Final published version
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Research output: Contribution to Journal/Magazine › Journal article › peer-review
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TY - JOUR
T1 - Health Surveillance and People with Intellectual Disabilities
AU - Hatton, Chris
AU - Bonardi, Alexandra
AU - Emerson, Eric
AU - Fox, Michael H.
AU - Glover, Gyles
AU - Krahn, Gloria L.
AU - Ouellette-Kuntz, Hélène
AU - Turner, Sue
PY - 2015/1/1
Y1 - 2015/1/1
N2 - In this chapter we use three case studies (from the USA, Canada, and England) to frame a discussion of key conceptual and methodological issues associated with health-surveillance programs for people with intellectual disabilities. These include the challenges associated with (1) identifying people with intellectual disabilities in administrative databases; (2) identifying people with intellectual disabilities in population-based surveys through data linkage and cognitive testing and self- or informant report; (3) sampling issues; (4) the use of specific intellectual disability surveys; and (5) challenges in measuring health. We conclude with a discussion of the relationship between health surveillance and health policy.
AB - In this chapter we use three case studies (from the USA, Canada, and England) to frame a discussion of key conceptual and methodological issues associated with health-surveillance programs for people with intellectual disabilities. These include the challenges associated with (1) identifying people with intellectual disabilities in administrative databases; (2) identifying people with intellectual disabilities in population-based surveys through data linkage and cognitive testing and self- or informant report; (3) sampling issues; (4) the use of specific intellectual disability surveys; and (5) challenges in measuring health. We conclude with a discussion of the relationship between health surveillance and health policy.
KW - Developmental disabilities
KW - Health
KW - Health measurement
KW - Health surveillance
KW - Intellectual disability
U2 - 10.1016/bs.irrdd.2015.04.002
DO - 10.1016/bs.irrdd.2015.04.002
M3 - Journal article
AN - SCOPUS:84947024797
VL - 48
SP - 73
EP - 114
JO - International Review of Research in Developmental Disabilities
JF - International Review of Research in Developmental Disabilities
SN - 2211-6095
ER -