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Consensus on treatment for residents in long-term care facilities: Perspectives from relatives and care staff in the PACE cross-sectional study in 6 European countries

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Consensus on treatment for residents in long-term care facilities: Perspectives from relatives and care staff in the PACE cross-sectional study in 6 European countries. / Ten Koppel, M.; Pasman, H. R.W.; Van Der Steen, J. T. et al.
In: BMC Palliative Care, Vol. 18, No. 1, 73, 29.08.2019.

Research output: Contribution to Journal/MagazineJournal articlepeer-review

Harvard

Ten Koppel, M, Pasman, HRW, Van Der Steen, JT, Van Hout, HPJ, Kylänen, M, Van Den Block, L, Smets, T, Deliens, L, Gambassi, G, Froggatt, K, Szczerbińska, K, Onwuteaka-Philipsen, BD, De Groote, Z, Pivodic, L, Mammarella, F, Mercuri, M, Oosterveld-Vlug, M, Pac, A, Rossi, P, Segat, I, Sowerby, E, Stodolska, A, Wichmann, A, Adang, E, Andreasen, P, Finne-Soveri, H, Payne, S, Moore, DC, Kijowska, V, Van Den Noortgate, N & Vernooij-Dassen, M 2019, 'Consensus on treatment for residents in long-term care facilities: Perspectives from relatives and care staff in the PACE cross-sectional study in 6 European countries', BMC Palliative Care, vol. 18, no. 1, 73. https://doi.org/10.1186/s12904-019-0459-9

APA

Ten Koppel, M., Pasman, H. R. W., Van Der Steen, J. T., Van Hout, H. P. J., Kylänen, M., Van Den Block, L., Smets, T., Deliens, L., Gambassi, G., Froggatt, K., Szczerbińska, K., Onwuteaka-Philipsen, B. D., De Groote, Z., Pivodic, L., Mammarella, F., Mercuri, M., Oosterveld-Vlug, M., Pac, A., Rossi, P., ... Vernooij-Dassen, M. (2019). Consensus on treatment for residents in long-term care facilities: Perspectives from relatives and care staff in the PACE cross-sectional study in 6 European countries. BMC Palliative Care, 18(1), Article 73. https://doi.org/10.1186/s12904-019-0459-9

Vancouver

Ten Koppel M, Pasman HRW, Van Der Steen JT, Van Hout HPJ, Kylänen M, Van Den Block L et al. Consensus on treatment for residents in long-term care facilities: Perspectives from relatives and care staff in the PACE cross-sectional study in 6 European countries. BMC Palliative Care. 2019 Aug 29;18(1):73. doi: 10.1186/s12904-019-0459-9

Author

Ten Koppel, M. ; Pasman, H. R.W. ; Van Der Steen, J. T. et al. / Consensus on treatment for residents in long-term care facilities : Perspectives from relatives and care staff in the PACE cross-sectional study in 6 European countries. In: BMC Palliative Care. 2019 ; Vol. 18, No. 1.

Bibtex

@article{0d3d61dc8a2c49cdb4ad96c5e09af755,
title = "Consensus on treatment for residents in long-term care facilities: Perspectives from relatives and care staff in the PACE cross-sectional study in 6 European countries",
abstract = "Background: In long-term care facilities often many care providers are involved, which could make it difficult to reach consensus in care. This may harm the relation between care providers and can complicate care. This study aimed to describe and compare in six European countries the degree of consensus among everyone involved in care decisions, from the perspective of relatives and care staff. Another aim was to assess which factors are associated with reporting that full consensus was reached, from the perspective of care staff and relatives. Methods: In Belgium, England, Finland, Italy, the Netherlands and Poland a random sample of representative long-term care facilities reported all deaths of residents in the previous three months (n = 1707). This study included residents about whom care staff (n = 1284) and relatives (n = 790) indicated in questionnaires the degree of consensus among all involved in the decision or care process. To account for clustering on facility level, Generalized Estimating Equations were conducted to analyse the degree of consensus across countries and factors associated with full consensus. Results: Relatives indicated full consensus in more than half of the residents in all countries (NL 57.9% - EN 68%), except in Finland (40.7%). Care staff reported full consensus in 59.5% of residents in Finland to 86.1% of residents in England. Relatives more likely reported full consensus when: the resident was more comfortable or talked about treatment preferences, a care provider explained what palliative care is, family-physician communication was well perceived, their relation to the resident was other than child (compared to spouse/partner) or if they lived in Poland or Belgium (compared to Finland). Care staff more often indicated full consensus when they rated a higher comfort level of the resident, or if they lived in Italy, the Netherland, Poland or England (compared to Finland). Conclusions: In most countries the frequency of full consensus among all involved in care decisions was relatively high. Across countries care staff indicated full consensus more often and no consensus less often than relatives. Advance care planning, comfort and good communication between relatives and care professionals could play a role in achieving full consensus.",
keywords = "Cross-sectional studies, End-of-life care, Health communication, Nursing homes",
author = "{Ten Koppel}, M. and Pasman, {H. R.W.} and {Van Der Steen}, {J. T.} and {Van Hout}, {H. P.J.} and M. Kyl{\"a}nen and {Van Den Block}, L. and T. Smets and L. Deliens and G. Gambassi and K. Froggatt and K. Szczerbi{\'n}ska and Onwuteaka-Philipsen, {B. D.} and {De Groote}, Zeger and Lara Pivodic and Federica Mammarella and Martina Mercuri and Mariska Oosterveld-Vlug and Agnieszka Pac and Paola Rossi and Ivan Segat and Eleanor Sowerby and Agata Stodolska and Anne Wichmann and Eddy Adang and Paula Andreasen and Harriet Finne-Soveri and Sheila Payne and Moore, {Danni Collingridge} and Violetta Kijowska and {Van Den Noortgate}, Nele and Myrra Vernooij-Dassen",
year = "2019",
month = aug,
day = "29",
doi = "10.1186/s12904-019-0459-9",
language = "English",
volume = "18",
journal = "BMC Palliative Care",
issn = "1472-684X",
publisher = "BIOMED CENTRAL LTD",
number = "1",

}

RIS

TY - JOUR

T1 - Consensus on treatment for residents in long-term care facilities

T2 - Perspectives from relatives and care staff in the PACE cross-sectional study in 6 European countries

AU - Ten Koppel, M.

