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Self-report measures assessing aspects of personal recovery in relatives and other informal carers of those with psychosis: a systematic review

Research output: Contribution to Journal/Magazine › Journal article › peer-review

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Self-report measures assessing aspects of personal recovery in relatives and other informal carers of those with psychosis: a systematic review. / Hilton, Claire; Jones, Steven; Akers, Nadia et al.
In: Frontiers in Psychology, Vol. 13, 926981, 15.07.2022.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Harvard

Hilton, C, Jones, S, Akers, N, Panagaki, A & Sellwood, B 2022, 'Self-report measures assessing aspects of personal recovery in relatives and other informal carers of those with psychosis: a systematic review', Frontiers in Psychology, vol. 13, 926981. https://doi.org/10.3389/fpsyg.2022.926981

APA

Hilton, C., Jones, S., Akers, N., Panagaki, A., & Sellwood, B. (2022). Self-report measures assessing aspects of personal recovery in relatives and other informal carers of those with psychosis: a systematic review. Frontiers in Psychology, 13, Article 926981. https://doi.org/10.3389/fpsyg.2022.926981

Vancouver

Hilton C, Jones S, Akers N, Panagaki A, Sellwood B. Self-report measures assessing aspects of personal recovery in relatives and other informal carers of those with psychosis: a systematic review. Frontiers in Psychology. 2022 Jul 15;13:926981. doi: 10.3389/fpsyg.2022.926981

Author

Hilton, Claire ; Jones, Steven ; Akers, Nadia et al. / Self-report measures assessing aspects of personal recovery in relatives and other informal carers of those with psychosis : a systematic review. In: Frontiers in Psychology. 2022 ; Vol. 13.

Bibtex

@article{14cfc5b7d12942a6a4701961ed49a30a,
title = "Self-report measures assessing aspects of personal recovery in relatives and other informal carers of those with psychosis: a systematic review",
abstract = "Background: Providing long-term care for a family member with psychosis can cause significant distress for informal carers due to the trauma of seeing their loved one in crisis, dealing with the difficult symptoms of psychosis and the burden of providing care. An important aspect of carers{\textquoteright} adjustment can be construed as their personal recovery in relation to having a relative affected by psychosis. Self-report measures are increasingly used to assess personal recovery in service users, but less is known about the utility of such tools for carers. Aims: This review aimed to identify all self-report measures assessing aspects of carers{\textquoteright} personal recovery, and to quality appraise them. Methods: Academic Search Ultimate, CINAHL, MEDLINE, PsychINFO and PubMed were searched for articles that reported the development of self-report measures created for carers of those with psychosis. Studies were appraised using the COnsensus-based Standards for the Selection of health status Measurement INstruments (COSMIN) checklist. A Levels of Evidence synthesis provided overall quality scores for each measure. Results: The search identified 3,154 articles for initial screening. From a total of 322 full text articles, 95 self-report measures were identified with a final 10 measures included for the quality assessment showing varying levels of psychometric rigor. Conclusions: The results show that no single self-report measure is currently available for use to comprehensively assess personal recovery for carers, highlighting the need for further research in this area and the development of a new measure. ",
keywords = "Caregivers, Psychosis, Schizophrenia, Recovery approach, Self-report measures, COSMIN checklist",
author = "Claire Hilton and Steven Jones and Nadia Akers and Aikaterini Panagaki and Bill Sellwood",
year = "2022",
month = jul,
day = "15",
doi = "10.3389/fpsyg.2022.926981",
language = "English",
volume = "13",
journal = "Frontiers in Psychology",
issn = "1664-1078",
publisher = "Frontiers Media S.A.",

}

RIS

TY - JOUR

T1 - Self-report measures assessing aspects of personal recovery in relatives and other informal carers of those with psychosis

T2 - a systematic review

AU - Hilton, Claire

AU - Jones, Steven

AU - Akers, Nadia

AU - Panagaki, Aikaterini

AU - Sellwood, Bill

PY - 2022/7/15

Y1 - 2022/7/15

N2 - Background: Providing long-term care for a family member with psychosis can cause significant distress for informal carers due to the trauma of seeing their loved one in crisis, dealing with the difficult symptoms of psychosis and the burden of providing care. An important aspect of carers’ adjustment can be construed as their personal recovery in relation to having a relative affected by psychosis. Self-report measures are increasingly used to assess personal recovery in service users, but less is known about the utility of such tools for carers. Aims: This review aimed to identify all self-report measures assessing aspects of carers’ personal recovery, and to quality appraise them. Methods: Academic Search Ultimate, CINAHL, MEDLINE, PsychINFO and PubMed were searched for articles that reported the development of self-report measures created for carers of those with psychosis. Studies were appraised using the COnsensus-based Standards for the Selection of health status Measurement INstruments (COSMIN) checklist. A Levels of Evidence synthesis provided overall quality scores for each measure. Results: The search identified 3,154 articles for initial screening. From a total of 322 full text articles, 95 self-report measures were identified with a final 10 measures included for the quality assessment showing varying levels of psychometric rigor. Conclusions: The results show that no single self-report measure is currently available for use to comprehensively assess personal recovery for carers, highlighting the need for further research in this area and the development of a new measure.

AB - Background: Providing long-term care for a family member with psychosis can cause significant distress for informal carers due to the trauma of seeing their loved one in crisis, dealing with the difficult symptoms of psychosis and the burden of providing care. An important aspect of carers’ adjustment can be construed as their personal recovery in relation to having a relative affected by psychosis. Self-report measures are increasingly used to assess personal recovery in service users, but less is known about the utility of such tools for carers. Aims: This review aimed to identify all self-report measures assessing aspects of carers’ personal recovery, and to quality appraise them. Methods: Academic Search Ultimate, CINAHL, MEDLINE, PsychINFO and PubMed were searched for articles that reported the development of self-report measures created for carers of those with psychosis. Studies were appraised using the COnsensus-based Standards for the Selection of health status Measurement INstruments (COSMIN) checklist. A Levels of Evidence synthesis provided overall quality scores for each measure. Results: The search identified 3,154 articles for initial screening. From a total of 322 full text articles, 95 self-report measures were identified with a final 10 measures included for the quality assessment showing varying levels of psychometric rigor. Conclusions: The results show that no single self-report measure is currently available for use to comprehensively assess personal recovery for carers, highlighting the need for further research in this area and the development of a new measure.

KW - Caregivers

KW - Psychosis

KW - Schizophrenia

KW - Recovery approach

KW - Self-report measures

KW - COSMIN checklist

U2 - 10.3389/fpsyg.2022.926981

DO - 10.3389/fpsyg.2022.926981

M3 - Journal article

C2 - 35911034

VL - 13

JO - Frontiers in Psychology

JF - Frontiers in Psychology

SN - 1664-1078

M1 - 926981

ER -