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How grandparents experience the death of a grandchild with a life-limiting condition

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How grandparents experience the death of a grandchild with a life-limiting condition. / Tatterton, Michael; Walshe, Catherine Elizabeth.
In: Journal of Family Nursing, Vol. 25, No. 1, 01.02.2019, p. 109-127.

Research output: Contribution to Journal/MagazineJournal articlepeer-review

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Tatterton M, Walshe CE. How grandparents experience the death of a grandchild with a life-limiting condition. Journal of Family Nursing. 2019 Feb 1;25(1):109-127. Epub 2018 Dec 17. doi: 10.1177/1074840718816808

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Bibtex

@article{fb1738959d2d4309b64647da464bd2af,
title = "How grandparents experience the death of a grandchild with a life-limiting condition",
abstract = "Traditionally, family-focused care extends to parents and siblings of children with life-limiting conditions. Only a few studies have focused on the needs of grandparents, who play an important role in the families of children with illness and with life-limiting conditions, in particular. Interpretative phenomenological analysis was used as the methodological framework for the study. Seven bereaved grandparents participated in this study. Semistructured, individual, face-to-face interviews were conducted. A number of contextual factors affected the experience of bereaved grandparents, including intergenerational bonds and perceived changes in role following the death of their grandchild. The primary motivation of grandparents stemmed from their role as a parent, not a grandparent. The breadth of pain experienced by grandparents was complicated by the multigenerational positions grandparents occupy within the family. Transition from before to after the death of a grandchild exacerbated the experience of pain. These findings about the unique footprint of grandparent grief suggest the development of family nursing practice to better understand and support grandparents during the illness of a grandchild, in addition to bereavement support.",
keywords = "bereavement, child, Grandparents, grief, family nursing, hospice care, palliative care",
author = "Michael Tatterton and Walshe, {Catherine Elizabeth}",
note = "The final, definitive version of this article has been published in the Journal, Journal of Family Nursing, 25 (1), 2019, {\textcopyright} SAGE Publications Ltd, 2019 by SAGE Publications Ltd at the Journal of Family Nursing page: http://journals.sagepub.com/home/JFN on SAGE Journals Online: http://journals.sagepub.com/ ",
year = "2019",
month = feb,
day = "1",
doi = "10.1177/1074840718816808",
language = "English",
volume = "25",
pages = "109--127",
journal = "Journal of Family Nursing",
issn = "1074-8407",
publisher = "Sage",
number = "1",

}

RIS

TY - JOUR

T1 - How grandparents experience the death of a grandchild with a life-limiting condition

AU - Tatterton, Michael

AU - Walshe, Catherine Elizabeth

N1 - The final, definitive version of this article has been published in the Journal, Journal of Family Nursing, 25 (1), 2019, © SAGE Publications Ltd, 2019 by SAGE Publications Ltd at the Journal of Family Nursing page: http://journals.sagepub.com/home/JFN on SAGE Journals Online: http://journals.sagepub.com/

PY - 2019/2/1

Y1 - 2019/2/1

N2 - Traditionally, family-focused care extends to parents and siblings of children with life-limiting conditions. Only a few studies have focused on the needs of grandparents, who play an important role in the families of children with illness and with life-limiting conditions, in particular. Interpretative phenomenological analysis was used as the methodological framework for the study. Seven bereaved grandparents participated in this study. Semistructured, individual, face-to-face interviews were conducted. A number of contextual factors affected the experience of bereaved grandparents, including intergenerational bonds and perceived changes in role following the death of their grandchild. The primary motivation of grandparents stemmed from their role as a parent, not a grandparent. The breadth of pain experienced by grandparents was complicated by the multigenerational positions grandparents occupy within the family. Transition from before to after the death of a grandchild exacerbated the experience of pain. These findings about the unique footprint of grandparent grief suggest the development of family nursing practice to better understand and support grandparents during the illness of a grandchild, in addition to bereavement support.

AB - Traditionally, family-focused care extends to parents and siblings of children with life-limiting conditions. Only a few studies have focused on the needs of grandparents, who play an important role in the families of children with illness and with life-limiting conditions, in particular. Interpretative phenomenological analysis was used as the methodological framework for the study. Seven bereaved grandparents participated in this study. Semistructured, individual, face-to-face interviews were conducted. A number of contextual factors affected the experience of bereaved grandparents, including intergenerational bonds and perceived changes in role following the death of their grandchild. The primary motivation of grandparents stemmed from their role as a parent, not a grandparent. The breadth of pain experienced by grandparents was complicated by the multigenerational positions grandparents occupy within the family. Transition from before to after the death of a grandchild exacerbated the experience of pain. These findings about the unique footprint of grandparent grief suggest the development of family nursing practice to better understand and support grandparents during the illness of a grandchild, in addition to bereavement support.

KW - bereavement

KW - child

KW - Grandparents

KW - grief

KW - family nursing

KW - hospice care

KW - palliative care

U2 - 10.1177/1074840718816808

DO - 10.1177/1074840718816808

M3 - Journal article

VL - 25

SP - 109

EP - 127

JO - Journal of Family Nursing

JF - Journal of Family Nursing

SN - 1074-8407

IS - 1

ER -