Rights statement: This is the author’s version of a work that was accepted for publication in Health and Place. Changes resulting from the publishing process, such as peer review, editing, corrections, structural formatting, and other quality control mechanisms may not be reflected in this document. Changes may have been made to this work since it was submitted for publication. A definitive version was subsequently published in Health and Place, 38, 2016 DOI: 10.1016/j.healthplace.2016.01.005
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Available under license: CC BY-NC-ND: Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License
Final published version
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Research output: Contribution to Journal/Magazine › Journal article › peer-review
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TY - JOUR
T1 - Unpacking the impact of older adults' home death on family care-givers' experiences of home
AU - Milligan, Christine
AU - Turner, Janet Mary
AU - Blake, Susan
AU - Brearley, Sarah Grace
AU - Seamark, David
AU - Thomas, Carol Jane
AU - Wang, Xu
AU - Payne, Sheila Alison
N1 - This is the author’s version of a work that was accepted for publication in Health and Place. Changes resulting from the publishing process, such as peer review, editing, corrections, structural formatting, and other quality control mechanisms may not be reflected in this document. Changes may have been made to this work since it was submitted for publication. A definitive version was subsequently published in Health and Place, 38, 2016 DOI: 10.1016/j.healthplace.2016.01.005
PY - 2016/3
Y1 - 2016/3
N2 - Public Health England (2013) survey data indicates that while the place of death is geographically uneven across England, given a choice, many older people nearing end of life would prefer to die at home. There is, however, a growing critique that policies designed to support home death fail to understand the needs and preferences of older people and the impact on family carers. Such policies also make assumption about within whose home the home death takes place. Hence, there are major gaps in our understanding of firstly, where and how care work undertaken by family members within domestic settings takes place; and secondly, how it can create tensions between home and care that fundamentally disrupt the physical and socio-emotional meaning of home for family carers, impacting on their sense of home post-death. This can have consequences for their own well-being. In this paper we draw on interview data from our ‘Unpacking the Home’ study to elicit an in-depth understanding of how facilitating a home death can create an ambiguity of place for family carers, where the issues faced by them in caring for a dying older person at home, and the home death itself, can fundamentally reshape the meaning and sense of home.
AB - Public Health England (2013) survey data indicates that while the place of death is geographically uneven across England, given a choice, many older people nearing end of life would prefer to die at home. There is, however, a growing critique that policies designed to support home death fail to understand the needs and preferences of older people and the impact on family carers. Such policies also make assumption about within whose home the home death takes place. Hence, there are major gaps in our understanding of firstly, where and how care work undertaken by family members within domestic settings takes place; and secondly, how it can create tensions between home and care that fundamentally disrupt the physical and socio-emotional meaning of home for family carers, impacting on their sense of home post-death. This can have consequences for their own well-being. In this paper we draw on interview data from our ‘Unpacking the Home’ study to elicit an in-depth understanding of how facilitating a home death can create an ambiguity of place for family carers, where the issues faced by them in caring for a dying older person at home, and the home death itself, can fundamentally reshape the meaning and sense of home.
KW - Older adults
KW - Place of death
KW - Meaning of home
KW - Family carers
KW - Palliative care
U2 - 10.1016/j.healthplace.2016.01.005
DO - 10.1016/j.healthplace.2016.01.005
M3 - Journal article
VL - 38
SP - 103
EP - 111
JO - Health and Place
JF - Health and Place
SN - 1353-8292
ER -