Rights statement: This is an Accepted Manuscript of an article published by Taylor & Francis in Disability and Rehabilitation on 11/04/2019, available online: https://www.tandfonline.com/doi/full/10.1080/09638288.2019.1574915
Accepted author manuscript, 328 KB, PDF document
Available under license: CC BY-NC: Creative Commons Attribution-NonCommercial 4.0 International License
Final published version
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Research output: Contribution to Journal/Magazine › Journal article › peer-review
}
TY - JOUR
T1 - Post-diagnostic lived experiences of individuals with essential tremor
AU - Moore, Jessica
AU - Eccles, Fiona Juliet Rosalind
AU - Simpson, Jane
N1 - This is an Accepted Manuscript of an article published by Taylor & Francis in Disability and Rehabilitation on 11/04/2019, available online: https://www.tandfonline.com/doi/full/10.1080/09638288.2019.1574915
PY - 2020/9/24
Y1 - 2020/9/24
N2 - Purpose: This research study aimed to explore the lived experience of individuals with essential tremor.Method: This study was qualitative in nature and informed by interpretative phenomenological analysis methodology. Semi-structured interviews were conducted with a relatively homogenous sample of nine individuals with a diagnosis of essential tremor.Results: Three major themes were constructed: “But they often look at you like you’re some drug addict or smackhead”: Social attitudes to difference; “I just couldn’t do it anymore”: The restrictive nature of essential tremor; and “You’ve got to cope; you’ve got to learn to fight different ways”: Rescuing some normality amid physical deterioration.Conclusion: This study offers much needed experiential understanding and interpretation of one of the most prevalent neurological conditions with regard to the emotions associated with specific day-to-day experiences, the restrictions placed upon everyday practicalities and the coping strategies employed. This study has highlighted the need for health care professionals to provide individuals with information regarding psychological support, and a need for more public awareness campaigns centred around essential tremor.
AB - Purpose: This research study aimed to explore the lived experience of individuals with essential tremor.Method: This study was qualitative in nature and informed by interpretative phenomenological analysis methodology. Semi-structured interviews were conducted with a relatively homogenous sample of nine individuals with a diagnosis of essential tremor.Results: Three major themes were constructed: “But they often look at you like you’re some drug addict or smackhead”: Social attitudes to difference; “I just couldn’t do it anymore”: The restrictive nature of essential tremor; and “You’ve got to cope; you’ve got to learn to fight different ways”: Rescuing some normality amid physical deterioration.Conclusion: This study offers much needed experiential understanding and interpretation of one of the most prevalent neurological conditions with regard to the emotions associated with specific day-to-day experiences, the restrictions placed upon everyday practicalities and the coping strategies employed. This study has highlighted the need for health care professionals to provide individuals with information regarding psychological support, and a need for more public awareness campaigns centred around essential tremor.
KW - Essential tremor
KW - experiences
KW - IPA
U2 - 10.1080/09638288.2019.1574915
DO - 10.1080/09638288.2019.1574915
M3 - Journal article
VL - 42
SP - 2894
EP - 2902
JO - Disability and Rehabilitation
JF - Disability and Rehabilitation
SN - 0963-8288
IS - 20
ER -