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The experience of informal caregivers in providing patient care in hospitals in low- and middle-income countries: A qualitative meta-synthesis

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The experience of informal caregivers in providing patient care in hospitals in low- and middle-income countries: A qualitative meta-synthesis. / Hogan, Unarose; Bingley, Amanda; Morbey, Hazel et al.
In: Journal of Health Services Research and Policy, Vol. 27, No. 4, 31.10.2022, p. 321-329.

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Hogan U, Bingley A, Morbey H, Walshe C. The experience of informal caregivers in providing patient care in hospitals in low- and middle-income countries: A qualitative meta-synthesis. Journal of Health Services Research and Policy. 2022 Oct 31;27(4):321-329. Epub 2022 May 19. doi: 10.1177/13558196221101968

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@article{37ac17b3b61d456fb88f2c3561d9c246,
title = "The experience of informal caregivers in providing patient care in hospitals in low- and middle-income countries: A qualitative meta-synthesis",
abstract = "Objective In low- and middle-income countries, informal caregivers frequently stay in hospitals and perform patient care tasks typically performed by nurses in other contexts. This article reviews qualitative research on these informal caregivers, to gain insight and understanding of their experiences. Methods We undertook a qualitative meta-synthesis. Relevant literature was identified through searches of electronic databases in 2021. Thematic analysis was conducted to facilitate the identification of conceptual relationships to formulate synthesised findings. Results Twenty-four studies met the inclusion criteria – 13 from Sub-Saharan Africa, five from Bangladesh, two from India, two from Iran, one from Brazil and one from Peru. Three themes were generated from the meta-synthesis: (1) The unwelcome but tolerated guest, (2) Enduring personal sacrifice and (3) Fulfilling familial obligations. These themes emphasised the significant burden associated with the hospital caregiving experience and highlighted the implicit reliance on informal caregivers in low- and middle-income countries. Conclusions Informal caregivers perform an essential caregiving role, yet occupy a peripheral and voluntary space in hospitals. There is a clear need to support informal caregivers so that they can safely perform their tasks.",
keywords = "Low- and middle-income countries, informal caregivers, systematic review",
author = "Unarose Hogan and Amanda Bingley and Hazel Morbey and Catherine Walshe",
year = "2022",
month = oct,
day = "31",
doi = "10.1177/13558196221101968",
language = "English",
volume = "27",
pages = "321--329",
journal = "Journal of Health Services Research and Policy",
issn = "1355-8190",
publisher = "SAGE Publications Ltd",
number = "4",

}

RIS

TY - JOUR

T1 - The experience of informal caregivers in providing patient care in hospitals in low- and middle-income countries

T2 - A qualitative meta-synthesis

AU - Hogan, Unarose

AU - Bingley, Amanda

AU - Morbey, Hazel

AU - Walshe, Catherine

PY - 2022/10/31

Y1 - 2022/10/31

N2 - Objective In low- and middle-income countries, informal caregivers frequently stay in hospitals and perform patient care tasks typically performed by nurses in other contexts. This article reviews qualitative research on these informal caregivers, to gain insight and understanding of their experiences. Methods We undertook a qualitative meta-synthesis. Relevant literature was identified through searches of electronic databases in 2021. Thematic analysis was conducted to facilitate the identification of conceptual relationships to formulate synthesised findings. Results Twenty-four studies met the inclusion criteria – 13 from Sub-Saharan Africa, five from Bangladesh, two from India, two from Iran, one from Brazil and one from Peru. Three themes were generated from the meta-synthesis: (1) The unwelcome but tolerated guest, (2) Enduring personal sacrifice and (3) Fulfilling familial obligations. These themes emphasised the significant burden associated with the hospital caregiving experience and highlighted the implicit reliance on informal caregivers in low- and middle-income countries. Conclusions Informal caregivers perform an essential caregiving role, yet occupy a peripheral and voluntary space in hospitals. There is a clear need to support informal caregivers so that they can safely perform their tasks.

AB - Objective In low- and middle-income countries, informal caregivers frequently stay in hospitals and perform patient care tasks typically performed by nurses in other contexts. This article reviews qualitative research on these informal caregivers, to gain insight and understanding of their experiences. Methods We undertook a qualitative meta-synthesis. Relevant literature was identified through searches of electronic databases in 2021. Thematic analysis was conducted to facilitate the identification of conceptual relationships to formulate synthesised findings. Results Twenty-four studies met the inclusion criteria – 13 from Sub-Saharan Africa, five from Bangladesh, two from India, two from Iran, one from Brazil and one from Peru. Three themes were generated from the meta-synthesis: (1) The unwelcome but tolerated guest, (2) Enduring personal sacrifice and (3) Fulfilling familial obligations. These themes emphasised the significant burden associated with the hospital caregiving experience and highlighted the implicit reliance on informal caregivers in low- and middle-income countries. Conclusions Informal caregivers perform an essential caregiving role, yet occupy a peripheral and voluntary space in hospitals. There is a clear need to support informal caregivers so that they can safely perform their tasks.

KW - Low- and middle-income countries

KW - informal caregivers

KW - systematic review

U2 - 10.1177/13558196221101968

DO - 10.1177/13558196221101968

M3 - Review article

C2 - 35592881

VL - 27

SP - 321

EP - 329

JO - Journal of Health Services Research and Policy

JF - Journal of Health Services Research and Policy

SN - 1355-8190

IS - 4

ER -