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Our year with the glass: expectations, letdowns and ethical dilemmas of technology trials with vulnerable people

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Our year with the glass: expectations, letdowns and ethical dilemmas of technology trials with vulnerable people. / Vines, John; McNaney, Róisín; Holden, Amey et al.
In: Interacting with Computers, Vol. 29, No. 1, 01.01.2017, p. 27-44.

Research output: Contribution to Journal/MagazineJournal articlepeer-review

Harvard

Vines, J, McNaney, R, Holden, A, Poliakov, I, Wright, P & Olivier, P 2017, 'Our year with the glass: expectations, letdowns and ethical dilemmas of technology trials with vulnerable people', Interacting with Computers, vol. 29, no. 1, pp. 27-44. https://doi.org/10.1093/iwc/iww017

APA

Vines, J., McNaney, R., Holden, A., Poliakov, I., Wright, P., & Olivier, P. (2017). Our year with the glass: expectations, letdowns and ethical dilemmas of technology trials with vulnerable people. Interacting with Computers, 29(1), 27-44. https://doi.org/10.1093/iwc/iww017

Vancouver

Vines J, McNaney R, Holden A, Poliakov I, Wright P, Olivier P. Our year with the glass: expectations, letdowns and ethical dilemmas of technology trials with vulnerable people. Interacting with Computers. 2017 Jan 1;29(1):27-44. Epub 2016 Dec 14. doi: 10.1093/iwc/iww017

Author

Vines, John ; McNaney, Róisín ; Holden, Amey et al. / Our year with the glass : expectations, letdowns and ethical dilemmas of technology trials with vulnerable people. In: Interacting with Computers. 2017 ; Vol. 29, No. 1. pp. 27-44.

Bibtex

@article{d3607a854ea349e791f6db17a7107902,
title = "Our year with the glass: expectations, letdowns and ethical dilemmas of technology trials with vulnerable people",
abstract = "In this paper, we reflect upon the ethical dilemmas faced during our research exploring the potential of Google Glass as a self-care technology for people with Parkinson's. Our project involved two stages of research: an initial study that explored the overall acceptability and responses of people with Parkinson's to the technology; and a follow-up study that examined participants' experiences of the technology in more depth through further trials and a series of co-design activities. While our first trials were successful, leading to publication and subsequent local and national publicity, our follow-up trials were hampered by technical problems that were often out of our control. We highlight how participants' heightened expectations prior to the second trial, as a result of public discourse around the project, were difficult to meet. This led to our participants articulating their frustrations, feelings of lowered self-confidence, and in some cases a reduced sense of self-worth. We reflect on how the decisions and actions taken during the project led to these dilemmas, and how these relate to contemporary challenges in human-computer interaction research where there is increased focus on in the wild studies of technology use and a pressure to publicly disseminate the findings of research. In doing so, we offer an open and honest account of how a set of ethical dilemmas emerged while conducting technology field trials with a potentially vulnerable group, and offer guidance to future researchers finding themselves in similar circumstances.",
keywords = "health care, assistive technologies, user studies, user experience design, ethics, Parkinson's",
author = "John Vines and R{\'o}is{\'i}n McNaney and Amey Holden and Ivan Poliakov and Peter Wright and Patrick Olivier",
year = "2017",
month = jan,
day = "1",
doi = "10.1093/iwc/iww017",
language = "English",
volume = "29",
pages = "27--44",
journal = "Interacting with Computers",
issn = "0953-5438",
publisher = "Oxford University Press",
number = "1",

}

RIS

TY - JOUR

T1 - Our year with the glass

T2 - expectations, letdowns and ethical dilemmas of technology trials with vulnerable people

AU - Vines, John

AU - McNaney, Róisín

AU - Holden, Amey

AU - Poliakov, Ivan

AU - Wright, Peter

AU - Olivier, Patrick

PY - 2017/1/1

Y1 - 2017/1/1

N2 - In this paper, we reflect upon the ethical dilemmas faced during our research exploring the potential of Google Glass as a self-care technology for people with Parkinson's. Our project involved two stages of research: an initial study that explored the overall acceptability and responses of people with Parkinson's to the technology; and a follow-up study that examined participants' experiences of the technology in more depth through further trials and a series of co-design activities. While our first trials were successful, leading to publication and subsequent local and national publicity, our follow-up trials were hampered by technical problems that were often out of our control. We highlight how participants' heightened expectations prior to the second trial, as a result of public discourse around the project, were difficult to meet. This led to our participants articulating their frustrations, feelings of lowered self-confidence, and in some cases a reduced sense of self-worth. We reflect on how the decisions and actions taken during the project led to these dilemmas, and how these relate to contemporary challenges in human-computer interaction research where there is increased focus on in the wild studies of technology use and a pressure to publicly disseminate the findings of research. In doing so, we offer an open and honest account of how a set of ethical dilemmas emerged while conducting technology field trials with a potentially vulnerable group, and offer guidance to future researchers finding themselves in similar circumstances.

AB - In this paper, we reflect upon the ethical dilemmas faced during our research exploring the potential of Google Glass as a self-care technology for people with Parkinson's. Our project involved two stages of research: an initial study that explored the overall acceptability and responses of people with Parkinson's to the technology; and a follow-up study that examined participants' experiences of the technology in more depth through further trials and a series of co-design activities. While our first trials were successful, leading to publication and subsequent local and national publicity, our follow-up trials were hampered by technical problems that were often out of our control. We highlight how participants' heightened expectations prior to the second trial, as a result of public discourse around the project, were difficult to meet. This led to our participants articulating their frustrations, feelings of lowered self-confidence, and in some cases a reduced sense of self-worth. We reflect on how the decisions and actions taken during the project led to these dilemmas, and how these relate to contemporary challenges in human-computer interaction research where there is increased focus on in the wild studies of technology use and a pressure to publicly disseminate the findings of research. In doing so, we offer an open and honest account of how a set of ethical dilemmas emerged while conducting technology field trials with a potentially vulnerable group, and offer guidance to future researchers finding themselves in similar circumstances.

KW - health care

KW - assistive technologies

KW - user studies

KW - user experience design

KW - ethics

KW - Parkinson's

U2 - 10.1093/iwc/iww017

DO - 10.1093/iwc/iww017

M3 - Journal article

AN - SCOPUS:85014376835

VL - 29

SP - 27

EP - 44

JO - Interacting with Computers

JF - Interacting with Computers

SN - 0953-5438

IS - 1

ER -