Research output: Contribution to Journal/Magazine › Journal article › peer-review
Research output: Contribution to Journal/Magazine › Journal article › peer-review
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TY - JOUR
T1 - A break from caring for a disabled child
T2 - parent perceptions of the uses and benefits of short break provision in England
AU - Collins, Michelle
AU - Langer, Susanne
AU - Welch, Vicki
AU - Wells, Emma
AU - Hatton, Chris
AU - Robertson, Janet
AU - Emerson, Eric
PY - 2014/7
Y1 - 2014/7
N2 - ‘Short breaks’ is a term used in England to refer to a range of services for disabled children, many of which used to be known as respite. Recent legislation in England requires local authorities to provide family carers of disabled children with breaks so that they can continue to care. This qualitative study explored the perceptions of twenty-five parents whose children accessed short breaks. We performed a thematic analysis of data obtained from interviews and a narrative tool. The analysis revealed that short breaks were crucial in helping parents with disabled children continue to provide care and they were used in other ways that addressed the wider consequences of caring. These other uses included reducing social isolation and caring for non-disabled siblings and were facilitated by novel forms of short break provision. Some parents reported that their needs for short breaks had not been met and this appeared to arise from contested interpretations of what ‘breaks from caring’ means. Our findings suggest social work assessments should not just identify that parents need a break from caring, but should also include an understanding of how parents make sense of their need for a break.
AB - ‘Short breaks’ is a term used in England to refer to a range of services for disabled children, many of which used to be known as respite. Recent legislation in England requires local authorities to provide family carers of disabled children with breaks so that they can continue to care. This qualitative study explored the perceptions of twenty-five parents whose children accessed short breaks. We performed a thematic analysis of data obtained from interviews and a narrative tool. The analysis revealed that short breaks were crucial in helping parents with disabled children continue to provide care and they were used in other ways that addressed the wider consequences of caring. These other uses included reducing social isolation and caring for non-disabled siblings and were facilitated by novel forms of short break provision. Some parents reported that their needs for short breaks had not been met and this appeared to arise from contested interpretations of what ‘breaks from caring’ means. Our findings suggest social work assessments should not just identify that parents need a break from caring, but should also include an understanding of how parents make sense of their need for a break.
KW - Break from caring
KW - contested interpretations
KW - parent perceptions
KW - short breaks
KW - social work assessments
KW - thematic analysis
U2 - 10.1093/bjsw/bcs209
DO - 10.1093/bjsw/bcs209
M3 - Journal article
VL - 44
SP - 1180
EP - 1196
JO - British Journal of Social Work
JF - British Journal of Social Work
SN - 0045-3102
IS - 5
ER -