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    Rights statement: This is an Accepted Manuscript of an article published by Taylor & Francis in Psychology and Health on 13/07/2020, available online:  https://www.tandfonline.com/doi/abs/10.1080/08870446.2020.1792903

    Accepted author manuscript, 473 KB, PDF document

    Available under license: CC BY-NC: Creative Commons Attribution-NonCommercial 4.0 International License

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Understanding breast cancer survivors’ information-seeking behaviours and overall experiences: a comparison of themes derived from social media posts and focus groups

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Published

Standard

Understanding breast cancer survivors’ information-seeking behaviours and overall experiences : a comparison of themes derived from social media posts and focus groups. / Currin-McCulloch, J.; Stanton, A.; Boyd, R. et al.

In: Psychology and Health, Vol. 36, No. 7, 31.07.2021, p. 810-827.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Harvard

Currin-McCulloch, J, Stanton, A, Boyd, R, Neaves, M & Jones, B 2021, 'Understanding breast cancer survivors’ information-seeking behaviours and overall experiences: a comparison of themes derived from social media posts and focus groups', Psychology and Health, vol. 36, no. 7, pp. 810-827. https://doi.org/10.1080/08870446.2020.1792903

APA

Currin-McCulloch, J., Stanton, A., Boyd, R., Neaves, M., & Jones, B. (2021). Understanding breast cancer survivors’ information-seeking behaviours and overall experiences: a comparison of themes derived from social media posts and focus groups. Psychology and Health, 36(7), 810-827. https://doi.org/10.1080/08870446.2020.1792903

Vancouver

Currin-McCulloch J, Stanton A, Boyd R, Neaves M, Jones B. Understanding breast cancer survivors’ information-seeking behaviours and overall experiences: a comparison of themes derived from social media posts and focus groups. Psychology and Health. 2021 Jul 31;36(7):810-827. Epub 2020 Jul 13. doi: 10.1080/08870446.2020.1792903

Author

Currin-McCulloch, J. ; Stanton, A. ; Boyd, R. et al. / Understanding breast cancer survivors’ information-seeking behaviours and overall experiences : a comparison of themes derived from social media posts and focus groups. In: Psychology and Health. 2021 ; Vol. 36, No. 7. pp. 810-827.

Bibtex

@article{9aa221f4de734281aaa393d8c5b4afa9,
title = "Understanding breast cancer survivors{\textquoteright} information-seeking behaviours and overall experiences: a comparison of themes derived from social media posts and focus groups",
abstract = "Objective: Using two different analysis techniques, this study explored differences and similarities in information-seeking discourse and overall breast cancer experiences between posters to a Reddit board and breast cancer survivor focus groups. Design: This study incorporates two qualitative methods for determining themes in breast cancer survivors{\textquoteright} information-seeking behaviours and overall cancer experiences. First, posts from a breast cancer-specific Reddit community were extracted and analysed using the meaning extraction method (MEM) to determine core themes. Then, investigators performed a thematic analysis of two focus groups of breast cancer survivors (N = 18). Finally, themes derived from each analysis method were compared. Main Outcome Measures: Outcome measures include themes extracted from Reddit posts and themes generated from breast cancer survivor focus groups. Results: Findings between qualitative methodologies represent similar yet nuanced themes in survivors{\textquoteright} discourse. The MEM resulted in seven themes: diagnosis, treatment process, social support, existentialism, risk, information-seeking and surgery. Focus groups revealed the same initial four MEM themes plus the following: disclosure, coping and fears. Conclusions: The MEM is a cost-effective research mechanism for informing common themes of experiences of cancer patients and survivors and may offer initial data to guide psychosocial oncology research design and recruitment. ",
keywords = "Breast cancer, focus groups, information-seeking, meaning extraction methods, social support",
author = "J. Currin-McCulloch and A. Stanton and R. Boyd and M. Neaves and Barbara Jones",
note = "This is an Accepted Manuscript of an article published by Taylor & Francis in Psychology and Health on 13/07/2020, available online:  https://www.tandfonline.com/doi/abs/10.1080/08870446.2020.1792903",
year = "2021",
month = jul,
day = "31",
doi = "10.1080/08870446.2020.1792903",
language = "English",
volume = "36",
pages = "810--827",
journal = "Psychology and Health",
issn = "0887-0446",
publisher = "Routledge",
number = "7",

}

RIS

TY - JOUR

T1 - Understanding breast cancer survivors’ information-seeking behaviours and overall experiences

T2 - a comparison of themes derived from social media posts and focus groups

AU - Currin-McCulloch, J.

AU - Stanton, A.

AU - Boyd, R.

AU - Neaves, M.

AU - Jones, Barbara

N1 - This is an Accepted Manuscript of an article published by Taylor & Francis in Psychology and Health on 13/07/2020, available online:  https://www.tandfonline.com/doi/abs/10.1080/08870446.2020.1792903

PY - 2021/7/31

Y1 - 2021/7/31

N2 - Objective: Using two different analysis techniques, this study explored differences and similarities in information-seeking discourse and overall breast cancer experiences between posters to a Reddit board and breast cancer survivor focus groups. Design: This study incorporates two qualitative methods for determining themes in breast cancer survivors’ information-seeking behaviours and overall cancer experiences. First, posts from a breast cancer-specific Reddit community were extracted and analysed using the meaning extraction method (MEM) to determine core themes. Then, investigators performed a thematic analysis of two focus groups of breast cancer survivors (N = 18). Finally, themes derived from each analysis method were compared. Main Outcome Measures: Outcome measures include themes extracted from Reddit posts and themes generated from breast cancer survivor focus groups. Results: Findings between qualitative methodologies represent similar yet nuanced themes in survivors’ discourse. The MEM resulted in seven themes: diagnosis, treatment process, social support, existentialism, risk, information-seeking and surgery. Focus groups revealed the same initial four MEM themes plus the following: disclosure, coping and fears. Conclusions: The MEM is a cost-effective research mechanism for informing common themes of experiences of cancer patients and survivors and may offer initial data to guide psychosocial oncology research design and recruitment. 

AB - Objective: Using two different analysis techniques, this study explored differences and similarities in information-seeking discourse and overall breast cancer experiences between posters to a Reddit board and breast cancer survivor focus groups. Design: This study incorporates two qualitative methods for determining themes in breast cancer survivors’ information-seeking behaviours and overall cancer experiences. First, posts from a breast cancer-specific Reddit community were extracted and analysed using the meaning extraction method (MEM) to determine core themes. Then, investigators performed a thematic analysis of two focus groups of breast cancer survivors (N = 18). Finally, themes derived from each analysis method were compared. Main Outcome Measures: Outcome measures include themes extracted from Reddit posts and themes generated from breast cancer survivor focus groups. Results: Findings between qualitative methodologies represent similar yet nuanced themes in survivors’ discourse. The MEM resulted in seven themes: diagnosis, treatment process, social support, existentialism, risk, information-seeking and surgery. Focus groups revealed the same initial four MEM themes plus the following: disclosure, coping and fears. Conclusions: The MEM is a cost-effective research mechanism for informing common themes of experiences of cancer patients and survivors and may offer initial data to guide psychosocial oncology research design and recruitment. 

KW - Breast cancer

KW - focus groups

KW - information-seeking

KW - meaning extraction methods

KW - social support

U2 - 10.1080/08870446.2020.1792903

DO - 10.1080/08870446.2020.1792903

M3 - Journal article

VL - 36

SP - 810

EP - 827

JO - Psychology and Health

JF - Psychology and Health

SN - 0887-0446

IS - 7

ER -