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  • DESCANT Process Evaluation Accepted Manuscript

    Rights statement: This is an Accepted Manuscript of an article published by Taylor & Francis in Ageing and Mental Health on 13/01/2021, available online: https://www.tandfonline.com/doi/abs/10.1080/13607863.2020.1870204

    Accepted author manuscript, 516 KB, PDF document

    Embargo ends: 13/01/22

    Available under license: CC BY-NC: Creative Commons Attribution-NonCommercial 4.0 International License

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Implementing the Dementia Early Stage Cognitive Aids New Trial (DESCANT) intervention: Mixed-method process evaluation alongside a pragmatic randomised trial

Research output: Contribution to journalJournal articlepeer-review

E-pub ahead of print
  • Members of the HoSt-D (Home Support in Dementia) Programme Management Group
  • Helen Chester
  • Rebecca Beresford
  • Paul Clarkson
  • Charlotte Entwistle
  • Vincent Gillan
  • Jane Hughes
  • Martin Orrell
  • Rosa Pitts
  • Ian Russell
  • Eileen Symonds
  • David Challis
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<mark>Journal publication date</mark>13/01/2021
<mark>Journal</mark>Aging and Mental Health
Publication StatusE-pub ahead of print
Early online date13/01/21
<mark>Original language</mark>English

Abstract

Objectives
The DESCANT (Dementia Early Stage Cognitive Aids New Trial) intervention provided a personalised care package designed to improve the cognitive abilities, function and well-being of people with early-stage dementia and their carers, by providing a range of memory aids, together with appropriate training and support. This sub-study aimed to assess implementation and identify contextual factors potentially associated with participant outcomes.

Method
A mixed-methods approach was adopted alongside the pragmatic randomised trial. Data were obtained from intervention records and interviews with five dementia support practitioners across seven National Health Service Trusts in England and Wales. A reporting framework was constructed from available literature and data assessed by descriptive statistics and thematic analysis.

Results
Participation and engagement was high with 126 out of 128 participants completing the intervention with packages tailored to individual participants. Misplacing items and poor orientation to date and time were common areas of need. Memory aids frequently supplied included orientation clocks (91%), whiteboards (60%), calendars (43%) and notebooks (32%), plus bespoke items. Intervention duration and timing were broadly consistent with expectations. Variation reflected participants’ needs, circumstances and preferences. Qualitative findings suggested a potentially positive impact on the well-being of people with dementia and their carers. Issues associated with successful roll-out of the intervention are explored in the discussion.

Conclusion
Successful implementation increased confidence in future findings of the randomised trial. Depending on these, DESCANT may prove a scalable intervention with potential to improve the function and quality of life of people with dementia and their carers.

Bibliographic note

This is an Accepted Manuscript of an article published by Taylor & Francis in Ageing and Mental Health on 13/01/2021, available online: https://www.tandfonline.com/doi/abs/10.1080/13607863.2020.1870204