The practical problems associated with living with oculocutaneous albinism in Africa are numerous. People with albinism are vulnerable to sunburn, at increased risk of skin cancer, and often excluded from education and employment because of poor eyesight. Moreover they face stigmatization due to a lack of information about albinism and the resulting misconceptions about this genetic condition. Poverty, a lack of healthcare and social security place the burden of care onto the family. Albinism has long been studied ‘from the outside’, further excluding people with albinism and the individuals and groups that support them. This Knowledge Exchange Fellowship will fund a workshop in Cameroon involving the various stakeholders (NGOs, people with albinism, researchers) from the beginning, from the planning and design of the workshop, to the development of a more inclusive research-led network.