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Reconciling informed consent and “do no harm”: ethical challenges in palliative care research and practice in COPD

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Standard

Reconciling informed consent and “do no harm” : ethical challenges in palliative care research and practice in COPD. / Gardiner, Clare; Barnes, S; Small, N.; Gott, M.; Payne, Sheila; Halpin, D.; Seamark, D.

In: Palliative Medicine, Vol. 24, No. 5, 07.2010, p. 469-472.

Research output: Contribution to journalJournal articlepeer-review

Harvard

Gardiner, C, Barnes, S, Small, N, Gott, M, Payne, S, Halpin, D & Seamark, D 2010, 'Reconciling informed consent and “do no harm”: ethical challenges in palliative care research and practice in COPD', Palliative Medicine, vol. 24, no. 5, pp. 469-472. https://doi.org/10.1177/0269216310367536

APA

Gardiner, C., Barnes, S., Small, N., Gott, M., Payne, S., Halpin, D., & Seamark, D. (2010). Reconciling informed consent and “do no harm”: ethical challenges in palliative care research and practice in COPD. Palliative Medicine, 24(5), 469-472. https://doi.org/10.1177/0269216310367536

Vancouver

Author

Gardiner, Clare ; Barnes, S ; Small, N. ; Gott, M. ; Payne, Sheila ; Halpin, D. ; Seamark, D. / Reconciling informed consent and “do no harm” : ethical challenges in palliative care research and practice in COPD. In: Palliative Medicine. 2010 ; Vol. 24, No. 5. pp. 469-472.

Bibtex

@article{aa4238004d964f50b49ac3942b63df39,
title = "Reconciling informed consent and “do no harm”: ethical challenges in palliative care research and practice in COPD",
abstract = "The challenges associated with patient-based research in palliative care are well documented. This paper focuses on the ethical challenges and discusses them in the context of a pilot study to explore the palliative-care needs of patients with moderate and severe chronic obstructive pulmonary disease. The main ethical challenge encountered related to problems surrounding the use of terminology, specifically the terms {\textquoteleft}palliative care{\textquoteright} and {\textquoteleft}chronic obstructive pulmonary disease{\textquoteright}. The approving ethics committee specified that these terms be removed from all patient materials in order to protect patients from undue distress. The impact of this ethical advice on patients{\textquoteright} ability to give fully informed consent is discussed. This paper highlights a requirement for appropriately resourced and well-managed studies in palliative care, and identifies a need for the development of appropriate strategies in order to ensure the informed participation of patients with non-cancer diagnoses in palliative-care research.",
keywords = "Ethical challenges, informed consent , COPD",
author = "Clare Gardiner and S Barnes and N. Small and M. Gott and Sheila Payne and D. Halpin and D. Seamark",
year = "2010",
month = jul,
doi = "10.1177/0269216310367536",
language = "English",
volume = "24",
pages = "469--472",
journal = "Palliative Medicine",
issn = "0269-2163",
publisher = "SAGE Publications Ltd",
number = "5",

}

RIS

TY - JOUR

T1 - Reconciling informed consent and “do no harm”

T2 - ethical challenges in palliative care research and practice in COPD

AU - Gardiner, Clare

AU - Barnes, S

AU - Small, N.

AU - Gott, M.

AU - Payne, Sheila

AU - Halpin, D.

AU - Seamark, D.

PY - 2010/7

Y1 - 2010/7

N2 - The challenges associated with patient-based research in palliative care are well documented. This paper focuses on the ethical challenges and discusses them in the context of a pilot study to explore the palliative-care needs of patients with moderate and severe chronic obstructive pulmonary disease. The main ethical challenge encountered related to problems surrounding the use of terminology, specifically the terms ‘palliative care’ and ‘chronic obstructive pulmonary disease’. The approving ethics committee specified that these terms be removed from all patient materials in order to protect patients from undue distress. The impact of this ethical advice on patients’ ability to give fully informed consent is discussed. This paper highlights a requirement for appropriately resourced and well-managed studies in palliative care, and identifies a need for the development of appropriate strategies in order to ensure the informed participation of patients with non-cancer diagnoses in palliative-care research.

AB - The challenges associated with patient-based research in palliative care are well documented. This paper focuses on the ethical challenges and discusses them in the context of a pilot study to explore the palliative-care needs of patients with moderate and severe chronic obstructive pulmonary disease. The main ethical challenge encountered related to problems surrounding the use of terminology, specifically the terms ‘palliative care’ and ‘chronic obstructive pulmonary disease’. The approving ethics committee specified that these terms be removed from all patient materials in order to protect patients from undue distress. The impact of this ethical advice on patients’ ability to give fully informed consent is discussed. This paper highlights a requirement for appropriately resourced and well-managed studies in palliative care, and identifies a need for the development of appropriate strategies in order to ensure the informed participation of patients with non-cancer diagnoses in palliative-care research.

KW - Ethical challenges

KW - informed consent

KW - COPD

U2 - 10.1177/0269216310367536

DO - 10.1177/0269216310367536

M3 - Journal article

VL - 24

SP - 469

EP - 472

JO - Palliative Medicine

JF - Palliative Medicine

SN - 0269-2163

IS - 5

ER -