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Professor Sheila Payne

Emeritus Professor

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  1. In Press/Forthcoming
  2. Forthcoming

    Death and Dying: Legal and ethical issues and the palliative care perspective

    Begovic, D., Salifu, Y. & Payne, S., expected on 1/02/2025, (Accepted/In press) Diverse Voices in Health Law and Ethics: Important Perspectives. Romanis, E., Germain, S. & Herring, J. (eds.). Bristol: Bristol University Press

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter (peer-reviewed) › peer-review

  3. 2024
  4. Published

    Collaboration, coordination and communication as facilitators of transitions for patients with advanced cancer: a scoping review linked to the Pal-Cycles project

    Hooley, R. L., Payne, S., Begovic, D., Correa-Morales, J. E., Harding, A., Hasselaar, J. & Preston, N., 7/08/2024, In: BMC Palliative Care. 23, 1, 204.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  5. E-pub ahead of print

    Understanding barriers and facilitators to palliative and end-of-life care research: a mixed method study of generalist and specialist health, social care, and research professionals

    Walshe, C., Dunleavy, L., Preston, N., Payne, S., Ellershaw, J., Taylor, V., Mason, S., Nwosu, A., Gadoud, A., Board, R., Swash, B., Coyle, S., Dickson, A., Partridge, A., Halvorsen, J. & Hulbert-Williams, N., 25/06/2024, (E-pub ahead of print) In: BMC Palliative Care. 159.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  6. E-pub ahead of print

    Cancer experience in metaphors: patients, carers, professionals, students: A scoping review

    Liu, Y., Semino, E., Rietjens, J. & Payne, S., 14/05/2024, (E-pub ahead of print) In: BMJ Supportive & Palliative Care.

    Research output: Contribution to Journal/Magazine › Review article › peer-review

  7. Published

    Cancer experiences in metaphors: A scoping review in 4D PICTURE Project

    Liu, Y., Payne, S., Rayson, P., Lal, D., Korfage, I., Rietjens, J. & Semino, E., 9/05/2024, In: Palliative Medicine. 38, Suppl. 2024 EAPC WR Congress, A05.

    Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review

  8. Published

    Analysing Emotions in Cancer Narratives: A Corpus-Driven Approach

    Lal, D. M., Rayson, P., Payne, S. A. & Liu, Y., 1/05/2024, Proceedings of the First Workshop on Patient-Oriented Language Processing (CL4Health) @ LREC-COLING 2024. Demner-Fushman, D., Ananiadou, S., Thompson, P. & Ondov, B. (eds.). Torino, Italia: ELRA and ICCL, p. 73-83 11 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Conference contribution/Paper › peer-review

  9. Published

    Improving shared decision-making about cancer treatment through design-based data-driven decision-support tools and redesigning care paths: an overview of the 4D PICTURE project

    Rietjens, J. A. C., Griffioen, I., Sierra-Pérez, J., Sroczynski, G., Siebert, U., Buyx, A., Peric, B., Svane, I. M., Brands, J. B. P., Steffensen, K. D., Romero Piqueras, C., Hedayati, E., Karsten, M. M., Couespel, N., Akoglu, C., Pazo-Cid, R., Rayson, P., Lingsma, H. F., Schermer, M. H. N. & Steyerberg, E. W. & 48 others, Payne, S. A., Korfage, I. J., Stiggelbout, A. M., Oliveira, C. C., Semino, E., Roobol, M., López-Forniés, I., Kunneman, M., Verberne, S., Kuld, A., van Mulligen, E. M., Knudsen, B. M., Kors, J. A., Venderbos, L. D. F., Donia, M., Koppert, L. B., Nwosu, A. C., Verheul, E. M., Sañudo, Y., Kremer, M., Gracia, J., Antón, A., Schreijer, M., Bangma, C., Hartman, L., van Klaveren, D., Valles, M. A., Pitarch, L., Hallsson, L. R., Wouters, M., Kapiteijn, E., de Glas, N., van Buchem, M., Doornkamp, F., Borštnar, S., Wee, L., Pross, T., Silva, M., Venegoni, E., Lorenzo, N., Wallberg, S., Dankl, K., de Jesús, T. P., Romera, J. L., Pons, P. G., Signerez, P. M., Secomandi, F. & Snelders, D., 31/01/2024, In: Palliative Care and Social Practice. 18, 15 p., 1-15.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  10. Published

