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Living with functional movement disorders: a tale of three battles.: An interpretative phenomenological analysis

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Living with functional movement disorders: a tale of three battles. An interpretative phenomenological analysis. / Bazydlo, Sylwia; Eccles, Fiona.
In: Psychology and Health, 12.10.2022.

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Bazydlo S, Eccles F. Living with functional movement disorders: a tale of three battles. An interpretative phenomenological analysis. Psychology and Health. 2022 Oct 12. Epub 2022 Oct 12. doi: 10.1080/08870446.2022.2130312

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@article{8ad9c5c036b246bca3edd3a604c9e529,
title = "Living with functional movement disorders: a tale of three battles.: An interpretative phenomenological analysis",
abstract = "ABSTRACTObjectives: Functional movement disorders (FMD) have poor prognosis and high physical and psychological co-morbidity. Theirpathogenesis remains unclear, clinicians often find them difficultto treat, and lack of agreement between healthcare providers andpatients is common. This study aimed to explore the experiencesof living with FMD to improve understanding of its impact andpatients{\textquoteright} needs.Methods: Ten participants across the UK were recruited onlinethrough a charity{\textquoteright}s social media platforms. Semi structured interviews were conducted via video calls and were audio recordedand verbatim transcripts were analysed using interpretative phenomenological analysis.Results: Three superordinate themes were generated from thedata, representing the three battles fought by the participants: (1)intrapersonal: the tug of war with the secret agent within- thepower struggle with symptoms; (2) interpersonal: navigating stigmaand self-preservation; (3) systemic: pursuing hope and treatmentsagainst helplessness and passivity.Conclusions: Loss of control, feelings of powerlessness and oppression by symptoms is often mirrored in participants{\textquoteright} experiencesof seeking healthcare and navigating societal stigma. Active effortsto regain influence, improve quality of life and maintain hope canbe jeopardised by others{\textquoteright} dismissive attitudes and lack of knowledge. Antonovsky{\textquoteright}s model of salutogenesis is proposed as a usefulframework for facilitating empowerment in FMD serviceprovision.",
author = "Sylwia Bazydlo and Fiona Eccles",
year = "2022",
month = oct,
day = "12",
doi = "10.1080/08870446.2022.2130312",
language = "English",
journal = "Psychology and Health",
issn = "0887-0446",
publisher = "Routledge",

}

RIS

TY - JOUR

T1 - Living with functional movement disorders: a tale of three battles.

T2 - An interpretative phenomenological analysis

AU - Bazydlo, Sylwia

AU - Eccles, Fiona

PY - 2022/10/12

Y1 - 2022/10/12

N2 - ABSTRACTObjectives: Functional movement disorders (FMD) have poor prognosis and high physical and psychological co-morbidity. Theirpathogenesis remains unclear, clinicians often find them difficultto treat, and lack of agreement between healthcare providers andpatients is common. This study aimed to explore the experiencesof living with FMD to improve understanding of its impact andpatients’ needs.Methods: Ten participants across the UK were recruited onlinethrough a charity’s social media platforms. Semi structured interviews were conducted via video calls and were audio recordedand verbatim transcripts were analysed using interpretative phenomenological analysis.Results: Three superordinate themes were generated from thedata, representing the three battles fought by the participants: (1)intrapersonal: the tug of war with the secret agent within- thepower struggle with symptoms; (2) interpersonal: navigating stigmaand self-preservation; (3) systemic: pursuing hope and treatmentsagainst helplessness and passivity.Conclusions: Loss of control, feelings of powerlessness and oppression by symptoms is often mirrored in participants’ experiencesof seeking healthcare and navigating societal stigma. Active effortsto regain influence, improve quality of life and maintain hope canbe jeopardised by others’ dismissive attitudes and lack of knowledge. Antonovsky’s model of salutogenesis is proposed as a usefulframework for facilitating empowerment in FMD serviceprovision.

AB - ABSTRACTObjectives: Functional movement disorders (FMD) have poor prognosis and high physical and psychological co-morbidity. Theirpathogenesis remains unclear, clinicians often find them difficultto treat, and lack of agreement between healthcare providers andpatients is common. This study aimed to explore the experiencesof living with FMD to improve understanding of its impact andpatients’ needs.Methods: Ten participants across the UK were recruited onlinethrough a charity’s social media platforms. Semi structured interviews were conducted via video calls and were audio recordedand verbatim transcripts were analysed using interpretative phenomenological analysis.Results: Three superordinate themes were generated from thedata, representing the three battles fought by the participants: (1)intrapersonal: the tug of war with the secret agent within- thepower struggle with symptoms; (2) interpersonal: navigating stigmaand self-preservation; (3) systemic: pursuing hope and treatmentsagainst helplessness and passivity.Conclusions: Loss of control, feelings of powerlessness and oppression by symptoms is often mirrored in participants’ experiencesof seeking healthcare and navigating societal stigma. Active effortsto regain influence, improve quality of life and maintain hope canbe jeopardised by others’ dismissive attitudes and lack of knowledge. Antonovsky’s model of salutogenesis is proposed as a usefulframework for facilitating empowerment in FMD serviceprovision.

U2 - 10.1080/08870446.2022.2130312

DO - 10.1080/08870446.2022.2130312

M3 - Journal article

JO - Psychology and Health

JF - Psychology and Health

SN - 0887-0446

ER -