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Perspectives of Elders and their Adult Children of Black and Minority Ethnic Heritage on End-of-Life Conversations: A Meta-ethnography

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Perspectives of Elders and their Adult Children of Black and Minority Ethnic Heritage on End-of-Life Conversations : A Meta-ethnography. / De Souza, Joanna; Froggatt, Katherine; Walshe, Catherine; Gillett, Karen.

In: Palliative Medicine, Vol. 34, No. 2, 01.02.2020, p. 195-208.

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@article{16b69627a99f4b9fbc9175b427c1c4e8,
title = "Perspectives of Elders and their Adult Children of Black and Minority Ethnic Heritage on End-of-Life Conversations: A Meta-ethnography",
abstract = "Background:People of Black and minority ethnic heritage are more likely to die receiving life supporting measures and less likely to die at home. End-of-life care decision making often involves adult children as advance care planning is uncommon in these communities. Physicians report family distress as being a major factor in continuing with futile care.Aim:To develop a deeper understanding of the perspectives of elders of Black and minority ethnic heritage and their children, about end-of-life conversations that take place within the family, using a meta-ethnographic approachDesign:Systematic interpretive exploration using the process of meta-ethnography was utilised.Data sources:CINAHL, MEDLINE, PubMed and PsycINFO databases were searched. Inclusion criteria included studies published between 2005 and 2019 and studies of conversations between ethnic minority elders and family about end-of-life care. Citation snowballing was used to ensure all appropriate references were identified. A total of 13 studies met the inclusion criteria and required quality level using Critical Appraisal Skills Programme.Results:The following four storylines were constructed: {\textquoteleft}My family will carry out everything for me; it is trust{\textquoteright}; {\textquoteleft}No Mum, don{\textquoteright}t talk like that{\textquoteright}; {\textquoteleft}I leave it in God{\textquoteright}s hands{\textquoteright}; and {\textquoteleft}Who{\textquoteright}s going to look after us?{\textquoteright} The synthesis reflected the dichotomous balance of trust and burden avoidance that characterises the perspectives of Black and minority ethnic elders to end-of-life care planning with their children.",
author = "{De Souza}, Joanna and Katherine Froggatt and Catherine Walshe and Karen Gillett",
year = "2020",
month = feb,
day = "1",
doi = "10.1177/0269216319887070",
language = "English",
volume = "34",
pages = "195--208",
journal = "Palliative Medicine",
issn = "0269-2163",
publisher = "SAGE Publications Ltd",
number = "2",

}

RIS

TY - JOUR

T1 - Perspectives of Elders and their Adult Children of Black and Minority Ethnic Heritage on End-of-Life Conversations

T2 - A Meta-ethnography

AU - De Souza, Joanna

AU - Froggatt, Katherine

AU - Walshe, Catherine

AU - Gillett, Karen

PY - 2020/2/1

Y1 - 2020/2/1

N2 - Background:People of Black and minority ethnic heritage are more likely to die receiving life supporting measures and less likely to die at home. End-of-life care decision making often involves adult children as advance care planning is uncommon in these communities. Physicians report family distress as being a major factor in continuing with futile care.Aim:To develop a deeper understanding of the perspectives of elders of Black and minority ethnic heritage and their children, about end-of-life conversations that take place within the family, using a meta-ethnographic approachDesign:Systematic interpretive exploration using the process of meta-ethnography was utilised.Data sources:CINAHL, MEDLINE, PubMed and PsycINFO databases were searched. Inclusion criteria included studies published between 2005 and 2019 and studies of conversations between ethnic minority elders and family about end-of-life care. Citation snowballing was used to ensure all appropriate references were identified. A total of 13 studies met the inclusion criteria and required quality level using Critical Appraisal Skills Programme.Results:The following four storylines were constructed: ‘My family will carry out everything for me; it is trust’; ‘No Mum, don’t talk like that’; ‘I leave it in God’s hands’; and ‘Who’s going to look after us?’ The synthesis reflected the dichotomous balance of trust and burden avoidance that characterises the perspectives of Black and minority ethnic elders to end-of-life care planning with their children.

AB - Background:People of Black and minority ethnic heritage are more likely to die receiving life supporting measures and less likely to die at home. End-of-life care decision making often involves adult children as advance care planning is uncommon in these communities. Physicians report family distress as being a major factor in continuing with futile care.Aim:To develop a deeper understanding of the perspectives of elders of Black and minority ethnic heritage and their children, about end-of-life conversations that take place within the family, using a meta-ethnographic approachDesign:Systematic interpretive exploration using the process of meta-ethnography was utilised.Data sources:CINAHL, MEDLINE, PubMed and PsycINFO databases were searched. Inclusion criteria included studies published between 2005 and 2019 and studies of conversations between ethnic minority elders and family about end-of-life care. Citation snowballing was used to ensure all appropriate references were identified. A total of 13 studies met the inclusion criteria and required quality level using Critical Appraisal Skills Programme.Results:The following four storylines were constructed: ‘My family will carry out everything for me; it is trust’; ‘No Mum, don’t talk like that’; ‘I leave it in God’s hands’; and ‘Who’s going to look after us?’ The synthesis reflected the dichotomous balance of trust and burden avoidance that characterises the perspectives of Black and minority ethnic elders to end-of-life care planning with their children.

U2 - 10.1177/0269216319887070

DO - 10.1177/0269216319887070

M3 - Journal article

VL - 34

SP - 195

EP - 208

JO - Palliative Medicine

JF - Palliative Medicine

SN - 0269-2163

IS - 2

ER -