Home > Research > Publications & Outputs > Burden on family carers and care-related financ...

Research

Associated organisational units

Links

Text available via DOI:

View graph of relations

Burden on family carers and care-related financial strain at the end of life: A cross-national population-based study

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Published

Standard

Burden on family carers and care-related financial strain at the end of life: A cross-national population-based study. / Pivodic, Lara; Van Den Block, Lieve; Pardon, Koen et al.
In: European Journal of Public Health, Vol. 24, No. 5, 01.10.2014, p. 819-826.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Harvard

Pivodic, L, Van Den Block, L, Pardon, K, Miccinesi, G, Alonso, TV, Boffin, N, Donker, GA, Cancian, M, López-Maside, A, Onwuteaka-Philipsen, BD, Deliens, L, Zeger, DG, Brearley, S, Augusto, C, Joachim, C, Anneke, F, Richard, H, Higginson Irene, J, Stein, K, Karen, L, Roeline, P, Sophie, P & Payne, S 2014, 'Burden on family carers and care-related financial strain at the end of life: A cross-national population-based study', European Journal of Public Health, vol. 24, no. 5, pp. 819-826. https://doi.org/10.1093/eurpub/cku026

APA

Pivodic, L., Van Den Block, L., Pardon, K., Miccinesi, G., Alonso, T. V., Boffin, N., Donker, G. A., Cancian, M., López-Maside, A., Onwuteaka-Philipsen, B. D., Deliens, L., Zeger, D. G., Brearley, S., Augusto, C., Joachim, C., Anneke, F., Richard, H., Higginson Irene, J., Stein, K., ... Payne, S. (2014). Burden on family carers and care-related financial strain at the end of life: A cross-national population-based study. European Journal of Public Health, 24(5), 819-826. https://doi.org/10.1093/eurpub/cku026

Vancouver

Pivodic L, Van Den Block L, Pardon K, Miccinesi G, Alonso TV, Boffin N et al. Burden on family carers and care-related financial strain at the end of life: A cross-national population-based study. European Journal of Public Health. 2014 Oct 1;24(5):819-826. Epub 2014 Mar 17. doi: 10.1093/eurpub/cku026

Author

Pivodic, Lara ; Van Den Block, Lieve ; Pardon, Koen et al. / Burden on family carers and care-related financial strain at the end of life : A cross-national population-based study. In: European Journal of Public Health. 2014 ; Vol. 24, No. 5. pp. 819-826.

Bibtex

@article{952fcbafeec849d39583fb903c7a3802,
title = "Burden on family carers and care-related financial strain at the end of life: A cross-national population-based study",
abstract = "Background: The rising number of deaths from cancer and other life-limiting illnesses is accompanied by a growing number of family carers who provide long-lasting care, including end-of-life care. This population-based epidemiological study aimed to describe and compare in four European countries the prevalence of and factors associated with physical or emotional overburden and difficulties in covering care-related costs among family carers of people at the end of life. Methods: A cross-national retrospective study was conducted via nationwide representative sentinel networks of general practitioners (GPs). Using a standardized form, GPs in Belgium, The Netherlands, Italy and Spain recorded information on the last 3 months of life of every deceased adult practice patient (1 January 2009-31 December 2010). Sudden deaths were excluded. Results: We studied 4466 deaths. GPs judged family carers of 28% (Belgium), 30% (The Netherlands), 35% (Spain) and 71% (Italy) of patients as physically/emotionally overburdened (P < 0.001). For 8% (Spain), 14% (Belgium), 36% (The Netherlands) and 43% (Italy) patients, GPs reported difficulties in covering care-related costs (P < 0.001). Patients <85 years of age (Belgium, Italy) had higher odds of having physically/emotionally overburdened family carers and financial burden. Death from non-malignant illness (vs. cancer) (Belgium and Italy) and dying at home compared with other locations (The Netherlands and Italy) were associated with higher odds of difficulties in covering care-related costs. Conclusion: In all countries studied, and particularly in Italy, GPs observed a considerable extent of physical/emotional overburden as well as difficulties in covering care-related costs among family carers of people at the end of life. Implications for health- and social care policies are discussed.",
author = "Lara Pivodic and {Van Den Block}, Lieve and Koen Pardon and Guido Miccinesi and Alonso, {Tom{\'a}s Vega} and Nicole Boffin and Donker, {G{\'e} A.} and Maurizio Cancian and Aurora L{\'o}pez-Maside and Onwuteaka-Philipsen, {Bregje D.} and Luc Deliens and Zeger, {De Groote} and Sarah Brearley and Caraceni Augusto and Cohen Joachim and Francke Anneke and Harding Richard and {Higginson Irene}, J. and Kaasa Stein and Linden Karen and Pasman Roeline and Pautex Sophie and Sheila Payne",
year = "2014",
month = oct,
day = "1",
doi = "10.1093/eurpub/cku026",
language = "English",
volume = "24",
pages = "819--826",
journal = "European Journal of Public Health",
issn = "1101-1262",
publisher = "OXFORD UNIV PRESS",
number = "5",

