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The experiences of being diagnosed with Parkinson’s Disease

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The experiences of being diagnosed with Parkinson’s Disease. / Warren, Emma; Eccles, Fiona Juliet Rosalind; Travers, Vicky; Simpson, Jane.

In: British Journal of Neuroscience Nursing, Vol. 12, No. 6, 12.2016, p. 288-296.

Research output: Contribution to journalJournal articlepeer-review

Harvard

Warren, E, Eccles, FJR, Travers, V & Simpson, J 2016, 'The experiences of being diagnosed with Parkinson’s Disease', British Journal of Neuroscience Nursing, vol. 12, no. 6, pp. 288-296. https://doi.org/10.12968/bjnn.2016.12.6.288

APA

Vancouver

Warren E, Eccles FJR, Travers V, Simpson J. The experiences of being diagnosed with Parkinson’s Disease. British Journal of Neuroscience Nursing. 2016 Dec;12(6):288-296. https://doi.org/10.12968/bjnn.2016.12.6.288

Author

Warren, Emma ; Eccles, Fiona Juliet Rosalind ; Travers, Vicky ; Simpson, Jane. / The experiences of being diagnosed with Parkinson’s Disease. In: British Journal of Neuroscience Nursing. 2016 ; Vol. 12, No. 6. pp. 288-296.

Bibtex

@article{c3d5e9cbaef948be8fab4cbd942f49ef,
title = "The experiences of being diagnosed with Parkinson{\textquoteright}s Disease",
abstract = "Being diagnosed with a chronic illness such as Parkinson{\textquoteright}s disease (PD) can have a considerable psychological impact on a person{\textquoteright}s life. However, this has been little explored and therefore it is unclear what support may be most beneficial at this time. This study therefore explored personal experiences of being diagnosed with PD. Six participants were interviewed and data analysed using thematic analysis. Three over-arching themes emerged: 1) “Understanding it is an important thing” – The value of knowledge; 2) {"}You{\textquoteright}ve got to get used to accepting the fact that you need help{"} - The social implications of being diagnosed with PD; and 3) {"}I think you need to talk to somebody{"} - The importance of supportive others.The process of diagnosis was complex and often challenging for participants, with respect totheir own understanding and that of others. Recommendations for future practice withinspecialist PD services are made, to improve the support that is offered at this time.",
keywords = "Parkinson's disease, diagnosis, nurse, specialist services , support, social, psychological",
author = "Emma Warren and Eccles, {Fiona Juliet Rosalind} and Vicky Travers and Jane Simpson",
year = "2016",
month = dec,
doi = "10.12968/bjnn.2016.12.6.288",
language = "English",
volume = "12",
pages = "288--296",
journal = "British Journal of Neuroscience Nursing",
issn = "1747-0307",
publisher = "MA Healthcare Ltd",
number = "6",

}

RIS

TY - JOUR

T1 - The experiences of being diagnosed with Parkinson’s Disease

AU - Warren, Emma

AU - Eccles, Fiona Juliet Rosalind

AU - Travers, Vicky

AU - Simpson, Jane

PY - 2016/12

Y1 - 2016/12

N2 - Being diagnosed with a chronic illness such as Parkinson’s disease (PD) can have a considerable psychological impact on a person’s life. However, this has been little explored and therefore it is unclear what support may be most beneficial at this time. This study therefore explored personal experiences of being diagnosed with PD. Six participants were interviewed and data analysed using thematic analysis. Three over-arching themes emerged: 1) “Understanding it is an important thing” – The value of knowledge; 2) "You’ve got to get used to accepting the fact that you need help" - The social implications of being diagnosed with PD; and 3) "I think you need to talk to somebody" - The importance of supportive others.The process of diagnosis was complex and often challenging for participants, with respect totheir own understanding and that of others. Recommendations for future practice withinspecialist PD services are made, to improve the support that is offered at this time.

AB - Being diagnosed with a chronic illness such as Parkinson’s disease (PD) can have a considerable psychological impact on a person’s life. However, this has been little explored and therefore it is unclear what support may be most beneficial at this time. This study therefore explored personal experiences of being diagnosed with PD. Six participants were interviewed and data analysed using thematic analysis. Three over-arching themes emerged: 1) “Understanding it is an important thing” – The value of knowledge; 2) "You’ve got to get used to accepting the fact that you need help" - The social implications of being diagnosed with PD; and 3) "I think you need to talk to somebody" - The importance of supportive others.The process of diagnosis was complex and often challenging for participants, with respect totheir own understanding and that of others. Recommendations for future practice withinspecialist PD services are made, to improve the support that is offered at this time.

KW - Parkinson's disease

KW - diagnosis

KW - nurse

KW - specialist services

KW - support

KW - social

KW - psychological

U2 - 10.12968/bjnn.2016.12.6.288

DO - 10.12968/bjnn.2016.12.6.288

M3 - Journal article

VL - 12

SP - 288

EP - 296

JO - British Journal of Neuroscience Nursing

JF - British Journal of Neuroscience Nursing

SN - 1747-0307

IS - 6

ER -