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International Observatory on End of Life Care

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  1. Published

    How is disability understood? An examination of sociological approaches.

    Thomas, C. J., 1/10/2004, In: Disability and Society. 19, 6, p. 569-583 15 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  2. Published

    The place of death of cancer patients: can qualitative data add to known factors?

    Thomas, C. J., 06/2005, In: Social Science and Medicine. 60, 11, p. 2597-2607 11 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  3. Published

    Sociologies of Disability and Illness. Contested ideas in disability studies and medical sociology.

    Thomas, C. J., 2007, Palgrave Macmillan. 1 p.

    Research output: Book/Report/Proceedings › Book

  4. Published

    Introduction to part 1 : disability studies.

    Thomas, C. & Barnes, C., 2006, Overcoming disabling barriers : 18 years of disability and society.. Barton, L. (ed.). London: Routledge, p. 3-6 4 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter

  5. Published

    Disability and gender : some reflections on theory and research.

    Thomas, C., 2006, In: Scandinavian Journal of Disability Research. 8, 2-3, p. 177-185 9 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  6. Unpublished

    What can qualitative data add to knowledge about place of cancer deaths?

    Thomas, C., 2007, (Unpublished). 0 p.

    Research output: Contribution to conference - Without ISBN/ISSN › Conference paper

  7. Published

    How can and should UK society adjust to dementia?

    Thomas, C. & Milligan, C., 06/2015, Joseph Rowntree Viewpoint 24 p.

    Research output: Contribution to specialist publication › Featured article

  8. Published

    Disability and the death and dying agenda

    Thomas, C., 2011, Death, dying, and social differences. Oliviere, D., Monroe, B. & Payne, S. (eds.). Oxford: Oxford University Press, p. 85-97 13 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter

  9. Published

    Theorising disability and chronic illness: where next for perspectives in medical sociology?

    Thomas, C., 2012, In: Social Theory and Health. 10, 3, p. 209-228 20 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  10. Published

    Disability: prospects for social inclusion

    Thomas, C., 2011, Fighting poverty, inequality and injustice: a manifesto inspired by Peter Townsend . Walker, A., Sinfield, A. & Walker, C. (eds.). Bristol: Policy Press, p. 223-240 18 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter

  11. Published

    Companions through cancer: the care given by informal carers in cancer contexts

    Thomas, C., Morris, S. & Harman, J. C., 2002, In: Social Science and Medicine. 54, 4, p. 529-544 16 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  12. Published

    Disability

    Thomas, C. J., 2015, The Routledge International Handbook of Diversity Studies. Vertovec, S. (ed.). 1st ed. London: Routledge, p. 43-51 9 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter

  13. Published

    Family carers’ experiences of coping 
with the deaths of adults in home settings: A narrative analysis of carers’ relevant background worries

    Thomas, C. J., Turner, M., Payne, S. A., Milligan, C., Brearley, S. G., Seamark, D., Wang, X. & Blake, S., 1/05/2018, In: Palliative Medicine. 32, 5, p. 950-959 10 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  14. Published

    Bereaved children's questions to a doctor.

    Thompson, F. & Payne, S., 2000, In: Mortality. 5, 1, p. 74-96 23 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  15. Published

    The study of mental distress and the (re)construction of identities in men and women with experience of long-term mental distress

    Timander, A-C., Grinyer, A. & Möller, A., 03/2015, In: Disability and Society. 30, 3, p. 327-339 13 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  16. Published

    Forgotten lives, hidden Deaths: people with ID living in and dying in non‐ID care settings

    Todd, S., Bernal, J., Hunt, K., Brearley, S. & McCarron, M., 1/07/2019, In: Journal of Intellectual Disability Research. 63, 7, p. 646-646 1 p.

    Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review

  17. Published

    What is the evidence for the use of acupuncture as an intervention for symptom management in cancer supportive and palliative care: an integrative overview of reviews

    Towler, P., Molassiotis, A. & Brearley, S. G., 10/2013, In: Supportive Care in Cancer. 21, 10, p. 2913-2923 11 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  18. Published

    A theoretical framework of the factors affecting the end‐of‐life trajectory and provision of end‐of‐life care for people with intellectual disabilities (ID)

    Tuffrey-Wijne, I., Todd, S., Hatton, C., Glover, G., Heslop, P., Brearley, S., Hunt, K., Finlay, I. & Hollins, S., 1/07/2019, In: Journal of Intellectual Disability Research. 63, 7, p. 651-651 1 p.

    Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review

  19. Published

    Governance in changing times : the experiences of hospice trustees in the United Kingdom.

    Turner, M. & Payne, S., 12/2009, In: Palliative Medicine. 23, 8, p. 718-722 5 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  20. Published

    How notorious do dying prisoners need to be to receive high quality end-of-life care?

    Turner, M., Barbarachild, Z., Kidd, H. & Payne, S., 2009, In: International Journal of Palliative Nursing. 15, 10, p. 472-3 2 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  21. Published

    Recognising the hidden volunteers in palliative care : a survey of hospice trustees in the United Kingdom.

