Rights statement: This is the peer reviewed version of the following article: Lord AJ, Field S, Smith IC. The experiences of staff who support people with intellectual disability on issues about death, dying and bereavement: A metasynthesis. J Appl Res Intellect Disabil. 2017;30:1007–1021. https://doi.org/10.1111/jar.12376 which has been published in final form at http://onlinelibrary.wiley.com/doi/10.1111/jar.12376/abstract This article may be used for non-commercial purposes in accordance With Wiley Terms and Conditions for self-archiving.
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Final published version
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Research output: Contribution to Journal/Magazine › Journal article › peer-review
}
TY - JOUR
T1 - The Experiences of Staff Who Support People with Intellectual Disability on Issues About Death, Dying, and Bereavement
T2 - a metasynthesis
AU - Lord, Ailsa
AU - Field, Stephen John
AU - Smith, Ian Craig
N1 - This is the peer reviewed version of the following article: Lord AJ, Field S, Smith IC. The experiences of staff who support people with intellectual disability on issues about death, dying and bereavement: A metasynthesis. J Appl Res Intellect Disabil. 2017;30:1007–1021. https://doi.org/10.1111/jar.12376 which has been published in final form at http://onlinelibrary.wiley.com/doi/10.1111/jar.12376/abstract This article may be used for non-commercial purposes in accordance With Wiley Terms and Conditions for self-archiving.
PY - 2017/11
Y1 - 2017/11
N2 - Background: Historically, people with intellectual disabilities have tended to be excludedfrom knowing about death, dying, and bereavement. Staff in intellectual disability servicescan play a valuable role in improving understanding of these issues in those they support.This qualitative metasynthesis aimed to understand the experiences of staff supporting adultswith intellectual disabilities with issues of death, dying, and bereavement. Method: Thirteen papers were identified following a systematic review of six databases. Results: Three themes were developed following a lines-of-argument synthesis: (1) Talking about death is hard: Negotiating the uncertainty in death, dying, and bereavement; (2) The commitment topromoting a “good death”; and (3) The grief behind the professional mask. “A cautious silence: The taboo of death,” was an overarching theme. Conclusions: A more open culture around issues of death, dying, and bereavement in intellectual disability settings is essential and could be promoted through staff training and support.
AB - Background: Historically, people with intellectual disabilities have tended to be excludedfrom knowing about death, dying, and bereavement. Staff in intellectual disability servicescan play a valuable role in improving understanding of these issues in those they support.This qualitative metasynthesis aimed to understand the experiences of staff supporting adultswith intellectual disabilities with issues of death, dying, and bereavement. Method: Thirteen papers were identified following a systematic review of six databases. Results: Three themes were developed following a lines-of-argument synthesis: (1) Talking about death is hard: Negotiating the uncertainty in death, dying, and bereavement; (2) The commitment topromoting a “good death”; and (3) The grief behind the professional mask. “A cautious silence: The taboo of death,” was an overarching theme. Conclusions: A more open culture around issues of death, dying, and bereavement in intellectual disability settings is essential and could be promoted through staff training and support.
U2 - 10.1111/jar.12376
DO - 10.1111/jar.12376
M3 - Journal article
VL - 30
SP - 1007
EP - 1021
JO - Journal of Applied Research in Intellectual Disabilities
JF - Journal of Applied Research in Intellectual Disabilities
SN - 1360-2322
IS - 6
ER -