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    Rights statement: This is the author’s version of a work that was accepted for publication in Clinical Psychology Review. Changes resulting from the publishing process, such as peer review, editing, corrections, structural formatting, and other quality control mechanisms may not be reflected in this document. Changes may have been made to this work since it was submitted for publication. A definitive version was subsequently published in Clinical Psychology Review, ??, ?, 2017 DOI: 10.1016/j.cpr.2017.08.006

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Measurement tools for mental health problems and mental well-being in people with severe or profound intellectual disabilities: a systematic review

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Measurement tools for mental health problems and mental well-being in people with severe or profound intellectual disabilities : a systematic review. / Flynn, Samantha; Vereenooghe, Leen; Hastings, Richard P.; Adams, Dawn; Cooper, Sally-Ann; Gore, Nick; Hatton, Chris; Hood, Kerry; Jahoda, Andrew; Langdon, Peter E.; McNamara, Rachel; Oliver, Chris; Roy, Ashok; Totsika, Vasiliki; Waite, Jane.

In: Clinical Psychology Review, 11.08.2017.

Research output: Contribution to journalJournal articlepeer-review

Harvard

Flynn, S, Vereenooghe, L, Hastings, RP, Adams, D, Cooper, S-A, Gore, N, Hatton, C, Hood, K, Jahoda, A, Langdon, PE, McNamara, R, Oliver, C, Roy, A, Totsika, V & Waite, J 2017, 'Measurement tools for mental health problems and mental well-being in people with severe or profound intellectual disabilities: a systematic review', Clinical Psychology Review. https://doi.org/10.1016/j.cpr.2017.08.006

APA

Flynn, S., Vereenooghe, L., Hastings, R. P., Adams, D., Cooper, S-A., Gore, N., Hatton, C., Hood, K., Jahoda, A., Langdon, P. E., McNamara, R., Oliver, C., Roy, A., Totsika, V., & Waite, J. (2017). Measurement tools for mental health problems and mental well-being in people with severe or profound intellectual disabilities: a systematic review. Clinical Psychology Review. https://doi.org/10.1016/j.cpr.2017.08.006

Vancouver

Author

Flynn, Samantha ; Vereenooghe, Leen ; Hastings, Richard P. ; Adams, Dawn ; Cooper, Sally-Ann ; Gore, Nick ; Hatton, Chris ; Hood, Kerry ; Jahoda, Andrew ; Langdon, Peter E. ; McNamara, Rachel ; Oliver, Chris ; Roy, Ashok ; Totsika, Vasiliki ; Waite, Jane. / Measurement tools for mental health problems and mental well-being in people with severe or profound intellectual disabilities : a systematic review. In: Clinical Psychology Review. 2017.

Bibtex

@article{099b6070675a4ea38bc47a431dca071f,
title = "Measurement tools for mental health problems and mental well-being in people with severe or profound intellectual disabilities: a systematic review",
abstract = "Mental health problems affect people with intellectual disabilities (ID) at rates similar to or in excess of the non-ID population. People with severe ID are likely to have persistent mental health problems. In this systematic review (PROSPERO 2015:CRD42015024469), we identify and evaluate the methodological quality of available measures of mental health problems or well-being in individuals with severe or profound ID. Electronic searches of ten databases identified relevant publications. Two reviewers independently reviewed titles and abstracts of retrieved records (n = 41,232) and full-text articles (n = 573). Data were extracted and the quality of included papers was appraised. Thirty-two papers reporting on 12 measures were included. Nine measures addressed a broad spectrum of mental health problems, and were largely observational. One physiological measure of well-being was included. The Aberrant Behaviour Checklist, Diagnostic Assessment for the Severely Handicapped Scale-II and Mood, Interest and Pleasure Questionnaire are reliable measures in this population. However, the psychometric properties of six other measures were only considered within a single study – indicating a lack of research replication. Few mental health measures are available for people with severe or profound ID, particularly lacking are tools measuring well-being. Assessment methods that do not rely on proxy reports should be explored further.",
keywords = "Intellectual disabilities, Mental health, Mental illness, Psychiatric disorder, Mental well-being, Measurement",
author = "Samantha Flynn and Leen Vereenooghe and Hastings, {Richard P.} and Dawn Adams and Sally-Ann Cooper and Nick Gore and Chris Hatton and Kerry Hood and Andrew Jahoda and Langdon, {Peter E.} and Rachel McNamara and Chris Oliver and Ashok Roy and Vasiliki Totsika and Jane Waite",
note = "This is the author{\textquoteright}s version of a work that was accepted for publication in Clinical Psychology Review. Changes resulting from the publishing process, such as peer review, editing, corrections, structural formatting, and other quality control mechanisms may not be reflected in this document. Changes may have been made to this work since it was submitted for publication. A definitive version was subsequently published in Clinical Psychology Review, ??, ?, 2017 DOI: 10.1016/j.cpr.2017.08.006",
year = "2017",
month = aug,
day = "11",
doi = "10.1016/j.cpr.2017.08.006",
language = "English",
journal = "Clinical Psychology Review",
issn = "0272-7358",
publisher = "Elsevier Inc.",

