Research output: Contribution to Journal/Magazine › Journal article › peer-review
Research output: Contribution to Journal/Magazine › Journal article › peer-review
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TY - JOUR
T1 - Development of a disease specific quality of life (QoL) questionnaire module to supplement the EORTC core cancer QoL questionnaire, the QLQ-C30 in patients with pancreatic cancer.
AU - Fitzsimmons, D.
AU - Johnson, C. D.
AU - George, S.
AU - Payne, Sheila
AU - Andrén Sandberg, A.
AU - Bassi, C.
AU - Beger, H. G.
AU - Birk, D.
AU - Büchler, M. W.
AU - Dervenis, C.
AU - Fernandez Cruz, L.
AU - Friess, H.
AU - Grahm, A. L.
AU - Jeekel, J.
AU - Laugier, R.
AU - Meyer, D.
AU - Singer, M. W.
AU - Tihanyi, T.
AU - EORTC Study Group on Quality of Life, The
PY - 1999/6
Y1 - 1999/6
N2 - There is overwhelming consensus that quality of life assessment is urgently required in pancreatic cancer, yet little research has been conducted. We report on the development of a disease specific questionnaire module to supplement the EORTC core cancer module, the QLQ-C30 in patients with pancreatic cancer, using EORTC quality of life study group guidelines for module development. Relevant QoL issues were generated from literature searches and interviews with health professionals and patients with pancreatic cancer. Issues were constructed into items and provisionally translated. The provisional module was pretested in patients in 8 European centres. The resulting module the QLQ-PAN26 includes 26 items related to disease symptoms, treatment side-effects and emotional issues specific to pancreatic cancer. This should ensure that the module will be sensitive to assess the small but important disease and treatment related QoL changes in pancreatic cancer. The use of the QLQ-C30 and QLQ-PAN26 will provide a comprehensive system of QoL assessment in international trials of pancreatic cancer.
AB - There is overwhelming consensus that quality of life assessment is urgently required in pancreatic cancer, yet little research has been conducted. We report on the development of a disease specific questionnaire module to supplement the EORTC core cancer module, the QLQ-C30 in patients with pancreatic cancer, using EORTC quality of life study group guidelines for module development. Relevant QoL issues were generated from literature searches and interviews with health professionals and patients with pancreatic cancer. Issues were constructed into items and provisionally translated. The provisional module was pretested in patients in 8 European centres. The resulting module the QLQ-PAN26 includes 26 items related to disease symptoms, treatment side-effects and emotional issues specific to pancreatic cancer. This should ensure that the module will be sensitive to assess the small but important disease and treatment related QoL changes in pancreatic cancer. The use of the QLQ-C30 and QLQ-PAN26 will provide a comprehensive system of QoL assessment in international trials of pancreatic cancer.
KW - pancreatic neoplasm
KW - quality of life
KW - EORTC QLQ-C30
KW - questionnaire
U2 - 10.1016/S0959-8049(99)00047-7
DO - 10.1016/S0959-8049(99)00047-7
M3 - Journal article
VL - 35
SP - 939
EP - 941
JO - European Journal of Cancer
JF - European Journal of Cancer
SN - 0959-8049
IS - 6
ER -