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Designing and Implementing a Home-Based Couple Management Guide for Couples Where One Partner has Dementia (DemPower): Protocol for a Nonrandomized Feasibility Trial

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Designing and Implementing a Home-Based Couple Management Guide for Couples Where One Partner has Dementia (DemPower) : Protocol for a Nonrandomized Feasibility Trial. / Lasrado, Reena; Bielsten, Therése; Hann, Mark; Davies, Linda; Schumm, James; Reilly, Siobhan; Swarbrick, Caroline; Keady, John; Hellström, Ingrid.

In: JMIR Research Protocols, Vol. 7, No. 8, e171, 10.08.2018.

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Lasrado, Reena ; Bielsten, Therése ; Hann, Mark ; Davies, Linda ; Schumm, James ; Reilly, Siobhan ; Swarbrick, Caroline ; Keady, John ; Hellström, Ingrid. / Designing and Implementing a Home-Based Couple Management Guide for Couples Where One Partner has Dementia (DemPower) : Protocol for a Nonrandomized Feasibility Trial. In: JMIR Research Protocols. 2018 ; Vol. 7, No. 8.

Bibtex

@article{e7dfbe4eaaf041fab55f50ed0737d875,
title = "Designing and Implementing a Home-Based Couple Management Guide for Couples Where One Partner has Dementia (DemPower): Protocol for a Nonrandomized Feasibility Trial",
abstract = "BACKGROUND: The increasing rate of dementia and high health and social care costs call for effective measures to improve public health and enhance the wellbeing of people living with dementia and their relational networks. Most postdiagnostic services focus on the condition and the person with dementia with limited attention to the caring spouse or partner. The key focus of the study is to develop a guide for couples where one partner has a diagnosis of dementia. This couple management guide is delivered in the form of an app, DemPower.OBJECTIVE: This study aims to investigate the feasibility and acceptability of DemPower and to assess the criteria for a full-integrated clinical and economic randomized control trial. DemPower couple management app will be introduced to couples wherein one partner has dementia.METHODS: The study will recruit 25 couples in the United Kingdom and 25 couples in Sweden. Couples will be given 3 months to engage with the app, and the amount of time taken to complete the guide (can be <3 or >3 months) will be reviewed. A set of outcome measures will be obtained at baseline and postintervention stages.RESULTS: The proposed study is at the recruitment phase. The DemPower app is being introduced to couples from consultation groups at a pretrial phase for identifying any bugs and exploring if any navigation challenges exist. The feasibility testing will begin in April 2018.CONCLUSIONS: The study will determine how much support couples need to engage with DemPower and whether or not they make use of it in their everyday lives. If there is support for app use, a future study will assess whether it is superior to {"}usual care.{"}TRIAL REGISTRATION: International Standard Randomized Controlled Trial Number (ISRCTN): 10122979; http://www.isrctn.com/ISRCTN10122979 (Archived by WebCite at http://www.webcitation.org/70rB1iWYI).REGISTERED REPORT IDENTIFIER: RR1-10.2196/9087.",
keywords = "dementia, couple management guide, dementia self-help, dementia intervention",
author = "Reena Lasrado and Ther{\'e}se Bielsten and Mark Hann and Linda Davies and James Schumm and Siobhan Reilly and Caroline Swarbrick and John Keady and Ingrid Hellstr{\"o}m",
note = "{\textcopyright}Reena Lasrado, Ther{\'e}se Bielsten, Mark Hann, Linda Davies, James Schumm, Siobhan Reilly, Caroline Swarbrick, John Keady, Ingrid Hellstr{\"o}m. Originally published in JMIR Research Protocols (http://www.researchprotocols.org), 10.08.2018.",
year = "2018",
month = aug,
day = "10",
doi = "10.2196/resprot.9087",
language = "English",
volume = "7",
journal = "JMIR Research Protocols",
issn = "1929-0748",
publisher = "JMIR Publications Inc.",
number = "8",

}

RIS

TY - JOUR

T1 - Designing and Implementing a Home-Based Couple Management Guide for Couples Where One Partner has Dementia (DemPower)

T2 - Protocol for a Nonrandomized Feasibility Trial

AU - Lasrado, Reena

AU - Bielsten, Therése

AU - Hann, Mark

AU - Davies, Linda

AU - Schumm, James

AU - Reilly, Siobhan

AU - Swarbrick, Caroline

AU - Keady, John

AU - Hellström, Ingrid

N1 - ©Reena Lasrado, Therése Bielsten, Mark Hann, Linda Davies, James Schumm, Siobhan Reilly, Caroline Swarbrick, John Keady, Ingrid Hellström. Originally published in JMIR Research Protocols (http://www.researchprotocols.org), 10.08.2018.