    Turner, M. & Payne, S., 2009, In: European Journal of Palliative Care. 16, p. 176-176 1 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  22. Published

    How research active is your hospice? : results of a telephone survey to map research activity in UK hospices.

    Turner, M. & Payne, S., 11/2009, In: End of Life Care. 3, 4, p. 59-59 1 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  23. Published

    All tooled up : an evaluation of end of life care tools in care homes in North Lancashire.

    Turner, M., Payne, S. & Froggatt, K., 11/2009, In: End of Life Care. 3, 4, p. 59-59 1 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  24. Published

    Mandatory communication skills training for cancer and palliative care staff: does one size fit all?

    Turner, M., Payne, S. & O'Brien, T., 12/2011, In: European Journal of Oncology Nursing. 15, 5, p. 398-403 6 p.

    Research output: Contribution to Journal/Magazine › Journal article

  25. Published

    Care or custody? an evaluation of palliative care in prisons in North West England

    Turner, M., Payne, S. & Barbarachild, Z., 06/2011, In: Palliative Medicine. 25, 4, p. 370-377 8 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  26. Published

    Methods of building and improving the research capacity of hospices

    Turner, M. & Payne, S., 2012, In: European Journal of Palliative Care. 19, 1, p. 34-37 4 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  27. Published

    Uncovering the hidden volunteers in palliative care: a survey of hospice trustees in the United Kingdom

    Turner, M. & Payne, S., 12/2008, In: Palliative Medicine. 22, 8, p. 973-974 2 p.

    Research output: Contribution to Journal/Magazine › Journal article

  28. Published

    Palliative care for prisoners

    Turner, M. & Payne, S., 2011, Death, dying, and social differences. Oliviere, D., Monroe, B. & Payne, S. (eds.). 2 ed. Oxford: Oxford University Press, p. 200-206 7 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter

  29. Published

    Family carers' delivery of medications for the person dying at home: preliminary findings from the 'unpacking the home' study

    Turner, M., Seamark, D., Milligan, C., Thomas, C., Brearley, S. G., Wang, X., Blake, S. & Payne, S., 03/2013, In: BMJ Supportive and Palliative Care. 3, 1, p. 125-126 2 p.

    Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review

  30. Published

    'Unpacking the home' - a social science approach to researching dying at home

    Turner, M., Seamark, D., Milligan, C., Brearley, S., Wang, X., Blake, S. & Payne, S., 1/06/2012, In: BMJ Supportive and Palliative Care. 2, 2, 1 p.

    Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review

  31. Published

    Care for people in prison

    Turner, M. & Peacock, M., 20/11/2015, Palliative care nursing at a glance. Ingleton, C. & Larkin, P. (eds.). Wiley

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter

  32. Published

    Caring for a dying spouse at the end of life: “It’s one of the things you volunteer for when you get married”: a qualitative study of the oldest carers’ experiences

    Turner, J. M., King, C., Milligan, C., Thomas, C., Brearley, S. G., Seamark, D., Wang, X., Blake, S. & Payne, S. A., 05/2016, In: Age and Ageing. 45, 3, p. 421-426 6 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  33. Published

    Improving palliative care for prisoners: the 'both sides of the fence' study

    Turner, J. M., 03/2016, In: Prison Service Journal. 224

    Research output: Contribution to Journal/Magazine › Journal article

  34. Published

    Palliative care in UK prisons: practical and emotional challenges for staff and fellow prisoners

    Turner, M. & Peacock, M., 01/2017, In: Journal of Correctional Health Care. 23, 1, p. 56-65 10 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  35. Published

    Ageing and dying in the contemporary neoliberal prison system: exploring the 'double burden' for older prisoners

    Turner, M., Peacock, M., Payne, S. A., Fletcher, A. & Froggatt, K. A., 09/2018, In: Social Science and Medicine. 212, p. 161-167 7 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  36. Published

    To what degree is palliative care integrated in guidelines and pathways for adult cancer patients in Europe: a systematic literature review

    van Beek, K., Siouta, N., Preston, N. J., Hasselaar, J., Hughes, S., Payne, S. A., Radbruch, L., Centeno, C., Csikos, A., Garralda, E., van der Eerden, M., Hodiamont, F., Radvanyi, I. & Menten, J., 3/03/2016, In: BMC Palliative Care. 15, 26, 17 p., 26.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  37. Published

    Comparing palliative care in care homes across Europe (PACE): protocol of a cross-sectional study of deceased residents in six EU countries

    Van den Block, L., Smets, T., van Dop, N., Adang, E., Andreasen, P., Collingridge Moore, D., Engels, Y., Finne-Soveri, H., Froggatt, K. A., Payne, S. A. & Sowerby, E., 1/06/2016, In: Journal of the American Medical Directors Association. 17, 6, p. 566.e1-566.e7 7 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  38. Published

    Evaluation of a Palliative Care Program for Nursing Homes in 7 Countries: The PACE Cluster-Randomized Clinical Trial

