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Factors Associated with Perception of the Quality of Physicians' End-of-life Communication in Long-Term Care Facilities: PACE Cross-Sectional Study

Research output: Contribution to journalJournal articlepeer-review

  • I. Barańska
  • V. Kijowska
  • Y. Engels
  • H. Finne-Soveri
  • G. Gambassi
  • T. Hammar
  • M. Oosterveld-Vlug
  • N. Van Den Noortgate
  • T. Smets
  • L. Deliens
  • L. Van den Block
  • K. Szczerbińska
  • E. Adang
  • P. Andreasen
  • H. van Hout
  • M. Ten Koppel
  • F. Mammarella
  • M. Mercuri
  • B.D. Onwuteaka-Philipsen
  • L. Pivodic
  • P. Rossi
  • A. Stodolska
  • A. Wichmann
  • J.T. van der Steen
  • M. Vernooij-Dassen
<mark>Journal publication date</mark>1/03/2020
<mark>Journal</mark>Journal of the American Medical Directors Association
Issue number3
Number of pages8
Pages (from-to)439.e1-439.e8
Publication StatusPublished
Early online date11/09/19
<mark>Original language</mark>English


Objective: To examine factors associated with perceived quality of communication with physicians by relatives of dying residents of long-term care facilities (LTCFs). Design: A cross-sectional retrospective study in a representative sample of LTCFs conducted in 2015. In each LTCF, deaths of residents during the 3 months before the researcher's visit were reported. Structured questionnaires were sent to the identified relatives of deceased residents. Settings and participants: A total of 736 relatives of deceased residents in 210 LTCFs (in Belgium, Finland, Italy, the Netherlands, and Poland). Methods: The Family Perception of Physician-Family Communication scale (FPPFC) was used to assess the quality of end-of-life (EOL) communication with physicians as perceived by relatives. We applied multilevel linear regression models to find factors associated with the FPPFC score. Results: The quality of EOL communication with physicians was perceived by relatives as higher when the relative spent more than 14 hours with the resident in the last week of the resident's life (b = 0.205; P = .044), and when the treating physician visited the resident at least 3 times in the last week of the resident's life (b = 0.286; P = .002) or provided the resident with palliative care (b = 0.223; P = .003). Relatives with higher emotional burden perceived the quality of EOL communication with physicians as lower (b = −0.060; P < .001). These results had been adjusted to countries and LTCF types with physicians employed on-site or off-site of the facility. Conclusion: The quality of EOL communication with physicians, as perceived by relatives of dying LTCF residents, is associated with the number of physician visits and amount of time spent by the relative with the resident in the last week of the resident's life, and relatives' emotional burden. Implications: LTCF managers should organize care for dying residents in a way that enables frequent interactions between physicians and relatives, and emotional support to relatives to improve their satisfaction with EOL communication.