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Mitochondrial donation and ‘the right to know’

Research output: Contribution to journalJournal articlepeer-review

Published
<mark>Journal publication date</mark>10/2016
<mark>Journal</mark>Journal of Medical Ethics
Issue number10
Volume42
Number of pages7
Pages (from-to)678-684
Publication StatusPublished
Early online date19/08/16
<mark>Original language</mark>English

Abstract

In this paper, I examine two key arguments advanced by the Human Fertilization and Embryology Authority (HFEA) and the Nuffield Council justifying anonymous mitochondrial donation, even though the ‘right to know’ is recognised in standard gamete donation. I argue that the two arguments they offer, what I call the argument from genetic connection and the argument from
personal characteristics, are unsuccessful. However, I provide additional reasons for why recognising the right to know in gamete donation but not in mitochondrial donation may be justified. I further argue that the status quo in the UK, which is to not recognise a right to know in mitochondrial donation, is provisionally acceptable.