Home > Research > Publications & Outputs > Online illness narratives about living with mot...
View graph of relations

Online illness narratives about living with motor neurone disease : a quantitative analysis.

Research output: Contribution to Journal/MagazineJournal articlepeer-review

Published

Standard

Online illness narratives about living with motor neurone disease : a quantitative analysis. / Clark, David; O Brien, Mary.
In: British Journal of Neuroscience Nursing, Vol. 2, No. 8, 13.10.2006, p. 410-414.

Research output: Contribution to Journal/MagazineJournal articlepeer-review

Harvard

APA

Vancouver

Clark D, O Brien M. Online illness narratives about living with motor neurone disease : a quantitative analysis. British Journal of Neuroscience Nursing. 2006 Oct 13;2(8):410-414.

Author

Clark, David ; O Brien, Mary. / Online illness narratives about living with motor neurone disease : a quantitative analysis. In: British Journal of Neuroscience Nursing. 2006 ; Vol. 2, No. 8. pp. 410-414.

Bibtex

@article{ed206035c6c54690a8c1c9121e46b4fe,
title = "Online illness narratives about living with motor neurone disease : a quantitative analysis.",
abstract = "Background: To date, no published work has sought to investigate internet-based writing about life with motor neurone disease (amyotrophic lateral sclerosis) or to determine who is using this genre to publicize their illness narratives. Objectives: To identify and locate illness narratives written by people diagnosed with motor neurone disease posted on the Internet and to ascertain who is using this vehicle to tell the story of their illness. Method: Systematic searches were conducted using Internet search and Meta search engines, local and national motor neurone disease association information sites and by following links from personal websites and motor neurone disease chat rooms, newsgroups and forums. Results: Ultimately, 64 personal websites containing illness narratives written by people with motor neurone disease were identified. Demographic details of the authors are presented. Conclusion: This novel study demonstrates that health professionals can access an invaluable source of personal illness narratives from the internet using a systematic approach.",
author = "David Clark and {O Brien}, Mary",
year = "2006",
month = oct,
day = "13",
language = "English",
volume = "2",
pages = "410--414",
journal = "British Journal of Neuroscience Nursing",
issn = "1747-0307",
publisher = "MA Healthcare Ltd",
number = "8",

}

RIS

TY - JOUR

T1 - Online illness narratives about living with motor neurone disease : a quantitative analysis.

AU - Clark, David

AU - O Brien, Mary

PY - 2006/10/13

Y1 - 2006/10/13

N2 - Background: To date, no published work has sought to investigate internet-based writing about life with motor neurone disease (amyotrophic lateral sclerosis) or to determine who is using this genre to publicize their illness narratives. Objectives: To identify and locate illness narratives written by people diagnosed with motor neurone disease posted on the Internet and to ascertain who is using this vehicle to tell the story of their illness. Method: Systematic searches were conducted using Internet search and Meta search engines, local and national motor neurone disease association information sites and by following links from personal websites and motor neurone disease chat rooms, newsgroups and forums. Results: Ultimately, 64 personal websites containing illness narratives written by people with motor neurone disease were identified. Demographic details of the authors are presented. Conclusion: This novel study demonstrates that health professionals can access an invaluable source of personal illness narratives from the internet using a systematic approach.

AB - Background: To date, no published work has sought to investigate internet-based writing about life with motor neurone disease (amyotrophic lateral sclerosis) or to determine who is using this genre to publicize their illness narratives. Objectives: To identify and locate illness narratives written by people diagnosed with motor neurone disease posted on the Internet and to ascertain who is using this vehicle to tell the story of their illness. Method: Systematic searches were conducted using Internet search and Meta search engines, local and national motor neurone disease association information sites and by following links from personal websites and motor neurone disease chat rooms, newsgroups and forums. Results: Ultimately, 64 personal websites containing illness narratives written by people with motor neurone disease were identified. Demographic details of the authors are presented. Conclusion: This novel study demonstrates that health professionals can access an invaluable source of personal illness narratives from the internet using a systematic approach.

M3 - Journal article

VL - 2

SP - 410

EP - 414

JO - British Journal of Neuroscience Nursing

JF - British Journal of Neuroscience Nursing

SN - 1747-0307

IS - 8

ER -