    Applying Digital Health in Cancer and Palliative Care in Europe: Policy Recommendations from an International Expert Workshop (MyPal Project)

    Payne, S., Begovic, D., Salifu, Y., Nelson, A., Payne, C., Downing, J., Natsiavas, P. & Ling, J., 30/01/2024, In: Journal of Palliative Medicine. 27, 2, p. 216-223 8 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  11. Published

    Social relationships and community end of life care in Hong Kong: a three-stage model of social capital development

    Chan, W.-S., Payne, S. & Funk, L., 2/01/2024, In: Mortality. 29, 1, p. 159-175 17 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  12. 2023
  13. Published

    Advance care planning - Family carer psychological distress and involvement in decision making: The ACTION trial

    Vandenbogaerde, I., De Vleminck, A., Cohen, J., Verkissen, M. N., Lapeire, L., Ingravallo, F., Payne, S., Wilcock, A., Seymour, J., Kars, M., Grønvold, M., Lunder, U., Rietjens, J., Van Der Heide, A. & Deliens, L., 31/12/2023, In: BMJ Supportive and Palliative Care. 13, e3, p. e807–e811 5 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  14. Published

    Breaching the stalemate on assisted dying: it’s time to move beyond a medicalised approach

    Preston, N., Payne, S. & Ost, S., 30/08/2023, In: BMJ. 382, p. 1968 1 p.

    Research output: Contribution to Journal/Magazine › Comment/debate

  15. Published

    Adapting the Pillar Integration Process for Theory Development: The Theoretical Model of Healthcare Factors Influencing Quality of Life in Cancer Survivorship

    Drury, A., Payne, S. & Anne-Marie, B., 31/07/2023, In: Journal of Mixed Methods Research. 17, 3, p. 264-287 24 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  16. Published

    P 17.016 Understanding Barriers and Facilitators to Palliative Care Research: Survey and Working Groups with Generalist and Specialist Health, Social Care and Research Professionals

    Walshe, C., Dunleavy, L., Preston, N., Payne, S., Ellershaw, J., Taylor, V., Mason, S., Gadoud, A., Board, R., Swah, B., Partridge , A., Halvarson, J., Nwosu, A., Coyle, S., Dickman, A. & Hulbert-Williams, N., 7/06/2023, In: Palliative Medicine. 37, 1_suppl, p. 268

    Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review

  17. Published

    Exploring the Concept of Transitions in Advanced Cancer Care: The European Pal_Cycles Project

    Payne, S. A. & Hasselaar, J., 1/06/2023, In: Journal of Palliative Medicine. 26, 6, p. 744-745 2 p.

    Research output: Contribution to Journal/Magazine › Editorial › peer-review

  18. Published

    Linking the ‘point of care’ with the ‘point of life’: experiences from the MyPal project

    Payne, S., Salifu, Y. & Begovic, D., 4/04/2023

    Research output: Exhibits, objects and web-based outputs › Blog › peer-review

  19. Published

    Monitoring the clinical practice of palliative sedation (PALSED) in patients with advanced cancer: an international, multicentre, non-experimental prospective observational study protocol

    Rijpstra, M., Vissers, K., Centeno, C., Menten, J., Radbruch, L., Mercadante, S., Van der Elst, M., Adile, C., Arantzamendi, M., Kuip, E., Payne, S., Preston, N. & Hasselaar, J., 28/01/2023, In: BMC Palliative Care. 22, 1, 9 p., 8.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  20. 2022
  21. Published

    Measuring relatives’ perceptions of end-of-life communication with physicians in five countries: a psychometric analysis

    Koniewski, M., Barańska, I., Kijowska, V., van der Steen, J. T., Wichmann, A. B., Payne, S., Gambassi, G., Van Den Noortgate, N., Finne-Soveri, H., Smets, T., Van den Block, L., Szczerbińska, K. & project, P., 31/12/2022, In: European Journal of Ageing. 19, 4, p. 1561-1570 10 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  22. Published

    An analysis of the experiences of bereaved relatives and health care providers following palliative sedation: a study protocol for a qualitative international multicenter case study

    Van der Elst, M., Payne, S., Arantzamendi, M., Preston, N., Hasselaar, J., Centeno, C., Belar, A., Jaspers, B., Brunsch, H., Surges, S., Adile, C. & Menten, J., 23/12/2022, In: BMC Palliative Care. 21, 1, 8 p., 227.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  23. Published

    The European MyPal study: Developing digital health for adults and children with cancer

    Payne, S. (Editor), Salifu, Y. (Editor), Begovic, D. (Editor) & Greenwood, A. (Editor), 16/12/2022, My Pal Project. 40 p.

