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Palliative care provision in long-term care facilities differs across Europe: Results of a cross-sectional study in six European countries (PACE)

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Palliative care provision in long-term care facilities differs across Europe : Results of a cross-sectional study in six European countries (PACE). / ten Koppel, M.; Onwuteaka-Philipsen, B.D.; Van den Block, L. et al.

In: Palliative Medicine, Vol. 33, No. 9, 01.10.2019, p. 1176-1188.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Harvard

ten Koppel, M, Onwuteaka-Philipsen, BD, Van den Block, L, Deliens, L, Gambassi, G, Heymans, MW, Kylänen, M, Oosterveld-Vlug, MG, Pasman, HRW, Payne, S, Smets, T, Szczerbińska, K, Twisk, JWR, van der Steen, JT, De Groote, Z, Mammarella, F, Mercuri, M, Pivodic, L, Pac, A, Rossi, P, Segat, I, Sowerby, E, Stodolska, A, van Hout, H, Wichmann, A, Adang, E, Andreasen, P, Finne-Soveri, H, Collingridge Moore, D, Froggatt, K, Kijowska, V, Van Den Noortgate, N, Vernooij-Dassen, M & PACE, OBO 2019, 'Palliative care provision in long-term care facilities differs across Europe: Results of a cross-sectional study in six European countries (PACE)', Palliative Medicine, vol. 33, no. 9, pp. 1176-1188. https://doi.org/10.1177/0269216319861229

APA

ten Koppel, M., Onwuteaka-Philipsen, B. D., Van den Block, L., Deliens, L., Gambassi, G., Heymans, M. W., Kylänen, M., Oosterveld-Vlug, M. G., Pasman, H. R. W., Payne, S., Smets, T., Szczerbińska, K., Twisk, J. W. R., van der Steen, J. T., De Groote, Z., Mammarella, F., Mercuri, M., Pivodic, L., Pac, A., ... PACE, O. B. O. (2019). Palliative care provision in long-term care facilities differs across Europe: Results of a cross-sectional study in six European countries (PACE). Palliative Medicine, 33(9), 1176-1188. https://doi.org/10.1177/0269216319861229

Vancouver

ten Koppel M, Onwuteaka-Philipsen BD, Van den Block L, Deliens L, Gambassi G, Heymans MW et al. Palliative care provision in long-term care facilities differs across Europe: Results of a cross-sectional study in six European countries (PACE). Palliative Medicine. 2019 Oct 1;33(9):1176-1188. Epub 2019 Jul 1. doi: 10.1177/0269216319861229

Author

ten Koppel, M. ; Onwuteaka-Philipsen, B.D. ; Van den Block, L. et al. / Palliative care provision in long-term care facilities differs across Europe : Results of a cross-sectional study in six European countries (PACE). In: Palliative Medicine. 2019 ; Vol. 33, No. 9. pp. 1176-1188.

Bibtex

@article{bf50207e30b24af4994308ed740d2cd6,
title = "Palliative care provision in long-term care facilities differs across Europe: Results of a cross-sectional study in six European countries (PACE)",
abstract = "Background: While the need for palliative care in long-term care facilities is growing, it is unknown whether palliative care in this setting is sufficiently developed. Aim: To describe and compare in six European countries palliative care provision in long-term care facilities and to assess associations between patient, facility and advance care planning factors and receipt and timing of palliative care. Design: Cross-sectional after-death survey regarding care provided to long-term care residents in Belgium, England, Finland, Italy, the Netherlands and Poland. Generalized estimating equations were used for analyses. Setting/participants: Nurses or care assistants who are most involved in care for the resident. Results: We included 1298 residents in 300 facilities, of whom a majority received palliative care in most countries (England: 72.6%–Belgium: 77.9%), except in Poland (14.0%) and Italy (32.1%). Palliative care typically started within 2 weeks before death and was often provided by the treating physician (England: 75%–the Netherlands: 98.8%). A palliative care specialist was frequently involved in Belgium and Poland (57.1% and 86.7%). Residents with cancer, dementia or a contact person in their record more often received palliative care, and it started earlier for residents with whom the nurse had spoken about treatments or the preferred course of care at the end of life. Conclusion: The late initiation of palliative care (especially when advance care planning is lacking) and palliative care for residents without cancer, dementia or closely involved relatives deserve attention in all countries. Diversity in palliative care organization might be related to different levels of its development.",
keywords = "aged, aged 80 and over, cross-sectional studies, long-term care, Nursing homes, palliative care, residential facilities, retrospective studies",
author = "{ten Koppel}, M. and B.D. Onwuteaka-Philipsen and {Van den Block}, L. and L. Deliens and G. Gambassi and M.W. Heymans and M. Kyl{\"a}nen and M.G. Oosterveld-Vlug and H.R.W. Pasman and S. Payne and T. Smets and K. Szczerbi{\'n}ska and J.W.R. Twisk and {van der Steen}, J.T. and {De Groote}, Z. and F. Mammarella and M. Mercuri and L. Pivodic and A. Pac and P. Rossi and I. Segat and E. Sowerby and A. Stodolska and {van Hout}, H. and A. Wichmann and E. Adang and P. Andreasen and H. Finne-Soveri and {Collingridge Moore}, D. and K. Froggatt and V. Kijowska and {Van Den Noortgate}, N. and M. Vernooij-Dassen and PACE, {on behalf of}",
year = "2019",
month = oct,
day = "1",
doi = "10.1177/0269216319861229",
language = "English",
volume = "33",
pages = "1176--1188",
journal = "Palliative Medicine",
issn = "0269-2163",
publisher = "SAGE Publications Ltd",
number = "9",

