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Communicating psychosocial well-being in motor neurone disease to staff: results from a World Café approach

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  • C. Giebel
  • G. Medley
  • S. Smith
  • M. Thornton
  • M. Furlong
  • M. Ennis
  • C. Young
<mark>Journal publication date</mark>15/09/2019
<mark>Journal</mark>Quality of Life Research
Issue number9
Number of pages6
Pages (from-to)2579-2584
Publication StatusPublished
Early online date30/04/19
<mark>Original language</mark>English


Objective: Little to no research has evaluated staff training and its effects on the well-being of people with MND. The aim of this study was to assess how educating multi-disciplinary staff about psychosocial well-being in MND can change approaches to working with people with MND.

Methods: Multi-disciplinary staff attended a half-day workshop to receive training on psychosocial well-being in people with MND and to discuss QoL issues using the World Café approach. Prior to the workshop and 2 weeks post-workshop, staff completed a questionnaire on their knowledge of this topic. A selection of staff completed a follow-up interview 2 months later to assess changes in their practice.

Results: 19 staff, including dieticians and occupational therapists, attended the workshop and completed the pre-workshop questionnaire. Ten filled in the post-workshop questionnaire and were interviewed. Clinicians identified six strategies/barriers of improving communication amongst MND staff, suggesting the need for better collaborative working, raising awareness of psychological and emotional issues in MND and barriers to service access due to health inequalities, amongst others.

Conclusions: This workshop raised staff awareness on communicating QoL in MND. Future work needs to look into implementing this training in clinical practice and evaluate their impact on QoL in MND. © 2019, The Author(s).