}

RIS

TY - JOUR

T1 - Measurement tools for mental health problems and mental well-being in people with severe or profound intellectual disabilities

T2 - a systematic review

AU - Flynn, Samantha

AU - Vereenooghe, Leen

AU - Hastings, Richard P.

AU - Adams, Dawn

AU - Cooper, Sally-Ann

AU - Gore, Nick

AU - Hatton, Chris

AU - Hood, Kerry

AU - Jahoda, Andrew

AU - Langdon, Peter E.

AU - McNamara, Rachel

AU - Oliver, Chris

AU - Roy, Ashok

AU - Totsika, Vasiliki

AU - Waite, Jane

N1 - This is the author’s version of a work that was accepted for publication in Clinical Psychology Review. Changes resulting from the publishing process, such as peer review, editing, corrections, structural formatting, and other quality control mechanisms may not be reflected in this document. Changes may have been made to this work since it was submitted for publication. A definitive version was subsequently published in Clinical Psychology Review, ??, ?, 2017 DOI: 10.1016/j.cpr.2017.08.006

PY - 2017/8/11

Y1 - 2017/8/11

N2 - Mental health problems affect people with intellectual disabilities (ID) at rates similar to or in excess of the non-ID population. People with severe ID are likely to have persistent mental health problems. In this systematic review (PROSPERO 2015:CRD42015024469), we identify and evaluate the methodological quality of available measures of mental health problems or well-being in individuals with severe or profound ID. Electronic searches of ten databases identified relevant publications. Two reviewers independently reviewed titles and abstracts of retrieved records (n = 41,232) and full-text articles (n = 573). Data were extracted and the quality of included papers was appraised. Thirty-two papers reporting on 12 measures were included. Nine measures addressed a broad spectrum of mental health problems, and were largely observational. One physiological measure of well-being was included. The Aberrant Behaviour Checklist, Diagnostic Assessment for the Severely Handicapped Scale-II and Mood, Interest and Pleasure Questionnaire are reliable measures in this population. However, the psychometric properties of six other measures were only considered within a single study – indicating a lack of research replication. Few mental health measures are available for people with severe or profound ID, particularly lacking are tools measuring well-being. Assessment methods that do not rely on proxy reports should be explored further.

AB - Mental health problems affect people with intellectual disabilities (ID) at rates similar to or in excess of the non-ID population. People with severe ID are likely to have persistent mental health problems. In this systematic review (PROSPERO 2015:CRD42015024469), we identify and evaluate the methodological quality of available measures of mental health problems or well-being in individuals with severe or profound ID. Electronic searches of ten databases identified relevant publications. Two reviewers independently reviewed titles and abstracts of retrieved records (n = 41,232) and full-text articles (n = 573). Data were extracted and the quality of included papers was appraised. Thirty-two papers reporting on 12 measures were included. Nine measures addressed a broad spectrum of mental health problems, and were largely observational. One physiological measure of well-being was included. The Aberrant Behaviour Checklist, Diagnostic Assessment for the Severely Handicapped Scale-II and Mood, Interest and Pleasure Questionnaire are reliable measures in this population. However, the psychometric properties of six other measures were only considered within a single study – indicating a lack of research replication. Few mental health measures are available for people with severe or profound ID, particularly lacking are tools measuring well-being. Assessment methods that do not rely on proxy reports should be explored further.

KW - Intellectual disabilities

KW - Mental health

KW - Mental illness

KW - Psychiatric disorder

KW - Mental well-being

KW - Measurement

U2 - 10.1016/j.cpr.2017.08.006

DO - 10.1016/j.cpr.2017.08.006

M3 - Journal article

JO - Clinical Psychology Review

JF - Clinical Psychology Review

SN - 0272-7358

ER -