    Research output: Book/Report/Proceedings › Book

  24. Published

    Regulations on palliative sedation: an international survey across eight European countries

    Garralda, E., Busa, C., Pozsgai, É., Osztromok-Lukacs, V., Csikós, A., Radbruch, L., Hasselaar, J., Menten, J., Payne, S., Adile, C., Hurducas, F. & Centeno, C., 27/10/2022, In: European Journal of Public Health. 2022, 7 p., ckac153.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  25. Published

    Review of European Guidelines on Palliative Sedation: A Foundation for the Updating of the European Association for Palliative Care Framework

    Surges, S. M., Garralda, E., Jaspers, B., Brunsch, H., Rijpstra, M., Hasselaar, J., Van der Elst, M., Menten, J., Csikós, Á., Mercadante, S., Mosoiu, D., Payne, S., Centeno, C. & Radbruch, L., 27/10/2022, In: Journal of Palliative Medicine. 25, 11, p. 1721-1731 11 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  26. Published

    Advance directives in European long-term care facilities: A cross-sectional survey

    Andreasen, P., Finne-Soveri, U. H., Deliens, L., Van Den Block, L., Payne, S., Gambassi, G., Onwuteaka-Philipsen, B. D., Smets, T., Lilja, E., Kijowska, V. & Szczerbińska, K., 5/08/2022, In: BMJ Supportive and Palliative Care. 12, 3, p. 393-402 10 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  27. Published

    Prevalence vs impact: a mixed methods study of survivorship issues in colorectal cancer

    Drury, A., Payne, S. & Brady, A.-M., 30/04/2022, In: Quality of Life Research. 31, 4, p. 1117-1134 18 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  28. Published

    Revised recommendations on standards and norms for palliative care in Europe from the European Association for Palliative Care (EAPC): A Delphi study

    Payne, S., Harding, A., Williams, T., Ling, J. & Ostgathe, C., 1/04/2022, In: Palliative Medicine. 36, 4, p. 680-697 18 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  29. Published

    Ethical Principles in Digital Palliative Care for Children: The MyPal Project and Experiences Made in Designing a Trustworthy Approach

    Garani-Papadatos, T., Natsiavas, P., Meyerheim, M., Hoffmann, S., Karamanidou, C. & Payne, S. A., 18/03/2022, In: Frontiers in Digital Health. 4, 10 p., 730430.

    Research output: Contribution to Journal/Magazine › Review article › peer-review

  30. Published

    The Decision-Making Process for Palliative Sedation for Patients with Advanced Cancer—Analysis from a Systematic Review of Prospective Studies

    Belar, A., Arantzamendi, M., Menten, J., Payne, S., Hasselaar, J. & Centeno, C., 8/01/2022, In: Cancers. 14, 2, 301.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  31. 2021
  32. Published

    Undertaking Research Using Online Nominal Group Technique: Lessons from an International Study (RESPACC)

    Mason, S., Ling, J., Mosoiu, D., Arantzamendi, M., Tserkezoglou, A. J., Predoiu, O. & Payne, S., 17/11/2021, In: Journal of Palliative Medicine. 24, 12, p. 1867-1871 5 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  33. Published

    MyPal ADULT study protocol: A randomised clinical trial of the MyPal ePRO-based early palliative care system in adult patients with haematological malignancies

    Scarfò, L., Karamanidou, C., Doubek, M., Garani-Papadatos, T., Didi, J., Pontikoglou, C., Ling, J., Payne, C., Papadaki, H. A., Rosenquist, R., Stavroyianni, N., Payne, S., Ghia, P., Natsiavas, P., Maramis, C. & Stamatopoulos, K., 2/11/2021, In: BMJ Open. 11, 11, 10 p., e050256.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  34. Published