AU - Pasman, H. R.W.

AU - Van Der Steen, J. T.

AU - Van Hout, H. P.J.

AU - Kylänen, M.

AU - Van Den Block, L.

AU - Smets, T.

AU - Deliens, L.

AU - Gambassi, G.

AU - Froggatt, K.

AU - Szczerbińska, K.

AU - Onwuteaka-Philipsen, B. D.

AU - De Groote, Zeger

AU - Pivodic, Lara

AU - Mammarella, Federica

AU - Mercuri, Martina

AU - Oosterveld-Vlug, Mariska

AU - Pac, Agnieszka

AU - Rossi, Paola

AU - Segat, Ivan

AU - Sowerby, Eleanor

AU - Stodolska, Agata

AU - Wichmann, Anne

AU - Adang, Eddy

AU - Andreasen, Paula

AU - Finne-Soveri, Harriet

AU - Payne, Sheila

AU - Moore, Danni Collingridge

AU - Kijowska, Violetta

AU - Van Den Noortgate, Nele

AU - Vernooij-Dassen, Myrra

PY - 2019/8/29

Y1 - 2019/8/29

N2 - Background: In long-term care facilities often many care providers are involved, which could make it difficult to reach consensus in care. This may harm the relation between care providers and can complicate care. This study aimed to describe and compare in six European countries the degree of consensus among everyone involved in care decisions, from the perspective of relatives and care staff. Another aim was to assess which factors are associated with reporting that full consensus was reached, from the perspective of care staff and relatives. Methods: In Belgium, England, Finland, Italy, the Netherlands and Poland a random sample of representative long-term care facilities reported all deaths of residents in the previous three months (n = 1707). This study included residents about whom care staff (n = 1284) and relatives (n = 790) indicated in questionnaires the degree of consensus among all involved in the decision or care process. To account for clustering on facility level, Generalized Estimating Equations were conducted to analyse the degree of consensus across countries and factors associated with full consensus. Results: Relatives indicated full consensus in more than half of the residents in all countries (NL 57.9% - EN 68%), except in Finland (40.7%). Care staff reported full consensus in 59.5% of residents in Finland to 86.1% of residents in England. Relatives more likely reported full consensus when: the resident was more comfortable or talked about treatment preferences, a care provider explained what palliative care is, family-physician communication was well perceived, their relation to the resident was other than child (compared to spouse/partner) or if they lived in Poland or Belgium (compared to Finland). Care staff more often indicated full consensus when they rated a higher comfort level of the resident, or if they lived in Italy, the Netherland, Poland or England (compared to Finland). Conclusions: In most countries the frequency of full consensus among all involved in care decisions was relatively high. Across countries care staff indicated full consensus more often and no consensus less often than relatives. Advance care planning, comfort and good communication between relatives and care professionals could play a role in achieving full consensus.

AB - Background: In long-term care facilities often many care providers are involved, which could make it difficult to reach consensus in care. This may harm the relation between care providers and can complicate care. This study aimed to describe and compare in six European countries the degree of consensus among everyone involved in care decisions, from the perspective of relatives and care staff. Another aim was to assess which factors are associated with reporting that full consensus was reached, from the perspective of care staff and relatives. Methods: In Belgium, England, Finland, Italy, the Netherlands and Poland a random sample of representative long-term care facilities reported all deaths of residents in the previous three months (n = 1707). This study included residents about whom care staff (n = 1284) and relatives (n = 790) indicated in questionnaires the degree of consensus among all involved in the decision or care process. To account for clustering on facility level, Generalized Estimating Equations were conducted to analyse the degree of consensus across countries and factors associated with full consensus. Results: Relatives indicated full consensus in more than half of the residents in all countries (NL 57.9% - EN 68%), except in Finland (40.7%). Care staff reported full consensus in 59.5% of residents in Finland to 86.1% of residents in England. Relatives more likely reported full consensus when: the resident was more comfortable or talked about treatment preferences, a care provider explained what palliative care is, family-physician communication was well perceived, their relation to the resident was other than child (compared to spouse/partner) or if they lived in Poland or Belgium (compared to Finland). Care staff more often indicated full consensus when they rated a higher comfort level of the resident, or if they lived in Italy, the Netherland, Poland or England (compared to Finland). Conclusions: In most countries the frequency of full consensus among all involved in care decisions was relatively high. Across countries care staff indicated full consensus more often and no consensus less often than relatives. Advance care planning, comfort and good communication between relatives and care professionals could play a role in achieving full consensus.

KW - Cross-sectional studies

KW - End-of-life care

KW - Health communication

KW - Nursing homes

U2 - 10.1186/s12904-019-0459-9

DO - 10.1186/s12904-019-0459-9

M3 - Journal article

C2 - 31464624

AN - SCOPUS:85071633225

VL - 18

JO - BMC Palliative Care

JF - BMC Palliative Care

SN - 1472-684X

IS - 1

M1 - 73

ER -