Research output: Book/Report/Proceedings › Book
Research output: Book/Report/Proceedings › Book
}
TY - BOOK
T1 - The right to know and the right not to know
T2 - genetic privacy and responsibility
A2 - Chadwick, Ruth
A2 - Levitt, Mairi
A2 - Shickle, Darren
PY - 2014/9
Y1 - 2014/9
N2 - The privacy concerns discussed in the 1990s in relation to the NewGenetics failed to anticipate the relevant issues for individuals, families,geneticists and society. Consumers, for example, can now buy theirpersonal genetic information and share it online. The challenges facinggenetic privacy have evolved as new biotechnologies have developed,and personal privacy is increasingly challenged by the irrepressible fl owof electronic data between the personal and public spheres and by surveillancefor terrorism and security risks. This book considers the right to know and the right not to know about our own and others’ genomes. It discusses new privacy concerns and developments in ethical thinking, with the greater emphasis on solidarity and equity. The multidisciplinary approach covers current topicssuch as biobanks and forensic databases, DIY testing, group rights andaccountability, the food we eat and the role of the press and the newdigital media.
AB - The privacy concerns discussed in the 1990s in relation to the NewGenetics failed to anticipate the relevant issues for individuals, families,geneticists and society. Consumers, for example, can now buy theirpersonal genetic information and share it online. The challenges facinggenetic privacy have evolved as new biotechnologies have developed,and personal privacy is increasingly challenged by the irrepressible fl owof electronic data between the personal and public spheres and by surveillancefor terrorism and security risks. This book considers the right to know and the right not to know about our own and others’ genomes. It discusses new privacy concerns and developments in ethical thinking, with the greater emphasis on solidarity and equity. The multidisciplinary approach covers current topicssuch as biobanks and forensic databases, DIY testing, group rights andaccountability, the food we eat and the role of the press and the newdigital media.
M3 - Book
SN - 9781107429796
T3 - Bioethics and Law
BT - The right to know and the right not to know
PB - Cambridge University Press
CY - Cambridge
ER -