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Identifying the concerns of informal carers in palliative care.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

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Identifying the concerns of informal carers in palliative care. / Payne, Sheila; Smith, P.; Dean, S.
In: Palliative Medicine, Vol. 13, No. 1, 01.1999, p. 37-44.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Harvard

Payne, S, Smith, P & Dean, S 1999, 'Identifying the concerns of informal carers in palliative care.', Palliative Medicine, vol. 13, no. 1, pp. 37-44. https://doi.org/10.1191/026921699673763725

APA

Payne, S., Smith, P., & Dean, S. (1999). Identifying the concerns of informal carers in palliative care. Palliative Medicine, 13(1), 37-44. https://doi.org/10.1191/026921699673763725

Vancouver

Payne S, Smith P, Dean S. Identifying the concerns of informal carers in palliative care. Palliative Medicine. 1999 Jan;13(1):37-44. doi: 10.1191/026921699673763725

Author

Payne, Sheila ; Smith, P. ; Dean, S. / Identifying the concerns of informal carers in palliative care. In: Palliative Medicine. 1999 ; Vol. 13, No. 1. pp. 37-44.

Bibtex

@article{aa8c1a4468084044a82f5cb29537de41,
title = "Identifying the concerns of informal carers in palliative care.",
abstract = "The purpose of this preliminary study was to identify the perceived support needs of informal carers (families and friends) of cancer patients receiving palliative care in the community. Changes in policy mean that increasing numbers of palliative care patients receive the majority of their care at home. This potentially places heavy demands on families and friends. Thirty-nine informal carers were recruited from two areas in southern England. Data were obtained on psychological morbidity (General Health Questionnaire), and caregiving burden (Carer Strain Index), and a semistructured interview was used to elicit data on perceptions of caring. Results indicate that 33 (84%) reported above normal levels of psychological distress and 16 (41%) experienced high levels of strain related to caregiving. Younger age and being female were found to be correlated with psychological morbidity and strain. Participants also reported life restrictions, emotional distress and limited support.",
keywords = "caregivers • family • home nursing • palliative care • social problems",
author = "Sheila Payne and P. Smith and S. Dean",
year = "1999",
month = jan,
doi = "10.1191/026921699673763725",
language = "English",
volume = "13",
pages = "37--44",
journal = "Palliative Medicine",
issn = "1477-030X",
publisher = "SAGE Publications Ltd",
number = "1",

}

RIS

TY - JOUR

T1 - Identifying the concerns of informal carers in palliative care.

AU - Payne, Sheila

AU - Smith, P.

AU - Dean, S.

PY - 1999/1

Y1 - 1999/1

N2 - The purpose of this preliminary study was to identify the perceived support needs of informal carers (families and friends) of cancer patients receiving palliative care in the community. Changes in policy mean that increasing numbers of palliative care patients receive the majority of their care at home. This potentially places heavy demands on families and friends. Thirty-nine informal carers were recruited from two areas in southern England. Data were obtained on psychological morbidity (General Health Questionnaire), and caregiving burden (Carer Strain Index), and a semistructured interview was used to elicit data on perceptions of caring. Results indicate that 33 (84%) reported above normal levels of psychological distress and 16 (41%) experienced high levels of strain related to caregiving. Younger age and being female were found to be correlated with psychological morbidity and strain. Participants also reported life restrictions, emotional distress and limited support.

AB - The purpose of this preliminary study was to identify the perceived support needs of informal carers (families and friends) of cancer patients receiving palliative care in the community. Changes in policy mean that increasing numbers of palliative care patients receive the majority of their care at home. This potentially places heavy demands on families and friends. Thirty-nine informal carers were recruited from two areas in southern England. Data were obtained on psychological morbidity (General Health Questionnaire), and caregiving burden (Carer Strain Index), and a semistructured interview was used to elicit data on perceptions of caring. Results indicate that 33 (84%) reported above normal levels of psychological distress and 16 (41%) experienced high levels of strain related to caregiving. Younger age and being female were found to be correlated with psychological morbidity and strain. Participants also reported life restrictions, emotional distress and limited support.

KW - caregivers • family • home nursing • palliative care • social problems

U2 - 10.1191/026921699673763725

DO - 10.1191/026921699673763725

M3 - Journal article

VL - 13

SP - 37

EP - 44

JO - Palliative Medicine

JF - Palliative Medicine

SN - 1477-030X

IS - 1

ER -