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  • PAPER AMENDED - PALL MED - Thomas et al - Relevant Background Worries[3]

    Rights statement: The final, definitive version of this article has been published in the Journal, Palliative Medicine, ? (?), 2018, © SAGE Publications Ltd, 2018 by SAGE Publications Ltd at the Palliative Medicine page: http://journals.sagepub.com/home/PMJ on SAGE Journals Online: http://journals.sagepub.com/

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Family carers’ experiences of coping 
with the deaths of adults in home settings: A narrative analysis of carers’ relevant background worries

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Family carers’ experiences of coping 
with the deaths of adults in home settings : A narrative analysis of carers’ relevant background worries. / Thomas, Carol Jane; Turner, Mary; Payne, Sheila Alison; Milligan, Christine; Brearley, Sarah Grace; Seamark, David; Wang, Xu; Blake, Susan.

In: Palliative Medicine, Vol. 32, No. 5, 01.05.2018, p. 950-959.

Research output: Contribution to journalJournal articlepeer-review

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@article{3c33ecae4d6e4721b5b158cfab29db95,
title = "Family carers{\textquoteright} experiences of coping 
with the deaths of adults in home settings: A narrative analysis of carers{\textquoteright} relevant background worries",
abstract = "Background:Internationally, evidence on the support needs of family carers who look after a terminally ill adult in home settings is incomplete.Aim:To illustrate the relevance of {\textquoteleft}relevant background worries{\textquoteright} in family carers{\textquoteright} accounts of caring at home for a dying adult.Design:A qualitative cross-sectional observational study was conducted in England, United Kingdom, in 2011–2013 on the experiences of adult family carers (n = 59) of older dying adults (aged 50+ years) with malignant and/or non-malignant conditions. Interviews occurred post-bereavement. This article reports on a subset of participants{\textquoteright} interview transcripts (n = 30) where narrative analysis was undertaken.Setting/participants:Carers were interviewed in their home setting, having been purposively recruited via general practitioner practices in two study sites in England. The subset of participants (n = 30) was purposively selected from the parent sample with reference to carers{\textquoteright} age, relationship to the patient, family circumstances and study sites.Results:Evidence is provided on the importance of what we conceptualise as carers{\textquoteright} {\textquoteleft}relevant background worries{\textquoteright}; these varied in nature, significance and impact. Four case studies are presented where these worries constituted psychosocial factors that impacted on caregivers{\textquoteright} actions and emotional well-being. Two themes are discussed: (1) whether relevant background worries are important enough to be identified and responded to and (2) how such worries could be picked up and managed by professionals.Conclusion:It is argued that the quality of clinical practice could be improved if specialist palliative care teams in community contexts both identified and responded to significant support needs associated with family carers{\textquoteright} relevant background worries.",
keywords = "Palliative care, end-of-life care, family caregiving, narrative methods, narrative analysis, home deaths",
author = "Thomas, {Carol Jane} and Mary Turner and Payne, {Sheila Alison} and Christine Milligan and Brearley, {Sarah Grace} and David Seamark and Xu Wang and Susan Blake",
note = "The final, definitive version of this article has been published in the Journal, Palliative Medicine, 32 (5), 2018, {\textcopyright} SAGE Publications Ltd, 2018 by SAGE Publications Ltd at the Palliative Medicine page: http://journals.sagepub.com/home/PMJ on SAGE Journals Online: http://journals.sagepub.com/ ",
year = "2018",
month = may,
day = "1",
doi = "10.1177/0269216318757134",
language = "English",
volume = "32",
pages = "950--959",
journal = "Palliative Medicine",
issn = "0269-2163",
publisher = "SAGE Publications Ltd",
number = "5",

}

RIS

TY - JOUR

T1 - Family carers’ experiences of coping 
with the deaths of adults in home settings

T2 - A narrative analysis of carers’ relevant background worries

AU - Thomas, Carol Jane

AU - Turner, Mary

AU - Payne, Sheila Alison

AU - Milligan, Christine

AU - Brearley, Sarah Grace

AU - Seamark, David

AU - Wang, Xu

AU - Blake, Susan

N1 - The final, definitive version of this article has been published in the Journal, Palliative Medicine, 32 (5), 2018, © SAGE Publications Ltd, 2018 by SAGE Publications Ltd at the Palliative Medicine page: http://journals.sagepub.com/home/PMJ on SAGE Journals Online: http://journals.sagepub.com/

PY - 2018/5/1

Y1 - 2018/5/1

N2 - Background:Internationally, evidence on the support needs of family carers who look after a terminally ill adult in home settings is incomplete.Aim:To illustrate the relevance of ‘relevant background worries’ in family carers’ accounts of caring at home for a dying adult.Design:A qualitative cross-sectional observational study was conducted in England, United Kingdom, in 2011–2013 on the experiences of adult family carers (n = 59) of older dying adults (aged 50+ years) with malignant and/or non-malignant conditions. Interviews occurred post-bereavement. This article reports on a subset of participants’ interview transcripts (n = 30) where narrative analysis was undertaken.Setting/participants:Carers were interviewed in their home setting, having been purposively recruited via general practitioner practices in two study sites in England. The subset of participants (n = 30) was purposively selected from the parent sample with reference to carers’ age, relationship to the patient, family circumstances and study sites.Results:Evidence is provided on the importance of what we conceptualise as carers’ ‘relevant background worries’; these varied in nature, significance and impact. Four case studies are presented where these worries constituted psychosocial factors that impacted on caregivers’ actions and emotional well-being. Two themes are discussed: (1) whether relevant background worries are important enough to be identified and responded to and (2) how such worries could be picked up and managed by professionals.Conclusion:It is argued that the quality of clinical practice could be improved if specialist palliative care teams in community contexts both identified and responded to significant support needs associated with family carers’ relevant background worries.

AB - Background:Internationally, evidence on the support needs of family carers who look after a terminally ill adult in home settings is incomplete.Aim:To illustrate the relevance of ‘relevant background worries’ in family carers’ accounts of caring at home for a dying adult.Design:A qualitative cross-sectional observational study was conducted in England, United Kingdom, in 2011–2013 on the experiences of adult family carers (n = 59) of older dying adults (aged 50+ years) with malignant and/or non-malignant conditions. Interviews occurred post-bereavement. This article reports on a subset of participants’ interview transcripts (n = 30) where narrative analysis was undertaken.Setting/participants:Carers were interviewed in their home setting, having been purposively recruited via general practitioner practices in two study sites in England. The subset of participants (n = 30) was purposively selected from the parent sample with reference to carers’ age, relationship to the patient, family circumstances and study sites.Results:Evidence is provided on the importance of what we conceptualise as carers’ ‘relevant background worries’; these varied in nature, significance and impact. Four case studies are presented where these worries constituted psychosocial factors that impacted on caregivers’ actions and emotional well-being. Two themes are discussed: (1) whether relevant background worries are important enough to be identified and responded to and (2) how such worries could be picked up and managed by professionals.Conclusion:It is argued that the quality of clinical practice could be improved if specialist palliative care teams in community contexts both identified and responded to significant support needs associated with family carers’ relevant background worries.

KW - Palliative care

KW - end-of-life care

KW - family caregiving

KW - narrative methods

KW - narrative analysis

KW - home deaths

U2 - 10.1177/0269216318757134

DO - 10.1177/0269216318757134

M3 - Journal article

VL - 32

SP - 950

EP - 959

JO - Palliative Medicine

JF - Palliative Medicine

SN - 0269-2163

IS - 5

ER -