    Hospitalisation in the last month of life and in-hospital death of nursing home residents: A cross-sectional analysis of six European countries

    Honinx, E., Piers, R. D., Onwuteaka-Philipsen, B. D., Payne, S., Szczerbińska, K., Gambassi, G., Kylänen, M., Deliens, L., Van Den Block, L. & Smets, T., 31/08/2021, In: BMJ Open. 11, 8, 12 p., e047086.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  35. Published

    Large differences in the organization of palliative care in nursing homes in six European countries: findings from the PACE cross-sectional study

    PACE consortium, 25/08/2021, In: BMC Palliative Care. 20, 1, 131.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  36. Published

    MyPal: Designing and Evaluating Digital Patient-Reported Outcome Systems for Cancer Palliative Care in Europe

    Payne, S. A., Moore, D. C. & Stamatopoulos, K., 31/07/2021, In: Journal of Palliative Medicine. 24, 7, p. 962-964 3 p.

    Research output: Contribution to Journal/Magazine › Editorial › peer-review

  37. Published

    Potentially Inappropriate Treatments at the End of Life in Nursing Home Residents: Findings From the PACE Cross-Sectional Study in Six European Countries

    PACE consortium, 22/04/2021, In: Journal of Pain and Symptom Management. 61, 4, p. 732-742 11 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  38. Published

    MyPal-Child study protocol: An observational prospective clinical feasibility study of the MyPal ePRO-based early palliative care digital system in paediatric oncology patients

    Meyerheim, M., Karamanidou, C., Payne, S., Garani-Papadatos, T., Sander, A., Downing, J., Stamatopoulos, K., Ling, J., Payne, C., Scarfò, L., Lokaj, P., Maramis, C. & Graf, N., 13/04/2021, In: BMJ Open. 11, 4, 9 p., e045226.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  39. Published

    Clinical Aspects of Palliative Sedation in Prospective Studies: A Systematic Review

    Arantzamendi, M., Belar, A., Payne, S., Rijpstra, M., Preston, N., Menten, J., Van der Elst, M., Radbruch, L., Hasselaar, J. & Centeno, C., 1/04/2021, In: Journal of Pain and Symptom Management. 61, 4, p. 831-844 14 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  40. Published

    No difference in effects of ‘PACE steps to success’ palliative care program for nursing home residents with and without dementia: a pre-planned subgroup analysis of the seven-country PACE trial

    Miranda, R., Smets, T., Van Den Noortgate, N., van der Steen, J. T., Deliens, L., Payne, S., Szczerbińska, K., Pautex, S., Van Humbeeck, L., Gambassi, G., Kylänen, M., Van den Block, L., Gatsolaeva, Y., Pivodic, L., Honinx, E., Tanghe, M., van Hout, H., Froggatt, K., Onwuteaka-Philipsen, B. & Pasman, H. R. W. & 24 others, Piers, R., Baranska, I., Oosterveld-Vlug, M., Wichmann, A. B., Engels, Y., Vernooij-Dassen, M., Hockley, J., Leppäaho, S., Bassal, C., Mammarella, F., Mercuri, M., Rossi, P., Segat, I., Stodolska, A., Adang, E., Andreasen, P., Kuitunen-Kaija, O., Hammar, T., Heikkilä, R., Moore, D. C., Kijowska, V., ten Koppel, M., de Paula, E. M. & PACE, O. B. O., 7/03/2021, In: BMC Palliative Care. 20, 1, 10 p., 39.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  41. Published

    What it means to be a palliative care volunteer in eight European countries: a qualitative analysis of accounts of volunteering

    Scott, R., Goossensen, A., Payne, S. & Pelttari, L., 1/03/2021, In: Scandinavian Journal of Caring Sciences. 35, 1, p. 170-177 8 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  42. Published

    How to measure the effects and potential adverse events of palliative sedation? An integrative review

    Belar, A., Arantzamendi, M., Payne, S., Preston, N., Lee-Rijpstra, M., Hasselaar, J., Radbruch, L., Vanderelst, M., Ling, J. & Centeno, C., 1/02/2021, In: Palliative Medicine. 35, 2, p. 295-314 20 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  43. Published

    What should we report? Lessons learnt from the development and implementation of serious adverse event reporting procedures in non-pharmacological trials in palliative care

    Dunleavy, L., Collingridge Moore, D., Korfage, I. J., Payne, S., Walshe, C. & Preston, N., 20/01/2021, In: BMC Palliative Care. 20, 1, 8 p., 19.

