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“A switch went off in my whole body”: Lived experiences of fatigue and post-exertional malaise in long Covid

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“A switch went off in my whole body”: Lived experiences of fatigue and post-exertional malaise in long Covid. / Sas, Corina; Lotankar, Y; Adam, R et al.
CHI EA '23: Extended Abstracts of the 2023 CHI Conference on Human Factors in Computing Systems. ed. / Albrecht Schmidt; Kaisa Väänänen; Tesh Goyal; Per Ola Kristensson; Anicia Peters. New York: ACM, 2023. p. 1-7 15.

Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Conference contribution/Paper › peer-review

Harvard

Sas, C, Lotankar, Y, Adam, R, Bradbury, K, Cooper, J, Hill, D, Martinez, V & Powell, D 2023, “A switch went off in my whole body”: Lived experiences of fatigue and post-exertional malaise in long Covid. in A Schmidt, K Väänänen, T Goyal, PO Kristensson & A Peters (eds), CHI EA '23: Extended Abstracts of the 2023 CHI Conference on Human Factors in Computing Systems., 15, ACM, New York, pp. 1-7. https://doi.org/10.1145/3544549.3585846

APA

Sas, C., Lotankar, Y., Adam, R., Bradbury, K., Cooper, J., Hill, D., Martinez, V., & Powell, D. (2023). “A switch went off in my whole body”: Lived experiences of fatigue and post-exertional malaise in long Covid. In A. Schmidt, K. Väänänen, T. Goyal, P. O. Kristensson, & A. Peters (Eds.), CHI EA '23: Extended Abstracts of the 2023 CHI Conference on Human Factors in Computing Systems (pp. 1-7). Article 15 ACM. https://doi.org/10.1145/3544549.3585846

Vancouver

Sas C, Lotankar Y, Adam R, Bradbury K, Cooper J, Hill D et al. “A switch went off in my whole body”: Lived experiences of fatigue and post-exertional malaise in long Covid. In Schmidt A, Väänänen K, Goyal T, Kristensson PO, Peters A, editors, CHI EA '23: Extended Abstracts of the 2023 CHI Conference on Human Factors in Computing Systems. New York: ACM. 2023. p. 1-7. 15 doi: 10.1145/3544549.3585846

Author

Sas, Corina ; Lotankar, Y ; Adam, R et al. / “A switch went off in my whole body” : Lived experiences of fatigue and post-exertional malaise in long Covid. CHI EA '23: Extended Abstracts of the 2023 CHI Conference on Human Factors in Computing Systems. editor / Albrecht Schmidt ; Kaisa Väänänen ; Tesh Goyal ; Per Ola Kristensson ; Anicia Peters. New York : ACM, 2023. pp. 1-7

Bibtex

@inproceedings{1f5a2454d85b42f4a0447f23b981e932,
title = "“A switch went off in my whole body”: Lived experiences of fatigue and post-exertional malaise in long Covid",
abstract = "The growing HCI agenda on health has focused on different chronic conditions but less so on Long Covid, despite its severe impact on the quality of life. We report findings from 2 workshops with 13 people living with Long Covid, indicating the challenges of making sense of their physical, cognitive, and emotional symptoms, andof monitoring the triggers of post-exertional malaise. While most participants engage in pacing activities for the self-management of fatigue, only a few are aware of the importance of planning all their daily activities and routines in order to avoid post-exertional malaise. We conclude with design implications to support lightweighttracking and sensemaking of fatigue symptoms, novel data analytics for monitoring the triggers of post-exertional malaise and the worsening of symptoms, and support for self-management in order to prevent post-exertional malaise.",
author = "Corina Sas and Y Lotankar and R Adam and K Bradbury and J Cooper and D Hill and V Martinez and D Powell",
year = "2023",
month = apr,
day = "19",
doi = "10.1145/3544549.3585846",
language = "English",
pages = "1--7",
editor = "Schmidt, {Albrecht } and V{\"a}{\"a}n{\"a}nen, {Kaisa } and Tesh Goyal and Kristensson, {Per Ola} and Anicia Peters",
booktitle = "CHI EA '23: Extended Abstracts of the 2023 CHI Conference on Human Factors in Computing Systems",
publisher = "ACM",

}

RIS

TY - GEN

T1 - “A switch went off in my whole body”

T2 - Lived experiences of fatigue and post-exertional malaise in long Covid

AU - Sas, Corina

AU - Lotankar, Y

AU - Adam, R

AU - Bradbury, K

AU - Cooper, J

AU - Hill, D

AU - Martinez, V

AU - Powell, D

PY - 2023/4/19

Y1 - 2023/4/19

N2 - The growing HCI agenda on health has focused on different chronic conditions but less so on Long Covid, despite its severe impact on the quality of life. We report findings from 2 workshops with 13 people living with Long Covid, indicating the challenges of making sense of their physical, cognitive, and emotional symptoms, andof monitoring the triggers of post-exertional malaise. While most participants engage in pacing activities for the self-management of fatigue, only a few are aware of the importance of planning all their daily activities and routines in order to avoid post-exertional malaise. We conclude with design implications to support lightweighttracking and sensemaking of fatigue symptoms, novel data analytics for monitoring the triggers of post-exertional malaise and the worsening of symptoms, and support for self-management in order to prevent post-exertional malaise.

AB - The growing HCI agenda on health has focused on different chronic conditions but less so on Long Covid, despite its severe impact on the quality of life. We report findings from 2 workshops with 13 people living with Long Covid, indicating the challenges of making sense of their physical, cognitive, and emotional symptoms, andof monitoring the triggers of post-exertional malaise. While most participants engage in pacing activities for the self-management of fatigue, only a few are aware of the importance of planning all their daily activities and routines in order to avoid post-exertional malaise. We conclude with design implications to support lightweighttracking and sensemaking of fatigue symptoms, novel data analytics for monitoring the triggers of post-exertional malaise and the worsening of symptoms, and support for self-management in order to prevent post-exertional malaise.

U2 - 10.1145/3544549.3585846

DO - 10.1145/3544549.3585846

M3 - Conference contribution/Paper

SP - 1

EP - 7

BT - CHI EA '23: Extended Abstracts of the 2023 CHI Conference on Human Factors in Computing Systems

A2 - Schmidt, Albrecht

A2 - Väänänen, Kaisa

A2 - Goyal, Tesh

A2 - Kristensson, Per Ola

A2 - Peters, Anicia

PB - ACM

CY - New York

ER -