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Perspectives of Elders and their Adult Children of Black and Minority Ethnic Heritage on End-of-Life Conversations: A Meta-ethnography

Research output: Contribution to journalJournal article

Published
<mark>Journal publication date</mark>1/02/2020
<mark>Journal</mark>Palliative Medicine
Issue number2
Volume34
Number of pages14
Pages (from-to)195-208
Publication statusPublished
Original languageEnglish

Abstract

Background:
People of Black and minority ethnic heritage are more likely to die receiving life supporting measures and less likely to die at home. End-of-life care decision making often involves adult children as advance care planning is uncommon in these communities. Physicians report family distress as being a major factor in continuing with futile care.

Aim:
To develop a deeper understanding of the perspectives of elders of Black and minority ethnic heritage and their children, about end-of-life conversations that take place within the family, using a meta-ethnographic approach

Design:
Systematic interpretive exploration using the process of meta-ethnography was utilised.

Data sources:
CINAHL, MEDLINE, PubMed and PsycINFO databases were searched. Inclusion criteria included studies published between 2005 and 2019 and studies of conversations between ethnic minority elders and family about end-of-life care. Citation snowballing was used to ensure all appropriate references were identified. A total of 13 studies met the inclusion criteria and required quality level using Critical Appraisal Skills Programme.

Results:
The following four storylines were constructed: ‘My family will carry out everything for me; it is trust’; ‘No Mum, don’t talk like that’; ‘I leave it in God’s hands’; and ‘Who’s going to look after us?’ The synthesis reflected the dichotomous balance of trust and burden avoidance that characterises the perspectives of Black and minority ethnic elders to end-of-life care planning with their children.