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    Rights statement: This is the peer reviewed version of the following article: Fish R, Hatton C, Chauhan U. “Tell me what they do to my body”: A survey to find out what information people with learning disabilities want with their medications. Br J Learn Disabil. 2017;45:217–225. https://doi.org/10.1111/bld.12196 which has been published in final form at http://onlinelibrary.wiley.com/doi/10.1111/bld.12196/abstract This article may be used for non-commercial purposes in accordance With Wiley Terms and Conditions for self-archiving.

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"Tell me what they do to my body": A survey to find out what information people with learning disabilities want with their medications

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"Tell me what they do to my body" : A survey to find out what information people with learning disabilities want with their medications. / Fish, Rebecca; Hatton, Chris; Chauhan, Umesh.

In: British Journal of Learning Disabilities, Vol. 45, No. 3, 09.2017, p. 217-225.

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@article{cf3910dea61d4307b2eb25dab17bde7a,
title = "{"}Tell me what they do to my body{"}: A survey to find out what information people with learning disabilities want with their medications",
abstract = "Accessible summaryWe gave a questionnaire to self-advocates who were attending a conference. The questionnaire asked them how they felt about the information they get with their medicine.Fifty-eight people completed the questionnaire. Many of them said they did not get enough information about their medicine. Most people wanted easy-read leaflets and pictures.There are many different places to find easy-read information on the internet. We think they should be collected and checked. We also think that doctors and chemists need to spend more time with people to explain about medicines.AbstractBackground: Previous research has found that people with learning disabilities are not given prescription information that is tailored to their needs. We wanted to find out people's information requirements.Materials and Methods: A questionnaire was co-produced by the authors and consultants with learning disabilities. It asked what information people received from their GP and pharmacist about medications. The questionnaire was circulated at a self-advocacy conference in the North of England. Fifty-eight self-advocates completed the questionnaire.Results: Information from GPs and pharmacists was mainly instructional, referring to when and how to take the medicine and dosage. Most respondents struggled to read the leaflets and remember verbal information. Many wanted the information in easy-read format, and some wanted pictures or diagrams as well. A key theme was that health professionals often talked only to carers or support workers rather than involving the patient directly, and some respondents disclosed that they were not informed about side effects or alternative medications.Conclusions: Health professionals should take time to discuss health issues and medication with the individual rather than only with carers. This could be facilitated by providing information in an accessible format.",
keywords = "consent to treatment, Health information, pharmaceutical interventions, INTELLECTUAL DISABILITIES, HEALTH-CARE, COMMUNICATION, CONSULTATIONS, PHYSICIANS, MIDDLE",
author = "Rebecca Fish and Chris Hatton and Umesh Chauhan",
note = "This is the peer reviewed version of the following article: Fish R, Hatton C, Chauhan U. “Tell me what they do to my body”: A survey to find out what information people with learning disabilities want with their medications. Br J Learn Disabil. 2017;45:217–225. https://doi.org/10.1111/bld.12196 which has been published in final form at http://onlinelibrary.wiley.com/doi/10.1111/bld.12196/abstract This article may be used for non-commercial purposes in accordance With Wiley Terms and Conditions for self-archiving.",
year = "2017",
month = "9",
doi = "10.1111/bld.12196",
language = "English",
volume = "45",
pages = "217--225",
journal = "British Journal of Learning Disabilities",
issn = "1354-4187",
publisher = "Wiley",
number = "3",

}

RIS

TY - JOUR

T1 - "Tell me what they do to my body"

T2 - A survey to find out what information people with learning disabilities want with their medications

AU - Fish, Rebecca

AU - Hatton, Chris

AU - Chauhan, Umesh

N1 - This is the peer reviewed version of the following article: Fish R, Hatton C, Chauhan U. “Tell me what they do to my body”: A survey to find out what information people with learning disabilities want with their medications. Br J Learn Disabil. 2017;45:217–225. https://doi.org/10.1111/bld.12196 which has been published in final form at http://onlinelibrary.wiley.com/doi/10.1111/bld.12196/abstract This article may be used for non-commercial purposes in accordance With Wiley Terms and Conditions for self-archiving.

PY - 2017/9

Y1 - 2017/9

N2 - Accessible summaryWe gave a questionnaire to self-advocates who were attending a conference. The questionnaire asked them how they felt about the information they get with their medicine.Fifty-eight people completed the questionnaire. Many of them said they did not get enough information about their medicine. Most people wanted easy-read leaflets and pictures.There are many different places to find easy-read information on the internet. We think they should be collected and checked. We also think that doctors and chemists need to spend more time with people to explain about medicines.AbstractBackground: Previous research has found that people with learning disabilities are not given prescription information that is tailored to their needs. We wanted to find out people's information requirements.Materials and Methods: A questionnaire was co-produced by the authors and consultants with learning disabilities. It asked what information people received from their GP and pharmacist about medications. The questionnaire was circulated at a self-advocacy conference in the North of England. Fifty-eight self-advocates completed the questionnaire.Results: Information from GPs and pharmacists was mainly instructional, referring to when and how to take the medicine and dosage. Most respondents struggled to read the leaflets and remember verbal information. Many wanted the information in easy-read format, and some wanted pictures or diagrams as well. A key theme was that health professionals often talked only to carers or support workers rather than involving the patient directly, and some respondents disclosed that they were not informed about side effects or alternative medications.Conclusions: Health professionals should take time to discuss health issues and medication with the individual rather than only with carers. This could be facilitated by providing information in an accessible format.

AB - Accessible summaryWe gave a questionnaire to self-advocates who were attending a conference. The questionnaire asked them how they felt about the information they get with their medicine.Fifty-eight people completed the questionnaire. Many of them said they did not get enough information about their medicine. Most people wanted easy-read leaflets and pictures.There are many different places to find easy-read information on the internet. We think they should be collected and checked. We also think that doctors and chemists need to spend more time with people to explain about medicines.AbstractBackground: Previous research has found that people with learning disabilities are not given prescription information that is tailored to their needs. We wanted to find out people's information requirements.Materials and Methods: A questionnaire was co-produced by the authors and consultants with learning disabilities. It asked what information people received from their GP and pharmacist about medications. The questionnaire was circulated at a self-advocacy conference in the North of England. Fifty-eight self-advocates completed the questionnaire.Results: Information from GPs and pharmacists was mainly instructional, referring to when and how to take the medicine and dosage. Most respondents struggled to read the leaflets and remember verbal information. Many wanted the information in easy-read format, and some wanted pictures or diagrams as well. A key theme was that health professionals often talked only to carers or support workers rather than involving the patient directly, and some respondents disclosed that they were not informed about side effects or alternative medications.Conclusions: Health professionals should take time to discuss health issues and medication with the individual rather than only with carers. This could be facilitated by providing information in an accessible format.

KW - consent to treatment

KW - Health information

KW - pharmaceutical interventions

KW - INTELLECTUAL DISABILITIES

KW - HEALTH-CARE

KW - COMMUNICATION

KW - CONSULTATIONS

KW - PHYSICIANS

KW - MIDDLE

U2 - 10.1111/bld.12196

DO - 10.1111/bld.12196

M3 - Journal article

VL - 45

SP - 217

EP - 225

JO - British Journal of Learning Disabilities

JF - British Journal of Learning Disabilities

SN - 1354-4187

IS - 3

ER -