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Accessing targeted therapies for cancer: self and collective advocacy alongside and beyond mainstream cancer charities

Research output: Contribution to Journal/Magazine › Journal article › peer-review

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Accessing targeted therapies for cancer: self and collective advocacy alongside and beyond mainstream cancer charities. / Kerr, Anne; Chekar, Choon Key; Swallow, Julia et al.
In: New Genetics and Society, Vol. 40, No. 1, 31.01.2021, p. 112-131.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Harvard

Kerr, A, Chekar, CK, Swallow, J, Ross, E & Cunningham-Burley, S 2021, 'Accessing targeted therapies for cancer: self and collective advocacy alongside and beyond mainstream cancer charities', New Genetics and Society, vol. 40, no. 1, pp. 112-131. https://doi.org/10.1080/14636778.2020.1868986

APA

Kerr, A., Chekar, C. K., Swallow, J., Ross, E., & Cunningham-Burley, S. (2021). Accessing targeted therapies for cancer: self and collective advocacy alongside and beyond mainstream cancer charities. New Genetics and Society, 40(1), 112-131. https://doi.org/10.1080/14636778.2020.1868986

Vancouver

Kerr A, Chekar CK, Swallow J, Ross E, Cunningham-Burley S. Accessing targeted therapies for cancer: self and collective advocacy alongside and beyond mainstream cancer charities. New Genetics and Society. 2021 Jan 31;40(1):112-131. Epub 2021 Jan 17. doi: 10.1080/14636778.2020.1868986

Author

Kerr, Anne ; Chekar, Choon Key ; Swallow, Julia et al. / Accessing targeted therapies for cancer : self and collective advocacy alongside and beyond mainstream cancer charities. In: New Genetics and Society. 2021 ; Vol. 40, No. 1. pp. 112-131.

Bibtex

@article{1a95be98a238402fb4b37ae073c31d20,
title = "Accessing targeted therapies for cancer: self and collective advocacy alongside and beyond mainstream cancer charities",
abstract = "As precision oncology has evolved, patients and their families have become more involved in efforts to access these treatments via fundraising and campaigning that take place outside of the larger cancer charities. In this paper, we explore the solidarities, networks, and emotional work of the UK-based access advocates, drawing on the stories of nine advocates, which included interviews and content analyses of their social media posts and coverage of their case in news, commentary, and fundraising websites. We consider the emotional and knowledge work of building networks that spanned consumerist and activist agendas, forged individual and collective goals, and orientations toward the public, private, and third sectors as part of securing support and access. Through these various practices, the actors we have studied cultivated personal advantage and solidarities with other patients and advocates, and in so doing engaged in self and collective advocacy alongside and beyond mainstream cancer charities.",
keywords = "precision oncology, access, patients, solidarities, advocacy",
author = "Anne Kerr and Chekar, {Choon Key} and Julia Swallow and Emily Ross and Sarah Cunningham-Burley",
year = "2021",
month = jan,
day = "31",
doi = "10.1080/14636778.2020.1868986",
language = "English",
volume = "40",
pages = "112--131",
journal = "New Genetics and Society",
issn = "1463-6778",
publisher = "Routledge",
number = "1",

}

RIS

TY - JOUR

T1 - Accessing targeted therapies for cancer

T2 - self and collective advocacy alongside and beyond mainstream cancer charities

AU - Kerr, Anne

AU - Chekar, Choon Key

AU - Swallow, Julia

AU - Ross, Emily

AU - Cunningham-Burley, Sarah

PY - 2021/1/31

Y1 - 2021/1/31

N2 - As precision oncology has evolved, patients and their families have become more involved in efforts to access these treatments via fundraising and campaigning that take place outside of the larger cancer charities. In this paper, we explore the solidarities, networks, and emotional work of the UK-based access advocates, drawing on the stories of nine advocates, which included interviews and content analyses of their social media posts and coverage of their case in news, commentary, and fundraising websites. We consider the emotional and knowledge work of building networks that spanned consumerist and activist agendas, forged individual and collective goals, and orientations toward the public, private, and third sectors as part of securing support and access. Through these various practices, the actors we have studied cultivated personal advantage and solidarities with other patients and advocates, and in so doing engaged in self and collective advocacy alongside and beyond mainstream cancer charities.

AB - As precision oncology has evolved, patients and their families have become more involved in efforts to access these treatments via fundraising and campaigning that take place outside of the larger cancer charities. In this paper, we explore the solidarities, networks, and emotional work of the UK-based access advocates, drawing on the stories of nine advocates, which included interviews and content analyses of their social media posts and coverage of their case in news, commentary, and fundraising websites. We consider the emotional and knowledge work of building networks that spanned consumerist and activist agendas, forged individual and collective goals, and orientations toward the public, private, and third sectors as part of securing support and access. Through these various practices, the actors we have studied cultivated personal advantage and solidarities with other patients and advocates, and in so doing engaged in self and collective advocacy alongside and beyond mainstream cancer charities.

KW - precision oncology

KW - access

KW - patients

KW - solidarities

KW - advocacy

U2 - 10.1080/14636778.2020.1868986

DO - 10.1080/14636778.2020.1868986

M3 - Journal article

VL - 40

SP - 112

EP - 131

JO - New Genetics and Society

JF - New Genetics and Society

SN - 1463-6778

IS - 1

ER -