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What's in a name?: subjects, volunteers, participants and activists in clinical research

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What's in a name? subjects, volunteers, participants and activists in clinical research. / Corrigan, Oonagh; Tutton, Richard.
In: Clinical Ethics, Vol. 1, No. 2, 06.2006, p. 101-104.

Research output: Contribution to Journal/Magazine › Journal article

Harvard

Corrigan, O & Tutton, R 2006, 'What's in a name? subjects, volunteers, participants and activists in clinical research', Clinical Ethics, vol. 1, no. 2, pp. 101-104. https://doi.org/10.1258/147775006777254524

APA

Corrigan, O., & Tutton, R. (2006). What's in a name? subjects, volunteers, participants and activists in clinical research. Clinical Ethics, 1(2), 101-104. https://doi.org/10.1258/147775006777254524

Vancouver

Corrigan O, Tutton R. What's in a name? subjects, volunteers, participants and activists in clinical research. Clinical Ethics. 2006 Jun;1(2):101-104. doi: 10.1258/147775006777254524

Author

Corrigan, Oonagh ; Tutton, Richard. / What's in a name? subjects, volunteers, participants and activists in clinical research. In: Clinical Ethics. 2006 ; Vol. 1, No. 2. pp. 101-104.

Bibtex

@article{a3aa5aeeb6684e7a95744dc160eb5c87,
title = "What's in a name?: subjects, volunteers, participants and activists in clinical research",
abstract = "The term research subject has traditionally been the preferred term in professional guidelines and academic literature to describe a patient or an individual taking part in biomedical research. In recent years, however, there has been a steady shift away from the use of the term 'research subject' in favour of 'research participant' when referring to individuals who take part by providing data to various kinds of biomedical and epidemiological research. This article critically examines this shift, reflecting on the different meanings evoked by the terms 'subject' and 'participant', as well as examining recent examples of patient activism in research. It concludes by suggesting that the wholesale unreflective adoption of the term 'participant' is inappropriate and provides instead a guide on how to determine the circumstances in which the terms subject, participant and activist should legitimately be used.",
author = "Oonagh Corrigan and Richard Tutton",
year = "2006",
month = jun,
doi = "10.1258/147775006777254524",
language = "English",
volume = "1",
pages = "101--104",
journal = "Clinical Ethics",
issn = "1758-101X",
publisher = "SAGE Publications Ltd",
number = "2",

}

RIS

TY - JOUR

T1 - What's in a name?

T2 - subjects, volunteers, participants and activists in clinical research

AU - Corrigan, Oonagh

AU - Tutton, Richard

PY - 2006/6

Y1 - 2006/6

N2 - The term research subject has traditionally been the preferred term in professional guidelines and academic literature to describe a patient or an individual taking part in biomedical research. In recent years, however, there has been a steady shift away from the use of the term 'research subject' in favour of 'research participant' when referring to individuals who take part by providing data to various kinds of biomedical and epidemiological research. This article critically examines this shift, reflecting on the different meanings evoked by the terms 'subject' and 'participant', as well as examining recent examples of patient activism in research. It concludes by suggesting that the wholesale unreflective adoption of the term 'participant' is inappropriate and provides instead a guide on how to determine the circumstances in which the terms subject, participant and activist should legitimately be used.

AB - The term research subject has traditionally been the preferred term in professional guidelines and academic literature to describe a patient or an individual taking part in biomedical research. In recent years, however, there has been a steady shift away from the use of the term 'research subject' in favour of 'research participant' when referring to individuals who take part by providing data to various kinds of biomedical and epidemiological research. This article critically examines this shift, reflecting on the different meanings evoked by the terms 'subject' and 'participant', as well as examining recent examples of patient activism in research. It concludes by suggesting that the wholesale unreflective adoption of the term 'participant' is inappropriate and provides instead a guide on how to determine the circumstances in which the terms subject, participant and activist should legitimately be used.

U2 - 10.1258/147775006777254524

DO - 10.1258/147775006777254524

M3 - Journal article

VL - 1

SP - 101

EP - 104

JO - Clinical Ethics

JF - Clinical Ethics

SN - 1758-101X

IS - 2

ER -