}

RIS

TY - JOUR

T1 - Burden on family carers and care-related financial strain at the end of life

T2 - A cross-national population-based study

AU - Pivodic, Lara

AU - Van Den Block, Lieve

AU - Pardon, Koen

AU - Miccinesi, Guido

AU - Alonso, Tomás Vega

AU - Boffin, Nicole

AU - Donker, Gé A.

AU - Cancian, Maurizio

AU - López-Maside, Aurora

AU - Onwuteaka-Philipsen, Bregje D.

AU - Deliens, Luc

AU - Zeger, De Groote

AU - Brearley, Sarah

AU - Augusto, Caraceni

AU - Joachim, Cohen

AU - Anneke, Francke

AU - Richard, Harding

AU - Higginson Irene, J.

AU - Stein, Kaasa

AU - Karen, Linden

AU - Roeline, Pasman

AU - Sophie, Pautex

AU - Payne, Sheila

PY - 2014/10/1

Y1 - 2014/10/1

N2 - Background: The rising number of deaths from cancer and other life-limiting illnesses is accompanied by a growing number of family carers who provide long-lasting care, including end-of-life care. This population-based epidemiological study aimed to describe and compare in four European countries the prevalence of and factors associated with physical or emotional overburden and difficulties in covering care-related costs among family carers of people at the end of life. Methods: A cross-national retrospective study was conducted via nationwide representative sentinel networks of general practitioners (GPs). Using a standardized form, GPs in Belgium, The Netherlands, Italy and Spain recorded information on the last 3 months of life of every deceased adult practice patient (1 January 2009-31 December 2010). Sudden deaths were excluded. Results: We studied 4466 deaths. GPs judged family carers of 28% (Belgium), 30% (The Netherlands), 35% (Spain) and 71% (Italy) of patients as physically/emotionally overburdened (P < 0.001). For 8% (Spain), 14% (Belgium), 36% (The Netherlands) and 43% (Italy) patients, GPs reported difficulties in covering care-related costs (P < 0.001). Patients <85 years of age (Belgium, Italy) had higher odds of having physically/emotionally overburdened family carers and financial burden. Death from non-malignant illness (vs. cancer) (Belgium and Italy) and dying at home compared with other locations (The Netherlands and Italy) were associated with higher odds of difficulties in covering care-related costs. Conclusion: In all countries studied, and particularly in Italy, GPs observed a considerable extent of physical/emotional overburden as well as difficulties in covering care-related costs among family carers of people at the end of life. Implications for health- and social care policies are discussed.

AB - Background: The rising number of deaths from cancer and other life-limiting illnesses is accompanied by a growing number of family carers who provide long-lasting care, including end-of-life care. This population-based epidemiological study aimed to describe and compare in four European countries the prevalence of and factors associated with physical or emotional overburden and difficulties in covering care-related costs among family carers of people at the end of life. Methods: A cross-national retrospective study was conducted via nationwide representative sentinel networks of general practitioners (GPs). Using a standardized form, GPs in Belgium, The Netherlands, Italy and Spain recorded information on the last 3 months of life of every deceased adult practice patient (1 January 2009-31 December 2010). Sudden deaths were excluded. Results: We studied 4466 deaths. GPs judged family carers of 28% (Belgium), 30% (The Netherlands), 35% (Spain) and 71% (Italy) of patients as physically/emotionally overburdened (P < 0.001). For 8% (Spain), 14% (Belgium), 36% (The Netherlands) and 43% (Italy) patients, GPs reported difficulties in covering care-related costs (P < 0.001). Patients <85 years of age (Belgium, Italy) had higher odds of having physically/emotionally overburdened family carers and financial burden. Death from non-malignant illness (vs. cancer) (Belgium and Italy) and dying at home compared with other locations (The Netherlands and Italy) were associated with higher odds of difficulties in covering care-related costs. Conclusion: In all countries studied, and particularly in Italy, GPs observed a considerable extent of physical/emotional overburden as well as difficulties in covering care-related costs among family carers of people at the end of life. Implications for health- and social care policies are discussed.

U2 - 10.1093/eurpub/cku026

DO - 10.1093/eurpub/cku026

M3 - Journal article

C2 - 24642602

AN - SCOPUS:84928468771

VL - 24

SP - 819

EP - 826

JO - European Journal of Public Health

JF - European Journal of Public Health

SN - 1101-1262

IS - 5

ER -