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  • Palliat Med-2013-Gysels-908-17

    Rights statement: “The final, definitive version of this article has been published in the Journal, Palliative Medicine, 27 (10), 2013, © SAGE Publications Ltd, 2013 by SAGE Publications Ltd at the Palliative Medicine page: http://pmj.sagepub.com/ on SAGE Journals Online: http://online.sagepub.com/

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MORECare research methods guidance development: recommendations for ethical issues in palliative and end-of-life care research

Research output: Contribution to journalJournal article

Published
  • Marjolein Gysels
  • Catherine J. Evans
  • Penney Lewis
  • Peter Speck
  • Hamid Benalia
  • Nancy J. Preston
  • Gunn E. Grande
  • Vicky Short
  • Eleanor Owen-Jones
  • Chris J. Todd
  • Irene J. Higginson
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<mark>Journal publication date</mark>12/2013
<mark>Journal</mark>Palliative Medicine
Issue number10
Volume27
Number of pages10
Pages (from-to)908-917
Publication statusPublished
Early online date21/05/13
Original languageEnglish

Abstract

Background:There is little guidance on the particular ethical concerns that research raises with a palliative care population.Aim:To present the process and outcomes of a workshop and consensus exercise on agreed best practice to accommodate ethical issues in research on palliative care.

Design:Consultation workshop using the MORECare Transparent Expert Consultation approach. Prior to workshops, participants were sent overviews of ethical issues in palliative care. Following the workshop, nominal group techniques were used to produce candidate recommendations. These were rated online by participating experts. Descriptive statistics were used to analyse agreement and consensus. Narrative comments were collated.

Setting/participants:Experts in ethical issues and palliative care research were invited to the Cicely Saunders Institute in London. They included senior researchers, service providers, commissioners, researchers, members of ethics committees and policy makers.

Results:The workshop comprised 28 participants. A total of 16 recommendations were developed. There was high agreement on the issue of research participation and high to moderate agreement on applications to research ethics committees. The recommendations on obtaining and maintaining consent from patients and families were the most contentious. Nine recommendations were refined on the basis of the comments from the online consultation.

Conclusions:The culture surrounding palliative care research needs to change by fostering collaborative approaches between all those involved in the research process. Changes to the legal framework governing the research process are required to enhance the ethical conduct of research in palliative care. The recommendations are relevant to all areas of research involving vulnerable adults.

Bibliographic note

“The final, definitive version of this article has been published in the Journal, Palliative Medicine, 27 (10), 2013, © SAGE Publications Ltd, 2013 by SAGE Publications Ltd at the Palliative Medicine page: http://pmj.sagepub.com/ on SAGE Journals Online: http://online.sagepub.com/