}

RIS

TY - JOUR

T1 - Palliative care provision in long-term care facilities differs across Europe

T2 - Results of a cross-sectional study in six European countries (PACE)

AU - ten Koppel, M.

AU - Onwuteaka-Philipsen, B.D.

AU - Van den Block, L.

AU - Deliens, L.

AU - Gambassi, G.

AU - Heymans, M.W.

AU - Kylänen, M.

AU - Oosterveld-Vlug, M.G.

AU - Pasman, H.R.W.

AU - Payne, S.

AU - Smets, T.

AU - Szczerbińska, K.

AU - Twisk, J.W.R.

AU - van der Steen, J.T.

AU - De Groote, Z.

AU - Mammarella, F.

AU - Mercuri, M.

AU - Pivodic, L.

AU - Pac, A.

AU - Rossi, P.

AU - Segat, I.

AU - Sowerby, E.

AU - Stodolska, A.

AU - van Hout, H.

AU - Wichmann, A.

AU - Adang, E.

AU - Andreasen, P.

AU - Finne-Soveri, H.

AU - Collingridge Moore, D.

AU - Froggatt, K.

AU - Kijowska, V.

AU - Van Den Noortgate, N.

AU - Vernooij-Dassen, M.

AU - PACE, on behalf of

PY - 2019/10/1

Y1 - 2019/10/1

N2 - Background: While the need for palliative care in long-term care facilities is growing, it is unknown whether palliative care in this setting is sufficiently developed. Aim: To describe and compare in six European countries palliative care provision in long-term care facilities and to assess associations between patient, facility and advance care planning factors and receipt and timing of palliative care. Design: Cross-sectional after-death survey regarding care provided to long-term care residents in Belgium, England, Finland, Italy, the Netherlands and Poland. Generalized estimating equations were used for analyses. Setting/participants: Nurses or care assistants who are most involved in care for the resident. Results: We included 1298 residents in 300 facilities, of whom a majority received palliative care in most countries (England: 72.6%–Belgium: 77.9%), except in Poland (14.0%) and Italy (32.1%). Palliative care typically started within 2 weeks before death and was often provided by the treating physician (England: 75%–the Netherlands: 98.8%). A palliative care specialist was frequently involved in Belgium and Poland (57.1% and 86.7%). Residents with cancer, dementia or a contact person in their record more often received palliative care, and it started earlier for residents with whom the nurse had spoken about treatments or the preferred course of care at the end of life. Conclusion: The late initiation of palliative care (especially when advance care planning is lacking) and palliative care for residents without cancer, dementia or closely involved relatives deserve attention in all countries. Diversity in palliative care organization might be related to different levels of its development.

AB - Background: While the need for palliative care in long-term care facilities is growing, it is unknown whether palliative care in this setting is sufficiently developed. Aim: To describe and compare in six European countries palliative care provision in long-term care facilities and to assess associations between patient, facility and advance care planning factors and receipt and timing of palliative care. Design: Cross-sectional after-death survey regarding care provided to long-term care residents in Belgium, England, Finland, Italy, the Netherlands and Poland. Generalized estimating equations were used for analyses. Setting/participants: Nurses or care assistants who are most involved in care for the resident. Results: We included 1298 residents in 300 facilities, of whom a majority received palliative care in most countries (England: 72.6%–Belgium: 77.9%), except in Poland (14.0%) and Italy (32.1%). Palliative care typically started within 2 weeks before death and was often provided by the treating physician (England: 75%–the Netherlands: 98.8%). A palliative care specialist was frequently involved in Belgium and Poland (57.1% and 86.7%). Residents with cancer, dementia or a contact person in their record more often received palliative care, and it started earlier for residents with whom the nurse had spoken about treatments or the preferred course of care at the end of life. Conclusion: The late initiation of palliative care (especially when advance care planning is lacking) and palliative care for residents without cancer, dementia or closely involved relatives deserve attention in all countries. Diversity in palliative care organization might be related to different levels of its development.

KW - aged

KW - aged 80 and over

KW - cross-sectional studies

KW - long-term care

KW - Nursing homes

KW - palliative care

KW - residential facilities

KW - retrospective studies

U2 - 10.1177/0269216319861229

DO - 10.1177/0269216319861229

M3 - Journal article

VL - 33

SP - 1176

EP - 1188

JO - Palliative Medicine

JF - Palliative Medicine

SN - 0269-2163

IS - 9

ER -