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Research, recruitment and observational data collection in care homes: Lessons from the PACE study

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Research, recruitment and observational data collection in care homes : Lessons from the PACE study. / Moore, D.C.; Payne, S.; Van Den Block, L.; Ten Koppel, M.; Szczerbińska, K.; Froggatt, K.; PACE consortium.

In: BMC Research Notes, Vol. 12, No. 1, 508, 14.08.2019.

Research output: Contribution to journalJournal articlepeer-review

Harvard

Moore, DC, Payne, S, Van Den Block, L, Ten Koppel, M, Szczerbińska, K, Froggatt, K & PACE consortium 2019, 'Research, recruitment and observational data collection in care homes: Lessons from the PACE study', BMC Research Notes, vol. 12, no. 1, 508. https://doi.org/10.1186/s13104-019-4543-2

APA

Moore, D. C., Payne, S., Van Den Block, L., Ten Koppel, M., Szczerbińska, K., Froggatt, K., & PACE consortium (2019). Research, recruitment and observational data collection in care homes: Lessons from the PACE study. BMC Research Notes, 12(1), [508]. https://doi.org/10.1186/s13104-019-4543-2

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Author

Moore, D.C. ; Payne, S. ; Van Den Block, L. ; Ten Koppel, M. ; Szczerbińska, K. ; Froggatt, K. ; PACE consortium. / Research, recruitment and observational data collection in care homes : Lessons from the PACE study. In: BMC Research Notes. 2019 ; Vol. 12, No. 1.

Bibtex

@article{30f4a96f60454e4b8c4f41e25075a538,
title = "Research, recruitment and observational data collection in care homes: Lessons from the PACE study",
abstract = "ObjectiveCare homes are a common place of death for older adults, especially those with complex health needs or dementia. Representative, internationally comparable data on care home facilities and their residents is needed to monitor health and wellbeing in this population. Identification and collection of data from care homes can be challenging and often underreported. This paper draws on the experiences of the PACE study, a cross sectional mortality follow back study conducted in six European countries.ResultsMultiple challenges were encountered in creating a sampling framework and contacting, recruiting and retaining care homes in the PACE study. Recruiting a randomly identified, representative cohort from a stratified sampling framework was problematic, as was engaging with care homes to ensure high response rates. Variation in the funding of care homes across the six countries involved in the study may explain the additional challenges encountered in England. Awareness of the challenges encountered in England in implementing an international study in care homes can inform the design and implementation of future studies within care homes. Further discussion is needed to determine the barriers and facilitators to conducting research in care homes, and how this is shaped by the focus of the study.",
keywords = "Care home, Nursing home, Long term care facility, Palliative care, Observational study, Epidemiology",
author = "D.C. Moore and S. Payne and {Van Den Block}, L. and {Ten Koppel}, M. and K. Szczerbi{\'n}ska and K. Froggatt and {PACE consortium}",
year = "2019",
month = aug,
day = "14",
doi = "10.1186/s13104-019-4543-2",
language = "English",
volume = "12",
journal = "BMC Research Notes",
issn = "1756-0500",
publisher = "BioMed Central",
number = "1",

}

RIS

TY - JOUR

T1 - Research, recruitment and observational data collection in care homes

T2 - Lessons from the PACE study

AU - Moore, D.C.

AU - Payne, S.

AU - Van Den Block, L.

AU - Ten Koppel, M.

AU - Szczerbińska, K.

AU - Froggatt, K.

AU - PACE consortium

PY - 2019/8/14

Y1 - 2019/8/14

N2 - ObjectiveCare homes are a common place of death for older adults, especially those with complex health needs or dementia. Representative, internationally comparable data on care home facilities and their residents is needed to monitor health and wellbeing in this population. Identification and collection of data from care homes can be challenging and often underreported. This paper draws on the experiences of the PACE study, a cross sectional mortality follow back study conducted in six European countries.ResultsMultiple challenges were encountered in creating a sampling framework and contacting, recruiting and retaining care homes in the PACE study. Recruiting a randomly identified, representative cohort from a stratified sampling framework was problematic, as was engaging with care homes to ensure high response rates. Variation in the funding of care homes across the six countries involved in the study may explain the additional challenges encountered in England. Awareness of the challenges encountered in England in implementing an international study in care homes can inform the design and implementation of future studies within care homes. Further discussion is needed to determine the barriers and facilitators to conducting research in care homes, and how this is shaped by the focus of the study.

AB - ObjectiveCare homes are a common place of death for older adults, especially those with complex health needs or dementia. Representative, internationally comparable data on care home facilities and their residents is needed to monitor health and wellbeing in this population. Identification and collection of data from care homes can be challenging and often underreported. This paper draws on the experiences of the PACE study, a cross sectional mortality follow back study conducted in six European countries.ResultsMultiple challenges were encountered in creating a sampling framework and contacting, recruiting and retaining care homes in the PACE study. Recruiting a randomly identified, representative cohort from a stratified sampling framework was problematic, as was engaging with care homes to ensure high response rates. Variation in the funding of care homes across the six countries involved in the study may explain the additional challenges encountered in England. Awareness of the challenges encountered in England in implementing an international study in care homes can inform the design and implementation of future studies within care homes. Further discussion is needed to determine the barriers and facilitators to conducting research in care homes, and how this is shaped by the focus of the study.

KW - Care home

KW - Nursing home

KW - Long term care facility

KW - Palliative care

KW - Observational study

KW - Epidemiology

U2 - 10.1186/s13104-019-4543-2

DO - 10.1186/s13104-019-4543-2

M3 - Journal article

VL - 12

JO - BMC Research Notes

JF - BMC Research Notes

SN - 1756-0500

IS - 1

M1 - 508

ER -