer: implications of the palliative care setting", Venice,May 2006.

Grinyer, A. Invited speaker at the Milford Care Centre Qualitative Research Conference, Mid Western Regional Hospital, "The Narrative Correspondence Method as an Approach in Sensitive Research", Limerick, Ireland, January 2006.

Grinyer, A. Invited speaker at the Bereavement Research Forum Symposium, "The Narrative Correspondence Method as an Approach in Sensitive Research", London, November 2005.

Grinyer, A. Invited plenary speaker at the European Cancer Conference (ECCO) "Young Adults and Place of Death", Paris, October 2005.

Grinyer, A. Invited speaker at The Lancashire and South Cumbria Research Network Annual Research Conference, "Teenagers and Young Adults with Cancer", Garstang, October 2005.

Grinyer, A. Fifth Australian Women's Health Conference, "Caring for a son or daughter with cancer; the impact on women's health", Melbourne, Australia, May 2005.

Grinyer, A. Invited speaker at the Canteen Annual Staff Meeting, "Young Adults with Cancer: the implications of life stage", Sydney, May 2005.

Grinyer, A. Invited speaker at, Melbourne Children's Hospital, "Parents and Professionals: relationships in the setting of care", May 2005.