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    Rights statement: This is an Accepted Manuscript of an article published by Taylor & Francis in Disability and Society on 24/06/2017, available online: http://www.tandfonline.com/10.1080/09687599.2017.1339588

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Public health, research and rights: the perspectives of deliberation panels with politically and socially active disabled people

Research output: Contribution to Journal/Magazine › Journal article › peer-review

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Public health, research and rights: the perspectives of deliberation panels with politically and socially active disabled people. / Berghs, Maria; Atkin, Karl; Graham, Hilary et al.
In: Disability and Society, Vol. 32, No. 7, 2017, p. 945-965.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Harvard

Berghs, M, Atkin, K, Graham, H, Hatton, C & Thomas, C 2017, 'Public health, research and rights: the perspectives of deliberation panels with politically and socially active disabled people', Disability and Society, vol. 32, no. 7, pp. 945-965. https://doi.org/10.1080/09687599.2017.1339588

APA

Berghs, M., Atkin, K., Graham, H., Hatton, C., & Thomas, C. (2017). Public health, research and rights: the perspectives of deliberation panels with politically and socially active disabled people. Disability and Society, 32(7), 945-965. https://doi.org/10.1080/09687599.2017.1339588

Vancouver

Berghs M, Atkin K, Graham H, Hatton C, Thomas C. Public health, research and rights: the perspectives of deliberation panels with politically and socially active disabled people. Disability and Society. 2017;32(7):945-965. Epub 2017 Jun 24. doi: 10.1080/09687599.2017.1339588

Author

Berghs, Maria ; Atkin, Karl ; Graham, Hilary et al. / Public health, research and rights : the perspectives of deliberation panels with politically and socially active disabled people. In: Disability and Society. 2017 ; Vol. 32, No. 7. pp. 945-965.

Bibtex

@article{155f53bf5f5b4d12ad7be0fd2801d48e,
title = "Public health, research and rights: the perspectives of deliberation panels with politically and socially active disabled people",
abstract = "Public health research purports to provide the evidence base for policies, programmes and interventions to improve the health of a population. However, there is increasing awareness that the experiences of disabled people have played little part in informing this evidence base. This paper discusses one aspect of a study commissioned by England's National Institute for Health Research (NIHR) to review the implications for public health of theories and models of disability. This part of the study focused on the development of a tool or decision aid to promote ethical inclusion of disabled people in public health randomised controlled trials (RCTs) and evaluative research. The tool was introduced at four regional deliberating panels' involving politically and socially active disabled people. In addition, we held a panel with public health professionals. The deliberation panels debated how the focus of public health was narrowing, why disability was excluded and positive and negative issues with using rights to guide research and evaluative practice. Politically active disabled people argued for a social model of human rights to guide any rights based tools or decision aids in public health and disability research.",
keywords = "Disability, public health, evidence, rights, research and social model, INTELLECTUAL DISABILITIES, WORLD REPORT, KNOWLEDGE, FUTURE, POLICY, CARE, UK",
author = "Maria Berghs and Karl Atkin and Hilary Graham and Chris Hatton and Carol Thomas",
note = "This is an Accepted Manuscript of an article published by Taylor & Francis in Disability and Society on 24/06/2017, available online: http://www.tandfonline.com/10.1080/09687599.2017.1339588",
year = "2017",
doi = "10.1080/09687599.2017.1339588",
language = "English",
volume = "32",
pages = "945--965",
journal = "Disability and Society",
issn = "0968-7599",
publisher = "Routledge",
number = "7",

}

RIS

TY - JOUR

T1 - Public health, research and rights

T2 - the perspectives of deliberation panels with politically and socially active disabled people

AU - Berghs, Maria

AU - Atkin, Karl

AU - Graham, Hilary

AU - Hatton, Chris

AU - Thomas, Carol

N1 - This is an Accepted Manuscript of an article published by Taylor & Francis in Disability and Society on 24/06/2017, available online: http://www.tandfonline.com/10.1080/09687599.2017.1339588

PY - 2017

Y1 - 2017

N2 - Public health research purports to provide the evidence base for policies, programmes and interventions to improve the health of a population. However, there is increasing awareness that the experiences of disabled people have played little part in informing this evidence base. This paper discusses one aspect of a study commissioned by England's National Institute for Health Research (NIHR) to review the implications for public health of theories and models of disability. This part of the study focused on the development of a tool or decision aid to promote ethical inclusion of disabled people in public health randomised controlled trials (RCTs) and evaluative research. The tool was introduced at four regional deliberating panels' involving politically and socially active disabled people. In addition, we held a panel with public health professionals. The deliberation panels debated how the focus of public health was narrowing, why disability was excluded and positive and negative issues with using rights to guide research and evaluative practice. Politically active disabled people argued for a social model of human rights to guide any rights based tools or decision aids in public health and disability research.

AB - Public health research purports to provide the evidence base for policies, programmes and interventions to improve the health of a population. However, there is increasing awareness that the experiences of disabled people have played little part in informing this evidence base. This paper discusses one aspect of a study commissioned by England's National Institute for Health Research (NIHR) to review the implications for public health of theories and models of disability. This part of the study focused on the development of a tool or decision aid to promote ethical inclusion of disabled people in public health randomised controlled trials (RCTs) and evaluative research. The tool was introduced at four regional deliberating panels' involving politically and socially active disabled people. In addition, we held a panel with public health professionals. The deliberation panels debated how the focus of public health was narrowing, why disability was excluded and positive and negative issues with using rights to guide research and evaluative practice. Politically active disabled people argued for a social model of human rights to guide any rights based tools or decision aids in public health and disability research.

KW - Disability

KW - public health

KW - evidence

KW - rights

KW - research and social model

KW - INTELLECTUAL DISABILITIES

KW - WORLD REPORT

KW - KNOWLEDGE

KW - FUTURE

KW - POLICY

KW - CARE

KW - UK

U2 - 10.1080/09687599.2017.1339588

DO - 10.1080/09687599.2017.1339588

M3 - Journal article

VL - 32

SP - 945

EP - 965

JO - Disability and Society

JF - Disability and Society

SN - 0968-7599

IS - 7

ER -