Final published version
Licence: CC BY: Creative Commons Attribution 4.0 International License
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Research output: Contribution to Journal/Magazine › Journal article › peer-review
}
TY - JOUR
T1 - Living with functional movement disorders: a tale of three battles.
T2 - An interpretative phenomenological analysis
AU - Bazydlo, Sylwia
AU - Eccles, Fiona
PY - 2022/10/12
Y1 - 2022/10/12
N2 - ABSTRACTObjectives: Functional movement disorders (FMD) have poor prognosis and high physical and psychological co-morbidity. Theirpathogenesis remains unclear, clinicians often find them difficultto treat, and lack of agreement between healthcare providers andpatients is common. This study aimed to explore the experiencesof living with FMD to improve understanding of its impact andpatients’ needs.Methods: Ten participants across the UK were recruited onlinethrough a charity’s social media platforms. Semi structured interviews were conducted via video calls and were audio recordedand verbatim transcripts were analysed using interpretative phenomenological analysis.Results: Three superordinate themes were generated from thedata, representing the three battles fought by the participants: (1)intrapersonal: the tug of war with the secret agent within- thepower struggle with symptoms; (2) interpersonal: navigating stigmaand self-preservation; (3) systemic: pursuing hope and treatmentsagainst helplessness and passivity.Conclusions: Loss of control, feelings of powerlessness and oppression by symptoms is often mirrored in participants’ experiencesof seeking healthcare and navigating societal stigma. Active effortsto regain influence, improve quality of life and maintain hope canbe jeopardised by others’ dismissive attitudes and lack of knowledge. Antonovsky’s model of salutogenesis is proposed as a usefulframework for facilitating empowerment in FMD serviceprovision.
AB - ABSTRACTObjectives: Functional movement disorders (FMD) have poor prognosis and high physical and psychological co-morbidity. Theirpathogenesis remains unclear, clinicians often find them difficultto treat, and lack of agreement between healthcare providers andpatients is common. This study aimed to explore the experiencesof living with FMD to improve understanding of its impact andpatients’ needs.Methods: Ten participants across the UK were recruited onlinethrough a charity’s social media platforms. Semi structured interviews were conducted via video calls and were audio recordedand verbatim transcripts were analysed using interpretative phenomenological analysis.Results: Three superordinate themes were generated from thedata, representing the three battles fought by the participants: (1)intrapersonal: the tug of war with the secret agent within- thepower struggle with symptoms; (2) interpersonal: navigating stigmaand self-preservation; (3) systemic: pursuing hope and treatmentsagainst helplessness and passivity.Conclusions: Loss of control, feelings of powerlessness and oppression by symptoms is often mirrored in participants’ experiencesof seeking healthcare and navigating societal stigma. Active effortsto regain influence, improve quality of life and maintain hope canbe jeopardised by others’ dismissive attitudes and lack of knowledge. Antonovsky’s model of salutogenesis is proposed as a usefulframework for facilitating empowerment in FMD serviceprovision.
U2 - 10.1080/08870446.2022.2130312
DO - 10.1080/08870446.2022.2130312
M3 - Journal article
JO - Psychology and Health
JF - Psychology and Health
SN - 0887-0446
ER -