Research output: Contribution to Journal/Magazine › Journal article › peer-review
Research output: Contribution to Journal/Magazine › Journal article › peer-review
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TY - JOUR
T1 - Development and validation of the Kilifi Stigma Scale for Epilepsy in Kenya
AU - Mbuba, Caroline K.
AU - Abubakar, Amina
AU - Odermatt, Peter
AU - Newton, Charles R.
AU - Carter, Julie A.
N1 - Copyright © 2012 Elsevier Inc. All rights reserved.
PY - 2012/5
Y1 - 2012/5
N2 - The aim of this study was to develop and validate a tool to measure perceived stigma among people with epilepsy (PWE) in Kilifi, Kenya. We reviewed existing scales that measured stigma, particularly of epilepsy. We conducted a qualitative study to determine salient concerns related to stigma in Kilifi. Themes were generated, and those related to stigma were used to construct an 18-item stigma scale. A descriptive cross-sectional survey was then conducted among 673 PWE to assess the reliability and validity of the scale. Internal consistency was calculated using Cronbach's alpha and test-retest reliability with an interclass correlation coefficient. The final scale had 15 items, which had high internal consistency (Cronbach's α=0.91) and excellent test-retest reliability (r=0.92). Factor analysis indicated that the scale was unidimensional with one factor solution explaining 45.8% of the variance. The Kilifi Stigma Scale for Epilepsy is a culturally appropriate measure of stigma with strong psychometric properties.
AB - The aim of this study was to develop and validate a tool to measure perceived stigma among people with epilepsy (PWE) in Kilifi, Kenya. We reviewed existing scales that measured stigma, particularly of epilepsy. We conducted a qualitative study to determine salient concerns related to stigma in Kilifi. Themes were generated, and those related to stigma were used to construct an 18-item stigma scale. A descriptive cross-sectional survey was then conducted among 673 PWE to assess the reliability and validity of the scale. Internal consistency was calculated using Cronbach's alpha and test-retest reliability with an interclass correlation coefficient. The final scale had 15 items, which had high internal consistency (Cronbach's α=0.91) and excellent test-retest reliability (r=0.92). Factor analysis indicated that the scale was unidimensional with one factor solution explaining 45.8% of the variance. The Kilifi Stigma Scale for Epilepsy is a culturally appropriate measure of stigma with strong psychometric properties.
KW - Adolescent
KW - Adult
KW - Age Factors
KW - Child
KW - Child, Preschool
KW - Epilepsy
KW - Female
KW - Humans
KW - Infant
KW - Kenya
KW - Male
KW - Psychometrics
KW - Reproducibility of Results
KW - Social Stigma
KW - Young Adult
U2 - 10.1016/j.yebeh.2012.02.019
DO - 10.1016/j.yebeh.2012.02.019
M3 - Journal article
C2 - 22481043
VL - 24
SP - 81
EP - 85
JO - Epilepsy and Behavior
JF - Epilepsy and Behavior
SN - 1525-5069
IS - 1
ER -