Rights statement: This is an Accepted Manuscript of an article published by Taylor & Francis in Journal of Mental Health on 23/06/2017 available online: https://www.tandfonline.com/doi/abs/10.1080/09638237.2017.1340613
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Final published version
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Research output: Contribution to Journal/Magazine › Journal article › peer-review
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TY - JOUR
T1 - National survey and analysis of barriers to the utilisation of the 2005 mental capacity act by people with bipolar disorder in England and Wales
AU - Morriss, Richard
AU - Mudigonda, Mohan
AU - Bartlett, Peter
AU - Chopra, Arun
AU - Jones, Steven
N1 - This is an Accepted Manuscript of an article published by Taylor & Francis in Journal of Mental Health on 23/06/2017 available online: https://www.tandfonline.com/doi/abs/10.1080/09638237.2017.1340613
PY - 2020/3/3
Y1 - 2020/3/3
N2 - Background: The Mental Capacity Act (2005) (MCA) provides a legal framework for advance planning for both health and welfare in England and Wales for people if they lose mental capacity, for example, through mania or severe depression. Aims: To determine the proportion of people with bipolar disorder (BD) who utilise advance planning, their experience of using it and barriers to its implementation. Methods: National survey of people with clinical diagnosis of BD of their knowledge, use and experience of the MCA. Thematically analysed qualitative interviews with maximum variance sample of people with BD. Results: A total of 544 respondents with BD participated in the survey; 18 in the qualitative study. 403 (74.1%) believed making plans about their personal welfare if they lost capacity to be very important. A total of 199 (36.6%) participants knew about the MCA. A total 54 (10%), 62 (11%) and 21 (4%) participants made advanced decisions to refuse treatment, advance statements and lasting power of attorney, respectively. Barriers included not understanding its different forms, unrealistic expectations and advance plans ignored by services. Conclusion: In BD, the demand for advance plans about welfare with loss of capacity was high, but utilisation of the MCA was low with barriers at service user, clinician and organisation levels.
AB - Background: The Mental Capacity Act (2005) (MCA) provides a legal framework for advance planning for both health and welfare in England and Wales for people if they lose mental capacity, for example, through mania or severe depression. Aims: To determine the proportion of people with bipolar disorder (BD) who utilise advance planning, their experience of using it and barriers to its implementation. Methods: National survey of people with clinical diagnosis of BD of their knowledge, use and experience of the MCA. Thematically analysed qualitative interviews with maximum variance sample of people with BD. Results: A total of 544 respondents with BD participated in the survey; 18 in the qualitative study. 403 (74.1%) believed making plans about their personal welfare if they lost capacity to be very important. A total of 199 (36.6%) participants knew about the MCA. A total 54 (10%), 62 (11%) and 21 (4%) participants made advanced decisions to refuse treatment, advance statements and lasting power of attorney, respectively. Barriers included not understanding its different forms, unrealistic expectations and advance plans ignored by services. Conclusion: In BD, the demand for advance plans about welfare with loss of capacity was high, but utilisation of the MCA was low with barriers at service user, clinician and organisation levels.
KW - advance directives
KW - advance health care planning
KW - bipolar disorder
KW - health legislation
U2 - 10.1080/09638237.2017.1340613
DO - 10.1080/09638237.2017.1340613
M3 - Journal article
C2 - 28644738
AN - SCOPUS:85021192706
VL - 29
SP - 131
EP - 138
JO - Journal of Mental Health
JF - Journal of Mental Health
SN - 0963-8237
IS - 2
ER -