TY - JOUR

T1 - Public involvement in research within care homes

T2 - benefits and challenges in the APPROACH study

AU - Froggatt, Katherine Alison

AU - Goodman, Claire

AU - Morbey, Hazel

AU - Davies, Sue L.

AU - Masey, Helen

AU - Dickinson, Angela

AU - Martin, Wendy

AU - Victor, Christina

PY - 2016/12

Y1 - 2016/12

N2 - BackgroundPublic involvement in research (PIR) can improve research design and recruitment. Less is known about how PIR enhances the experience of participation and enriches the data collection process. In a study to evaluate how UK care homes and primary health-care services achieve integrated working to promote older people’s health, PIR was integrated throughout the researchprocesses.ObjectivesThis paper aims to present one way in which PIR has been integrated into the design and delivery of a multisite research study based in care homes.DesignA prospective case study design, with an embedded qualitative evaluation of PIR activity.Setting and participants Data collection was undertaken in six care homes in three sites in England. Six PIR members participated: all had prior personal or work experience in care homes.Data collectionQualitative data collection involved discussion groups, and site-specific meetings to review experiences of participation, benefits and challenges, and completion of structured fieldworknotes after each care home visit.ResultsPIR members supported recruitment, resident and staff interviews and participated in data interpretation. Benefits of PIR work were resident engagement that minimized distress and madebest use of limited research resources. Challenges concerned communication and scheduling. Researcher support for PIR involvement was resource intensive.Discussion and conclusions Clearly defined roles with identified training and support facilitated involvement in different aspects of the data collection process. This can also ensure that vulnerable older people who participate in research have a positive experience that reinforces the value of their views.

AB - BackgroundPublic involvement in research (PIR) can improve research design and recruitment. Less is known about how PIR enhances the experience of participation and enriches the data collection process. In a study to evaluate how UK care homes and primary health-care services achieve integrated working to promote older people’s health, PIR was integrated throughout the researchprocesses.ObjectivesThis paper aims to present one way in which PIR has been integrated into the design and delivery of a multisite research study based in care homes.DesignA prospective case study design, with an embedded qualitative evaluation of PIR activity.Setting and participants Data collection was undertaken in six care homes in three sites in England. Six PIR members participated: all had prior personal or work experience in care homes.Data collectionQualitative data collection involved discussion groups, and site-specific meetings to review experiences of participation, benefits and challenges, and completion of structured fieldworknotes after each care home visit.ResultsPIR members supported recruitment, resident and staff interviews and participated in data interpretation. Benefits of PIR work were resident engagement that minimized distress and madebest use of limited research resources. Challenges concerned communication and scheduling. Researcher support for PIR involvement was resource intensive.Discussion and conclusions Clearly defined roles with identified training and support facilitated involvement in different aspects of the data collection process. This can also ensure that vulnerable older people who participate in research have a positive experience that reinforces the value of their views.

KW - care homes

KW - health and social care research,

KW - older people

KW - patient and public involvement

U2 - 10.1111/hex.12431

DO - 10.1111/hex.12431

M3 - Journal article

VL - 19

SP - 1336

EP - 1345

JO - Health Expectations

JF - Health Expectations

SN - 1369-6513

IS - 6

ER -