    Van Den Block, L., Honinx, E., Pivodic, L., Miranda, R., Onwuteaka-Philipsen, B. D., Van Hout, H., Pasman, H. R. W., Oosterveld-Vlug, M., Ten Koppel, M., Piers, R., Van Den Noortgate, N., Engels, Y., Vernooij-Dassen, M., Hockley, J., Froggatt, K., Payne, S., Szczerbińska, K., Kylänen, M., Gambassi, G., Pautex, S., & 4 othersBassal, C., De Buysser, S., Deliens, L. & Smets, T., 11/11/2019, In: JAMA Internal Medicine. 180, 2, p. 233-242 10 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  39. Published

    Person-centred palliative care in five European countries: the experiences of patients and family carers

    van der Eerden, M., Hughes, S., Varey, S. E., Ewert, B., Schwabe, S., Busa, C., Kiss, Z., van Beek, K., van Ende, S., Csikos, A., Hasselaar, J. & Groot, M., 24/05/2016.

    Research output: Contribution to conference - Without ISBN/ISSN › Conference paper › peer-review

  40. Published

    An analysis of the experiences of bereaved relatives and health care providers following palliative sedation: a study protocol for a qualitative international multicenter case study

    Van der Elst, M., Payne, S., Arantzamendi, M., Preston, N., Hasselaar, J., Centeno, C., Belar, A., Jaspers, B., Brunsch, H., Surges, S., Adile, C. & Menten, J., 23/12/2022, In: BMC Palliative Care. 21, 1, 8 p., 227.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  41. Published

    Advance care planning - Family carer psychological distress and involvement in decision making: The ACTION trial

    Vandenbogaerde, I., De Vleminck, A., Cohen, J., Verkissen, M. N., Lapeire, L., Ingravallo, F., Payne, S., Wilcock, A., Seymour, J., Kars, M., Grønvold, M., Lunder, U., Rietjens, J., Van Der Heide, A. & Deliens, L., 31/12/2023, In: BMJ Supportive and Palliative Care. 13, e3, p. e807–e811 5 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  42. Published

    Form-filling, power and the ILP: tensions and tutor strategies in one adult literacy classroom

    Varey, S. & Tusting, K., 09/2012, More powerful literacies. Hamilton, M., Tett, L. & Crowther, J. (eds.). Leicester: NIACE, p. 105-116 12 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter

  43. Published

    Voices in a Knowledge Conversation: an exploration of two narrative representations of Adult Literacy Learners

    Varey, S., 2013, Lancaster: Lancaster University. 409 p.

    Research output: Thesis › Doctoral Thesis

  44. Published

    Benefits of integrated palliative care assessed by European Research consortium

    Varey, S. E. & Payne, S. A., 26/04/2016

    Research output: Other contribution

  45. Published

    How effective and cost effective are innovative combinatorial technologies and practices for supporting older people with long-term conditions to remain well in the community? An evaluation protocol for an NHS Test Bed in North West England

    Varey, S. E., Hernandez Huerta, M. A., Palmer, T. M., Mateus, C., Wilkinson, J., Dixon, M. P. & Milligan, C., 28/02/2018, In: BMJ Open. 8, 2, 10 p., e017268.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  46. Published

    The ageing prison population and increasing prisoner palliative care needs: effects, challenges and conflicts for prisoners and prison staff

    Varey, S., Turner, M., Peacock, M., Froggatt, K., Payne, S., Fletcher, A., Gibson, R. & Scott, G., 1/04/2016, In: Palliative Medicine. 30, 4, 1 p., Poster 41.

    Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review

  47. Published

    Barriers to access to opioid medicines: a review of national legislation and regulations of 11 central and eastern European countries

    Vranken, M. J. M., Lisman, J. A., Mantel-Teeuwisse, A. K., Jünger, S., Scholten, W., Radbruch, L., Payne, S. A. & Schutjens, M-H. D. B., 01/2016, In: Lancet Oncology. 17, 1, p. e13-e22 10 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  48. E-pub ahead of print

    The perception of barriers concerning opioid medicines: A survey examining differences between policy makers, healthcare professionals and other stakeholders

    Vranken, M. J. M., Linge-Dahl, L., Mantel-Teeuwisse, A. K., Radbruch, L., Schutjens, M-HDB., Scholten, W., Payne, S. & Jünger, S., 23/12/2019, (E-pub ahead of print) In: Palliative Medicine. 11 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  49. Published

    Psychology for nurses and the caring profession. 2nd ed.

    Walker, J., Payne, S., Smith, P. & Jarrett, N., 2004, Maidenhead: Open University Press. 219 p.

    Research output: Book/Report/Proceedings › Book

  50. Published

    Pyschology for nurses and the caring professions. 3rd ed.

    Walker, J., Payne, S., Smith, P. & Jarrett, N., 2007, Maidenhead: Open University Press. 275 p. (Social science for nurses and the caring professions)

    Research output: Book/Report/Proceedings › Book

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