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Tea, talk and technology: patient and public involvement to improve connected health ‘wearables’ research in dementia

Research output: Contribution to Journal/Magazine › Journal article › peer-review

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Tea, talk and technology: patient and public involvement to improve connected health ‘wearables’ research in dementia. / Hassan, Lamiece; Swarbrick, Caroline; Sanders, Caroline et al.
In: Research Involvement and Engagement, Vol. 3, 12, 01.08.2017.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Harvard

Hassan, L, Swarbrick, C, Sanders, C, Parker, A, Machin, M, Tully, M & Ainsworth, J 2017, 'Tea, talk and technology: patient and public involvement to improve connected health ‘wearables’ research in dementia', Research Involvement and Engagement, vol. 3, 12. https://doi.org/10.1186/s40900-017-0063-1

APA

Hassan, L., Swarbrick, C., Sanders, C., Parker, A., Machin, M., Tully, M., & Ainsworth, J. (2017). Tea, talk and technology: patient and public involvement to improve connected health ‘wearables’ research in dementia. Research Involvement and Engagement, 3, Article 12. https://doi.org/10.1186/s40900-017-0063-1

Vancouver

Hassan L, Swarbrick C, Sanders C, Parker A, Machin M, Tully M et al. Tea, talk and technology: patient and public involvement to improve connected health ‘wearables’ research in dementia. Research Involvement and Engagement. 2017 Aug 1;3:12. doi: 10.1186/s40900-017-0063-1

Author

Hassan, Lamiece ; Swarbrick, Caroline ; Sanders, Caroline et al. / Tea, talk and technology: patient and public involvement to improve connected health ‘wearables’ research in dementia. In: Research Involvement and Engagement. 2017 ; Vol. 3.

Bibtex

@article{c490830911f04b9990b0a2e727527b2d,
title = "Tea, talk and technology: patient and public involvement to improve connected health {\textquoteleft}wearables{\textquoteright} research in dementia",
abstract = "Background: Increasingly, researchers are recognising the potential for connected health devices, including smartphones and smartwatches, to generate high resolution data about patterns of daily activity and health outcomes. One aim of the Dementias Platform UK (DPUK) project is to provide researchers with a secure means to collect, collate and link data generated by such devices, thereby accelerating this type of research in the field of dementia. We aimed to involve members of the public in discussions about the acceptability and feasibility of different devices and research designs to inform the development of a device pool, software platform and written guidance to support future studies.Methods: Over 30 people attended a series of interactive workshops, drop-in sessions and meetings in Greater Manchester. This included people living with dementia and cognitive impairments, carers and people without memory problems. Discussions were tailored to suit different audiences and focused on the feasibility and acceptability of a range of different wearable devices and research designs. We also invited volunteers to borrow a device to test at home, enabling further insights from hands-on interactions with devices.Results: Discussions revealed that people were supportive of connected healthdementia research in principle, provided they gave informed consent and thatdevices were discreet, comfortable and easy to use. Moreover, they recommended technical support and regular feedback on study progress to encourage ongoing participation.Conclusion: By using a range of discussion-based and practical activities, we found it was feasible to involve people affected by dementia and use their insights to shape the development of a software platform and device pool to support future connected health dementia research. We recommend that researchers planning such studies in future pay adequate attention to designing suitable participant information, technical support and mechanisms of providing study progress updates to support sustained engagement from participants.",
keywords = "PPI, Patient and public involvement, public engagement, dementia, m-health, Health Informatics, e-Health, Wearable, Physical activity",
author = "Lamiece Hassan and Caroline Swarbrick and Caroline Sanders and Angela Parker and Matthew Machin and Mary Tully and John Ainsworth",
year = "2017",
month = aug,
day = "1",
doi = "10.1186/s40900-017-0063-1",
language = "English",
volume = "3",
journal = "Research Involvement and Engagement",
issn = "2056-7529",
publisher = "BioMed Central Ltd.",

}

RIS

TY - JOUR

T1 - Tea, talk and technology: patient and public involvement to improve connected health ‘wearables’ research in dementia

AU - Hassan, Lamiece

AU - Swarbrick, Caroline

AU - Sanders, Caroline

AU - Parker, Angela

AU - Machin, Matthew

AU - Tully, Mary

AU - Ainsworth, John

PY - 2017/8/1

Y1 - 2017/8/1

N2 - Background: Increasingly, researchers are recognising the potential for connected health devices, including smartphones and smartwatches, to generate high resolution data about patterns of daily activity and health outcomes. One aim of the Dementias Platform UK (DPUK) project is to provide researchers with a secure means to collect, collate and link data generated by such devices, thereby accelerating this type of research in the field of dementia. We aimed to involve members of the public in discussions about the acceptability and feasibility of different devices and research designs to inform the development of a device pool, software platform and written guidance to support future studies.Methods: Over 30 people attended a series of interactive workshops, drop-in sessions and meetings in Greater Manchester. This included people living with dementia and cognitive impairments, carers and people without memory problems. Discussions were tailored to suit different audiences and focused on the feasibility and acceptability of a range of different wearable devices and research designs. We also invited volunteers to borrow a device to test at home, enabling further insights from hands-on interactions with devices.Results: Discussions revealed that people were supportive of connected healthdementia research in principle, provided they gave informed consent and thatdevices were discreet, comfortable and easy to use. Moreover, they recommended technical support and regular feedback on study progress to encourage ongoing participation.Conclusion: By using a range of discussion-based and practical activities, we found it was feasible to involve people affected by dementia and use their insights to shape the development of a software platform and device pool to support future connected health dementia research. We recommend that researchers planning such studies in future pay adequate attention to designing suitable participant information, technical support and mechanisms of providing study progress updates to support sustained engagement from participants.

AB - Background: Increasingly, researchers are recognising the potential for connected health devices, including smartphones and smartwatches, to generate high resolution data about patterns of daily activity and health outcomes. One aim of the Dementias Platform UK (DPUK) project is to provide researchers with a secure means to collect, collate and link data generated by such devices, thereby accelerating this type of research in the field of dementia. We aimed to involve members of the public in discussions about the acceptability and feasibility of different devices and research designs to inform the development of a device pool, software platform and written guidance to support future studies.Methods: Over 30 people attended a series of interactive workshops, drop-in sessions and meetings in Greater Manchester. This included people living with dementia and cognitive impairments, carers and people without memory problems. Discussions were tailored to suit different audiences and focused on the feasibility and acceptability of a range of different wearable devices and research designs. We also invited volunteers to borrow a device to test at home, enabling further insights from hands-on interactions with devices.Results: Discussions revealed that people were supportive of connected healthdementia research in principle, provided they gave informed consent and thatdevices were discreet, comfortable and easy to use. Moreover, they recommended technical support and regular feedback on study progress to encourage ongoing participation.Conclusion: By using a range of discussion-based and practical activities, we found it was feasible to involve people affected by dementia and use their insights to shape the development of a software platform and device pool to support future connected health dementia research. We recommend that researchers planning such studies in future pay adequate attention to designing suitable participant information, technical support and mechanisms of providing study progress updates to support sustained engagement from participants.

KW - PPI

KW - Patient and public involvement

KW - public engagement

KW - dementia

KW - m-health

KW - Health Informatics

KW - e-Health

KW - Wearable

KW - Physical activity

U2 - 10.1186/s40900-017-0063-1

DO - 10.1186/s40900-017-0063-1

M3 - Journal article

VL - 3

JO - Research Involvement and Engagement

JF - Research Involvement and Engagement

SN - 2056-7529

M1 - 12

ER -