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    Rights statement: © 2014 Burton et al.; licensee BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly credited. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.

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The study protocol of: 'Initiating end of life care in stroke: Clinical decision-making around prognosis

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The study protocol of : 'Initiating end of life care in stroke: Clinical decision-making around prognosis. / Burton, Christopher; Payne, Sheila; Turner, Mary; Bucknall, Tracey; Rycroft-Malone, Jo; Tyrrell, Pippa; Horne, Maria; Ntambwe, Lupetu Ives; Tyson, Sarah; Mitchell, Helen; Williams, Sion; Elghenzai, Salah.

In: BMC Palliative Care, Vol. 13, 55, 05.12.2014.

Research output: Contribution to journalJournal articlepeer-review

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Burton, C, Payne, S, Turner, M, Bucknall, T, Rycroft-Malone, J, Tyrrell, P, Horne, M, Ntambwe, LI, Tyson, S, Mitchell, H, Williams, S & Elghenzai, S 2014, 'The study protocol of: 'Initiating end of life care in stroke: Clinical decision-making around prognosis', BMC Palliative Care, vol. 13, 55. https://doi.org/10.1186/1472-684X-13-55

APA

Burton, C., Payne, S., Turner, M., Bucknall, T., Rycroft-Malone, J., Tyrrell, P., Horne, M., Ntambwe, L. I., Tyson, S., Mitchell, H., Williams, S., & Elghenzai, S. (2014). The study protocol of: 'Initiating end of life care in stroke: Clinical decision-making around prognosis. BMC Palliative Care, 13, [55]. https://doi.org/10.1186/1472-684X-13-55

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Burton, Christopher ; Payne, Sheila ; Turner, Mary ; Bucknall, Tracey ; Rycroft-Malone, Jo ; Tyrrell, Pippa ; Horne, Maria ; Ntambwe, Lupetu Ives ; Tyson, Sarah ; Mitchell, Helen ; Williams, Sion ; Elghenzai, Salah. / The study protocol of : 'Initiating end of life care in stroke: Clinical decision-making around prognosis. In: BMC Palliative Care. 2014 ; Vol. 13.

Bibtex

@article{0d1151eebae54ec79cb5e520b8b5354e,
title = "The study protocol of: 'Initiating end of life care in stroke: Clinical decision-making around prognosis",
abstract = "BackgroundThe initiation of end of life care in an acute stroke context should be focused on those patients and families with greatest need. This requires clinicians to synthesise information on prognosis, patterns (trajectories) of dying and patient and family preferences. Within acute stroke, prognostic models are available to identify risks of dying, but variability in dying trajectories makes it difficult for clinicians to know when to commence palliative interventions. This study aims to investigate clinicians{\textquoteright} use of different types of evidence in decisions to initiate end of life care within trajectories typical of the acute stroke population.Methods/designThis two-phase, mixed methods study comprises investigation of dying trajectories in acute stroke (Phase 1), and the use of clinical scenarios to investigate clinical decision-making in the initiation of palliative care (Phase 2). It will be conducted in four acute stroke services in North Wales and North West England. Patient and public involvement is integral to this research, with service users involved at each stage.DiscussionThis study will be the first to examine whether patterns of dying reported in other diagnostic groups are transferable to acute stroke care. The strengths and limitations of the study will be considered. This research will produce comprehensive understanding of the nature of clinical decision-making around end of life care in an acute stroke context, which in turn will inform the development of interventions to further build staff knowledge, skills and confidence in this challenging aspect of acute stroke care.",
author = "Christopher Burton and Sheila Payne and Mary Turner and Tracey Bucknall and Jo Rycroft-Malone and Pippa Tyrrell and Maria Horne and Ntambwe, {Lupetu Ives} and Sarah Tyson and Helen Mitchell and Sion Williams and Salah Elghenzai",
note = "{\textcopyright} 2014 Burton et al.; licensee BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly credited. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.",
year = "2014",
month = dec,
day = "5",
doi = "10.1186/1472-684X-13-55",
language = "English",
volume = "13",
journal = "BMC Palliative Care",
issn = "1472-684X",
publisher = "BIOMED CENTRAL LTD",

}

RIS

TY - JOUR

T1 - The study protocol of

T2 - 'Initiating end of life care in stroke: Clinical decision-making around prognosis

AU - Burton, Christopher

AU - Payne, Sheila

AU - Turner, Mary

AU - Bucknall, Tracey

AU - Rycroft-Malone, Jo

AU - Tyrrell, Pippa

AU - Horne, Maria

AU - Ntambwe, Lupetu Ives

AU - Tyson, Sarah

AU - Mitchell, Helen

AU - Williams, Sion

AU - Elghenzai, Salah

N1 - © 2014 Burton et al.; licensee BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly credited. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.

PY - 2014/12/5

Y1 - 2014/12/5

N2 - BackgroundThe initiation of end of life care in an acute stroke context should be focused on those patients and families with greatest need. This requires clinicians to synthesise information on prognosis, patterns (trajectories) of dying and patient and family preferences. Within acute stroke, prognostic models are available to identify risks of dying, but variability in dying trajectories makes it difficult for clinicians to know when to commence palliative interventions. This study aims to investigate clinicians’ use of different types of evidence in decisions to initiate end of life care within trajectories typical of the acute stroke population.Methods/designThis two-phase, mixed methods study comprises investigation of dying trajectories in acute stroke (Phase 1), and the use of clinical scenarios to investigate clinical decision-making in the initiation of palliative care (Phase 2). It will be conducted in four acute stroke services in North Wales and North West England. Patient and public involvement is integral to this research, with service users involved at each stage.DiscussionThis study will be the first to examine whether patterns of dying reported in other diagnostic groups are transferable to acute stroke care. The strengths and limitations of the study will be considered. This research will produce comprehensive understanding of the nature of clinical decision-making around end of life care in an acute stroke context, which in turn will inform the development of interventions to further build staff knowledge, skills and confidence in this challenging aspect of acute stroke care.

AB - BackgroundThe initiation of end of life care in an acute stroke context should be focused on those patients and families with greatest need. This requires clinicians to synthesise information on prognosis, patterns (trajectories) of dying and patient and family preferences. Within acute stroke, prognostic models are available to identify risks of dying, but variability in dying trajectories makes it difficult for clinicians to know when to commence palliative interventions. This study aims to investigate clinicians’ use of different types of evidence in decisions to initiate end of life care within trajectories typical of the acute stroke population.Methods/designThis two-phase, mixed methods study comprises investigation of dying trajectories in acute stroke (Phase 1), and the use of clinical scenarios to investigate clinical decision-making in the initiation of palliative care (Phase 2). It will be conducted in four acute stroke services in North Wales and North West England. Patient and public involvement is integral to this research, with service users involved at each stage.DiscussionThis study will be the first to examine whether patterns of dying reported in other diagnostic groups are transferable to acute stroke care. The strengths and limitations of the study will be considered. This research will produce comprehensive understanding of the nature of clinical decision-making around end of life care in an acute stroke context, which in turn will inform the development of interventions to further build staff knowledge, skills and confidence in this challenging aspect of acute stroke care.

U2 - 10.1186/1472-684X-13-55

DO - 10.1186/1472-684X-13-55

M3 - Journal article

VL - 13

JO - BMC Palliative Care

JF - BMC Palliative Care

SN - 1472-684X

M1 - 55

ER -