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  • Hennings Froggatt Full documentAccepted 06-09-16

    Rights statement: The final, definitive version of this article has been published in the Journal, Dementia, 18 (1), 2019, © SAGE Publications Ltd, 2019 by SAGE Publications Ltd at the Dementia page: https://journals.sagepub.com/home/dem on SAGE Journals Online: http://online.sagepub.com/

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    Available under license: CC BY-NC: Creative Commons Attribution-NonCommercial 4.0 International License

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The experiences of family caregivers of people with advanced dementia living in nursing homes, with a specific focus on spouses: a narrative literature review

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The experiences of family caregivers of people with advanced dementia living in nursing homes, with a specific focus on spouses : a narrative literature review. / Hennings, Jean; Froggatt, Katherine Alison.

In: Dementia, Vol. 18, No. 1, 01.2019, p. 303-322.

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@article{a3053c2444364fae9e05aaa531a34cdb,
title = "The experiences of family caregivers of people with advanced dementia living in nursing homes, with a specific focus on spouses: a narrative literature review",
abstract = "Dementia affects individuals, families and their relationships. While there is increasing evidence about the experiences of family caregivers of people with dementia, relatively little is known of their experiences when their relatives are living in nursing homes with dementia. This narrative literature review aimed to synthesise current knowledge about family caregivers{\textquoteright} experience of having relatives living in nursing homes with advanced dementia, particularly focussing on community-dwelling spouses. Using a systematic approach, textual narrative synthesis was undertaken. Four themes were identified: changing relationships, the need for companionship, adjusting to new roles and relationships and anticipating death/looking towards the future. Two additional themes were present only for spouses: changing identity – feeling married, being married; and alone but… The review demonstrates that some aspects of spouses{\textquoteright} experiences are different from those of other family caregivers. Longitudinal studies are required to better understand spouses{\textquoteright} motivations to continue caring in this context and to find ways of supporting them.",
keywords = "dementia caregiving, end of life, nursing homes, review, spouses",
author = "Jean Hennings and Froggatt, {Katherine Alison}",
note = "The final, definitive version of this article has been published in the Journal, Dementia, 18 (1), 2019, {\textcopyright} SAGE Publications Ltd, 2019 by SAGE Publications Ltd at the Dementia page: https://journals.sagepub.com/home/dem on SAGE Journals Online: http://online.sagepub.com/",
year = "2019",
month = jan,
doi = "10.1177/1471301216671418",
language = "English",
volume = "18",
pages = "303--322",
journal = "Dementia",
issn = "1471-3012",
publisher = "SAGE Publications Ltd",
number = "1",

}

RIS

TY - JOUR

T1 - The experiences of family caregivers of people with advanced dementia living in nursing homes, with a specific focus on spouses

T2 - a narrative literature review

AU - Hennings, Jean

AU - Froggatt, Katherine Alison

N1 - The final, definitive version of this article has been published in the Journal, Dementia, 18 (1), 2019, © SAGE Publications Ltd, 2019 by SAGE Publications Ltd at the Dementia page: https://journals.sagepub.com/home/dem on SAGE Journals Online: http://online.sagepub.com/

PY - 2019/1

Y1 - 2019/1

N2 - Dementia affects individuals, families and their relationships. While there is increasing evidence about the experiences of family caregivers of people with dementia, relatively little is known of their experiences when their relatives are living in nursing homes with dementia. This narrative literature review aimed to synthesise current knowledge about family caregivers’ experience of having relatives living in nursing homes with advanced dementia, particularly focussing on community-dwelling spouses. Using a systematic approach, textual narrative synthesis was undertaken. Four themes were identified: changing relationships, the need for companionship, adjusting to new roles and relationships and anticipating death/looking towards the future. Two additional themes were present only for spouses: changing identity – feeling married, being married; and alone but… The review demonstrates that some aspects of spouses’ experiences are different from those of other family caregivers. Longitudinal studies are required to better understand spouses’ motivations to continue caring in this context and to find ways of supporting them.

AB - Dementia affects individuals, families and their relationships. While there is increasing evidence about the experiences of family caregivers of people with dementia, relatively little is known of their experiences when their relatives are living in nursing homes with dementia. This narrative literature review aimed to synthesise current knowledge about family caregivers’ experience of having relatives living in nursing homes with advanced dementia, particularly focussing on community-dwelling spouses. Using a systematic approach, textual narrative synthesis was undertaken. Four themes were identified: changing relationships, the need for companionship, adjusting to new roles and relationships and anticipating death/looking towards the future. Two additional themes were present only for spouses: changing identity – feeling married, being married; and alone but… The review demonstrates that some aspects of spouses’ experiences are different from those of other family caregivers. Longitudinal studies are required to better understand spouses’ motivations to continue caring in this context and to find ways of supporting them.

KW - dementia caregiving

KW - end of life

KW - nursing homes

KW - review

KW - spouses

U2 - 10.1177/1471301216671418

DO - 10.1177/1471301216671418

M3 - Journal article

VL - 18

SP - 303

EP - 322

JO - Dementia

JF - Dementia

SN - 1471-3012

IS - 1

ER -