Final published version
Licence: CC BY: Creative Commons Attribution 4.0 International License
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Genomic research and the cancer clinic : uncertainty and expectations in professional accounts. / Kerr, Anne; Swallow, Julia; Chekar, Choon Key et al.
In: New Genetics and Society, Vol. 38, No. 2, 30.04.2019, p. 222-239.Research output: Contribution to Journal/Magazine › Journal article › peer-review
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TY - JOUR
T1 - Genomic research and the cancer clinic
T2 - uncertainty and expectations in professional accounts
AU - Kerr, Anne
AU - Swallow, Julia
AU - Chekar, Choon Key
AU - Cunningham-Burley, Sarah
PY - 2019/4/30
Y1 - 2019/4/30
N2 - This paper explores clinicians' and scientists' accounts of genomic research in cancer care and the complexities and challenges involved with delivering this work. Contributing to the sociology of (low) expectations, we draw on sociological studies of uncertainty in medicine to explore their accounts of working with uncertainty as part of the management of patient and institutional expectations. We consider their appeals to the importance of modest inquiry and framing of the uncertainties of genomic medicine as normal and at times welcome as they sought to configure professional autonomy and jurisdictions and cultivate an experimental ethos amongst their patients. We argue that these types of uncertainty work [Star, S. L. 1985. "Scientific Work and Uncertainty." Social Studies of Science 15 (3): 391-427] are a key feature of managing expectations at the intersections of genomic research and clinical care.
AB - This paper explores clinicians' and scientists' accounts of genomic research in cancer care and the complexities and challenges involved with delivering this work. Contributing to the sociology of (low) expectations, we draw on sociological studies of uncertainty in medicine to explore their accounts of working with uncertainty as part of the management of patient and institutional expectations. We consider their appeals to the importance of modest inquiry and framing of the uncertainties of genomic medicine as normal and at times welcome as they sought to configure professional autonomy and jurisdictions and cultivate an experimental ethos amongst their patients. We argue that these types of uncertainty work [Star, S. L. 1985. "Scientific Work and Uncertainty." Social Studies of Science 15 (3): 391-427] are a key feature of managing expectations at the intersections of genomic research and clinical care.
KW - genomics
KW - cancer
KW - expectations
KW - uncertainty
U2 - 10.1080/14636778.2019.1586525
DO - 10.1080/14636778.2019.1586525
M3 - Journal article
C2 - 31156350
VL - 38
SP - 222
EP - 239
JO - New Genetics and Society
JF - New Genetics and Society
SN - 1463-6778
IS - 2
ER -