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Stigma, coping strategies, distress and wellbeing in individuals with cervical dystonia: a cross-sectional study

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Stigma, coping strategies, distress and wellbeing in individuals with cervical dystonia: a cross-sectional study. / Gowling, Helen; O'Keeffe, Fiadhnait; Eccles, Fiona.
In: Psychology, Health and Medicine, Vol. 29, No. 7, 08.08.2024, p. 1313-1330.

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Gowling H, O'Keeffe F, Eccles F. Stigma, coping strategies, distress and wellbeing in individuals with cervical dystonia: a cross-sectional study. Psychology, Health and Medicine. 2024 Aug 8;29(7):1313-1330. Epub 2024 Jan 22. doi: 10.1080/13548506.2024.2305172

Author

Gowling, Helen ; O'Keeffe, Fiadhnait ; Eccles, Fiona. / Stigma, coping strategies, distress and wellbeing in individuals with cervical dystonia : a cross-sectional study. In: Psychology, Health and Medicine. 2024 ; Vol. 29, No. 7. pp. 1313-1330.

Bibtex

@article{7ba20e220bc7465bad814bafd71a4a67,
title = "Stigma, coping strategies, distress and wellbeing in individuals with cervical dystonia: a cross-sectional study",
abstract = "Cervical dystonia (CD) is a movement disorder which causes sustained muscle contractions in the neck leading to abnormal postures and repetitive movements. As it is a highly visible condition, people with CD can experience stigma, which may lead to unhelpful coping strategies and increased psychological distress. This study investigated whether adaptive and maladaptive coping strategies mediate the relationship between stigma and psychological outcomes in people with CD. A total of 114 adults with CD completed measures of stigma, coping, health-related quality of life (HRQOL), psychological distress (depression, anxiety, stress), and psychological wellbeing at one time point. Participants{\textquoteright} levels of distress were high, compared to the general population. Correlational analyses showed increased stigma and maladaptive coping (e.g. substance use, behavioural disengagement) were both significantly related to increased distress, lower wellbeing and lower HRQOL, whereas higher adaptive coping (e.g. acceptance, humour) was only related to higher wellbeing. In a parallel mediation model, maladaptive coping strategies mediated the relationship between stigma and distress, HRQOL and wellbeing, but adaptive coping strategies did not. These findings suggest that maladaptive coping may play an important role in explaining the relationship between stigma and some aspects of distress and wellbeing in CD. Interventions which focus on reducing different aspects of maladaptive coping may be helpful to improve wellbeing as well as reducing stigma.",
keywords = "Cervical dystonia, spasmodic torticollis, stigma, coping, psychological wellbeing",
author = "Helen Gowling and Fiadhnait O'Keeffe and Fiona Eccles",
year = "2024",
month = aug,
day = "8",
doi = "10.1080/13548506.2024.2305172",
language = "English",
volume = "29",
pages = "1313--1330",
journal = "Psychology, Health and Medicine",
issn = "1354-8506",
publisher = "Routledge",
number = "7",

}

RIS

TY - JOUR

T1 - Stigma, coping strategies, distress and wellbeing in individuals with cervical dystonia

T2 - a cross-sectional study

AU - Gowling, Helen

AU - O'Keeffe, Fiadhnait

AU - Eccles, Fiona

PY - 2024/8/8

Y1 - 2024/8/8

N2 - Cervical dystonia (CD) is a movement disorder which causes sustained muscle contractions in the neck leading to abnormal postures and repetitive movements. As it is a highly visible condition, people with CD can experience stigma, which may lead to unhelpful coping strategies and increased psychological distress. This study investigated whether adaptive and maladaptive coping strategies mediate the relationship between stigma and psychological outcomes in people with CD. A total of 114 adults with CD completed measures of stigma, coping, health-related quality of life (HRQOL), psychological distress (depression, anxiety, stress), and psychological wellbeing at one time point. Participants’ levels of distress were high, compared to the general population. Correlational analyses showed increased stigma and maladaptive coping (e.g. substance use, behavioural disengagement) were both significantly related to increased distress, lower wellbeing and lower HRQOL, whereas higher adaptive coping (e.g. acceptance, humour) was only related to higher wellbeing. In a parallel mediation model, maladaptive coping strategies mediated the relationship between stigma and distress, HRQOL and wellbeing, but adaptive coping strategies did not. These findings suggest that maladaptive coping may play an important role in explaining the relationship between stigma and some aspects of distress and wellbeing in CD. Interventions which focus on reducing different aspects of maladaptive coping may be helpful to improve wellbeing as well as reducing stigma.

AB - Cervical dystonia (CD) is a movement disorder which causes sustained muscle contractions in the neck leading to abnormal postures and repetitive movements. As it is a highly visible condition, people with CD can experience stigma, which may lead to unhelpful coping strategies and increased psychological distress. This study investigated whether adaptive and maladaptive coping strategies mediate the relationship between stigma and psychological outcomes in people with CD. A total of 114 adults with CD completed measures of stigma, coping, health-related quality of life (HRQOL), psychological distress (depression, anxiety, stress), and psychological wellbeing at one time point. Participants’ levels of distress were high, compared to the general population. Correlational analyses showed increased stigma and maladaptive coping (e.g. substance use, behavioural disengagement) were both significantly related to increased distress, lower wellbeing and lower HRQOL, whereas higher adaptive coping (e.g. acceptance, humour) was only related to higher wellbeing. In a parallel mediation model, maladaptive coping strategies mediated the relationship between stigma and distress, HRQOL and wellbeing, but adaptive coping strategies did not. These findings suggest that maladaptive coping may play an important role in explaining the relationship between stigma and some aspects of distress and wellbeing in CD. Interventions which focus on reducing different aspects of maladaptive coping may be helpful to improve wellbeing as well as reducing stigma.

KW - Cervical dystonia

KW - spasmodic torticollis

KW - stigma

KW - coping

KW - psychological wellbeing

U2 - 10.1080/13548506.2024.2305172

DO - 10.1080/13548506.2024.2305172

M3 - Journal article

VL - 29

SP - 1313

EP - 1330

JO - Psychology, Health and Medicine

JF - Psychology, Health and Medicine

SN - 1354-8506

IS - 7

ER -