    Research output: Contribution to Journal/Magazine › Review article › peer-review

  44. Published

    Palliative and end-of-life educational interventions for staff working in long-term care facilities: An integrative review of the literature

    Iida, K., Ryan, A., Hasson, F., Payne, S. & McIlfatrick, S., 1/01/2021, In: International Journal of Older People Nursing. 16, 1, 14 p., e12347.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  45. 2020
  46. Published

    Improving regional care in the last year of life by setting up a pragmatic evidence-based Plan–Do–Study–Act cycle: results from a cross-sectional survey

    On behalf of The CoRe‑Net Co‑applicants, 30/11/2020, In: BMJ Open. 10, 11, 10 p., e035988.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  47. Published

    Advance care planning in patients with advanced cancer: A 6-country, cluster randomised clinical trial

    Korfage, I. J., Dunleavy, L., Payne, S. & Preston, N., 13/11/2020, In: PLoS Medicine. 17, 11, 16 p., e1003422.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  48. Published

    Decreased costs and retained QoL due to the 'PACE Steps to Success' intervention in LTCFs: cost-effectiveness analysis of a randomized controlled trial

    Wichmann, A. B., Adang, E. M. M., Vissers, K. C. P., Szczerbińska, K., Kylänen, M., Payne, S., Gambassi, G., Onwuteaka-Philipsen, B. D., Smets, T., Van den Block, L., Deliens, L., Vernooij-Dassen, M. J. F. J., Engels, Y. & group, P. T., 22/09/2020, In: BMC Medicine. 18, 1, 9 p., 258.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  49. Published

    Exploring a New Model of End-of-Life Care for Older People that Operates in the Space Between the Life World and the Healthcare System: A Qualitative Case Study

    Dodd, S., Preston, N., Payne, S. & Walshe, C., 1/08/2020, In: International Journal of Health Policy and Management. 9, 8, p. 344-351 8 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  50. Published

    Palliative Care Implementation in Long-Term Care Facilities: European Association for Palliative Care White Paper

    Froggatt, K., Moore, D. C., Van den Block, L., Ling, J., Payne, S. A., Kylanen, M. & PACE consortium, 1/08/2020, In: Journal of the American Medical Directors Association. 21, 8, p. 1051-1057 7 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  51. Published

    Supporting adults bereaved through COVID-19: a rapid review of the impact of previous pandemics on grief and bereavement

    Mayland, C. R., Harding, A., Preston, N. & Payne, S., 1/08/2020, In: Journal of Pain and Symptom Management. 60, 2, p. e33-e39 7 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  52. Published

    Understanding the Outcomes of Supplementary Support Services in Palliative Care for Older People: A Scoping Review and Mapping Exercise

    Dodd, S., Payne, S., Preston, N. & Walshe, C., 1/08/2020, In: Journal of Pain and Symptom Management. 60, 2, p. 449-459 11 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  53. Published

    Ethical and research governance approval across Europe: Experiences from three European palliative care studies

    Preston, N., van Delden, J. J. M., Ingravallo, F., Hughes, S., Hasselaar, J., van der Heide, A., Van den Block, L., Dunleavy, L., Groot, M., Csikos, A. & Payne, S., 1/06/2020, In: Palliative Medicine. 34, 6, p. 817-821 5 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  54. Published

    Strategies for the implementation of palliative care education and organizational interventions in long-term care facilities: A scoping review

    PACE, 1/05/2020, In: Palliative Medicine. 34, 5, p. 558-570 13 p.

    Research output: Contribution to Journal/Magazine › Review article › peer-review

  55. Published

    Digitisation and the Patient-Professional Relationship in Palliative Care

    Payne, S., Tanner, M. & Hughes, S., 30/04/2020, In: Palliative Medicine. 34, 4, p. 441-443 3 p.

    Research output: Contribution to Journal/Magazine › Editorial › peer-review

  56. Published

    Physical restraining of nursing home residents in the last week of life: An epidemiological study in six European countries

    PACE consortium, 30/04/2020, In: International Journal of Nursing Studies. 104, 8 p., 103511.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

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