Final published version
Licence: CC BY: Creative Commons Attribution 4.0 International License
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Research output: Contribution to Journal/Magazine › Journal article › peer-review
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TY - JOUR
T1 - The inclusion of people with hepatitis C within disability studies
AU - Mack, Heather
AU - Paylor, Ian
PY - 2017/9/1
Y1 - 2017/9/1
N2 - This article adopts a critical position regarding the 'illness is not disability' debate by framing hepatitis C both as a lived, physical impairment and a socio-cultural disability/illness. This article draws on qualitative in-depth interviews with 21 people who live(d) with hepatitis C in the UK and examines the financial impact of living with hepatitis C and the process of applying and being found eligible for welfare benefits. This article contributes to the discussion around the inclusion of people with HCV within disability studies and argued that there should be greater recognition of the disabling processes and barriers they face in accessing information, support, recognition and treatment. At present, the institutional processes used to define the ability to work and determine eligibility for benefits frequently exclude and marginalize the experience of people with hepatitis C.
AB - This article adopts a critical position regarding the 'illness is not disability' debate by framing hepatitis C both as a lived, physical impairment and a socio-cultural disability/illness. This article draws on qualitative in-depth interviews with 21 people who live(d) with hepatitis C in the UK and examines the financial impact of living with hepatitis C and the process of applying and being found eligible for welfare benefits. This article contributes to the discussion around the inclusion of people with HCV within disability studies and argued that there should be greater recognition of the disabling processes and barriers they face in accessing information, support, recognition and treatment. At present, the institutional processes used to define the ability to work and determine eligibility for benefits frequently exclude and marginalize the experience of people with hepatitis C.
KW - Welfare
KW - disability
KW - drug use
KW - hepatitis C
KW - illness
U2 - 10.1080/15017419.2016.1228543
DO - 10.1080/15017419.2016.1228543
M3 - Journal article
VL - 19
SP - 18
EP - 33
JO - Scandinavian Journal of Disability Research
JF - Scandinavian Journal of Disability Research
SN - 1501-7419
IS - 1
ER -