PY - 2018/8/10

Y1 - 2018/8/10

N2 - BACKGROUND: The increasing rate of dementia and high health and social care costs call for effective measures to improve public health and enhance the wellbeing of people living with dementia and their relational networks. Most postdiagnostic services focus on the condition and the person with dementia with limited attention to the caring spouse or partner. The key focus of the study is to develop a guide for couples where one partner has a diagnosis of dementia. This couple management guide is delivered in the form of an app, DemPower.OBJECTIVE: This study aims to investigate the feasibility and acceptability of DemPower and to assess the criteria for a full-integrated clinical and economic randomized control trial. DemPower couple management app will be introduced to couples wherein one partner has dementia.METHODS: The study will recruit 25 couples in the United Kingdom and 25 couples in Sweden. Couples will be given 3 months to engage with the app, and the amount of time taken to complete the guide (can be <3 or >3 months) will be reviewed. A set of outcome measures will be obtained at baseline and postintervention stages.RESULTS: The proposed study is at the recruitment phase. The DemPower app is being introduced to couples from consultation groups at a pretrial phase for identifying any bugs and exploring if any navigation challenges exist. The feasibility testing will begin in April 2018.CONCLUSIONS: The study will determine how much support couples need to engage with DemPower and whether or not they make use of it in their everyday lives. If there is support for app use, a future study will assess whether it is superior to "usual care."TRIAL REGISTRATION: International Standard Randomized Controlled Trial Number (ISRCTN): 10122979; http://www.isrctn.com/ISRCTN10122979 (Archived by WebCite at http://www.webcitation.org/70rB1iWYI).REGISTERED REPORT IDENTIFIER: RR1-10.2196/9087.

AB - BACKGROUND: The increasing rate of dementia and high health and social care costs call for effective measures to improve public health and enhance the wellbeing of people living with dementia and their relational networks. Most postdiagnostic services focus on the condition and the person with dementia with limited attention to the caring spouse or partner. The key focus of the study is to develop a guide for couples where one partner has a diagnosis of dementia. This couple management guide is delivered in the form of an app, DemPower.OBJECTIVE: This study aims to investigate the feasibility and acceptability of DemPower and to assess the criteria for a full-integrated clinical and economic randomized control trial. DemPower couple management app will be introduced to couples wherein one partner has dementia.METHODS: The study will recruit 25 couples in the United Kingdom and 25 couples in Sweden. Couples will be given 3 months to engage with the app, and the amount of time taken to complete the guide (can be <3 or >3 months) will be reviewed. A set of outcome measures will be obtained at baseline and postintervention stages.RESULTS: The proposed study is at the recruitment phase. The DemPower app is being introduced to couples from consultation groups at a pretrial phase for identifying any bugs and exploring if any navigation challenges exist. The feasibility testing will begin in April 2018.CONCLUSIONS: The study will determine how much support couples need to engage with DemPower and whether or not they make use of it in their everyday lives. If there is support for app use, a future study will assess whether it is superior to "usual care."TRIAL REGISTRATION: International Standard Randomized Controlled Trial Number (ISRCTN): 10122979; http://www.isrctn.com/ISRCTN10122979 (Archived by WebCite at http://www.webcitation.org/70rB1iWYI).REGISTERED REPORT IDENTIFIER: RR1-10.2196/9087.

KW - dementia

KW - couple management guide

KW - dementia self-help

KW - dementia intervention

U2 - 10.2196/resprot.9087

DO - 10.2196/resprot.9087

M3 - Journal article

C2 - 30097423

VL - 7

JO - JMIR Research Protocols

JF - JMIR Research Protocols

SN - 1929-0748

IS - 8

M1 - e171

ER -